wondering still

I have been thinking about it,I go back to the rheumatologist on the 17th.I am going to ask for a bone scan or mri or both of my back and legs.I am still not sure if this is fibromyalgia,some of the symptoms seem like it could be but I am not in excurciating pain except for sometimes when I am sleeping and occasionally during the day. My problems are that my muscles or whatever it is feel tight and my bones feel fragile or stiff.it is hard to walk down or up hills and sometimes hard to walk at all cause my body will all the sudden feel like it weighs a ton.I do get occasional migranes,lots of gas and sometimes stomache aches.Parts of my body feel swollen when they are not,tinnitus,teeth grinding while sleeping etc,feet going semi numb kinda like when you had a shot of novacain and it starts to wear off.I know some of that is symptoms of fibromyalgia but from alot of posts I've read so many are in alot of pain.I still have a hard time with tasks because I am slow because everything gets so heavy and my body feels like it's dragging,my feet feel semi numb if I stand too long and creates pain at night but then it just goes back to uncomfortable the next day.

 I almost did not get to reply to this cause I had a duh moment,I couldn't for a minute remeber my password.Just wondering deb how long you have had this.In all honesty I think that mine started 4 years ago just slight things happening(just after I had bellspalsy).Numbness in one toe,achy back,sleep paralysis,brain fog,excessive nervousness with hypoglycemic moments even though I didn't have hypoglycemia.I think that the respiratory failure in 2010 pushed the fibro over the edge and that's why it is worse but for years I thought and sometimes still think I have a mystery diagnosis.I can accept the diagnosis but I still wish they could find some kind of marker in the blood.I think a good place to start is vitamin d,seems like almost everybody here is vitamin d defienient.I wonder if this causes fibromyalgia or fibromyalgia causes it or if it just makes fibromyalgia worse?

Nana,

There's a question for ya! I was always a sensitive kid in some ways, then after I burned my back (3rd degree) as a teenager, my back pain started...then I got more symptoms with each of my 3 pregnancies.

Full-blown fibro, I'd say I've had for about 25 years. I also get the hypoglycemic moments, and absolutely hate them) but have been told that my Vit D levels are fine. (In fact, the expression, "You're fine!" drives me crazy...DON'T tell me how I am!) My daughters tell me I should lighten up about it :) but it just grates on me. Oh well - my bad, as they also say!

Debbie

had trauma to the front of neck,fractured treachea from the ventilator plus a trecheotomy.my main problem is the numbness in toes and leg weakness but neurologist found nothing with emg and nerve conduction tests.