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You know what is scary about fibro to me, the symptoms

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Posted 5/27/2011 2:04 AM (GMT 0)
I don't know about you, but some of my symptoms scare me, then I get anxious. I have had alot of tests done, mri's, ct's, bloodwork, etc. but the dizziness and feeling off balance scares me. For instance, this evening my husband and I went shopping. I was walking around alot and looking at clothes, turning, bending and trying on a few things, then I just start to feel dizzy, get hot, short of breath, and just feel funny. My pain gets a little worse and I start to feel drained. The dizziness is not bad, just feeling off balance.  I seem to get hot fast, anyone get hot fast too? Then I start thinking of other things that could be wrong and totally forget the fibro and focus on, oh no am I gonna have a heart attack or am I gonna pass out. Anyone else like this? I don't get anxious first, my symptoms act up and I dwell on them...haha, need to stop and accept it's fibro.

Also, I noticed the other night, I was feeling a little bad, and went outside. Hubby just finished staining deck, and after about 10 mins I started getting really sick after smelling the fumes.  Dizzy, nauseated, instant gas..lol, headache and had to get away from it. He was outside all day with it and no problems, I guess this is related to fibro too? Chemical sensitivity?

Hugs,

KL

 

Posted 5/27/2011 2:10 AM (GMT 0)

Klambert1 said...
I don't know about you, but some of my symptoms scare me, then I get anxious. I have had alot of tests done, mri's, ct's, bloodwork, etc. but the dizziness and feeling off balance scares me. For instance, this evening my husband and I went shopping. I was walking around alot and looking at clothes, turning, bending and trying on a few things, then I just start to feel dizzy, get hot, short of breath, and just feel funny. My pain gets a little worse and I start to feel drained. The dizziness is not bad, just feeling off balance. I seem to get hot fast, anyone get hot fast too? Then I start thinking of other things that could be wrong and totally forget the fibro and focus on, oh no am I gonna have a heart attack or am I gonna pass out. Anyone else like this? I don't get anxious first, my symptoms act up and I dwell on them...haha, need to stop and accept it's fibro.


Also, I noticed the other night, I was feeling a little bad, and went outside. Hubby just finished staining deck, and after about 10 mins I started getting really sick after smelling the fumes. Dizzy, nauseated, instant gas..lol, headache and had to get away from it. He was outside all day with it and no problems, I guess this is related to fibro too? Chemical sensitivity?



Hugs,

KL

Hey, I have gotten this same exact thing! And i'll tell you what it has happened at the most random times. I start to have like chest pains or something related to the fibro *Im not yet diagnosed*, and ill get like really really nervous, and feel like i'm gonna pass out, or have a heart attack cause the pain is so bad I get goosebumps like feelings from it. Its stingish, and I feel like I'm gonna drop. This happened at walmart quite a few times, but then it's been months since it happened last in Target, and hasn't happened again thank god.
Posted 5/27/2011 5:38 AM (GMT 0)
Hi Klambert!

I'm sorry you're feeling so awful. Fibro can be scary since we can't see any proof of what we actually have. It's an invisible disorder. It's easy for the mind to then wander and think of 'what if'. Once those thoughts get going you're headed for more pain. Stress is our enemy! Good or bad stress, doesn't seem to matter, but stressors slam us with pain. Also, anxiety can cause any or all of those symptoms you described and triple also.

One other thing to consider...I have no idea how old you are but could those 'instant hot' flashes by related to menopause? You can have symptoms menopausal symptoms as early as your 30's but normally between 45 & 55. Here's a couple of paragraphs I found on an interesting website...power-surge.com...lol Love the name. Maye someone will find this helpful.

For most women, natural menopause occurs between the ages of 45 and 55, with the average age of onset being 51.4 years of age. In rare instances, menopause can occur as early as the 30's or as late as the 60's. Menopause is considered premature if it occurs before the age of 40, or artificial if radiation exposure, chemotherapeutic drugs, or surgery induces it. Other factors that may contribute to the early onset of menopause include a history of smoking, poor nutrition, a co-existing medical condition, or even a traumatic experience.

Until a woman is technically considered menopausal (aka postmenopausal), she's considered to be premenopausal, also referred to as perimenopause. It's during the perimenopausal phase that most women experience the worst symptoms.

Menopause (or postmenopause) occurs when a woman hasn't had her period for 12 consecutive months. Once hormones have leveled off, most of the symptoms experienced during perimenopause will disappear -- although some women have occasional hot flashes, anxiety, bouts of depression, et al, for a few years after they become postmenopausal.

Share this with your doctor if you haven't already. I will help him get you to feeling better faster and that's what it's all about. More quality to our lives.

Hugs,
Chutz
Posted 5/27/2011 10:24 AM (GMT 0)
For me, the diagnosis of fibro was sort of a relief, if that makes sense to anyone.  At least I know what I am dealing with now, sort of.  I have had symptoms for years, so getting the diagnosis was just putting a name to the problems.  My PCP feels it's the diagnosis we have been looking for and says now we can move on, figure the next step.  Reading in this forum, what scares me is those of you with much worse symptoms, and I pray mine do not get worse than they are.  Of course, some days, I'm not sure if the problem is the fibro, the CFS, my neuropathy, or my arthritis...probably a mixture of all.
Posted 5/27/2011 4:01 PM (GMT 0)
KL,

there is a condition that causes a non diabetic to have diabetic symptoms. Its called reactive hypoglycemia. If you eat a high carb/sugar breakfast (like pancakes with syrup and no protein to balance it) around 9am, about 2 1/2 - 3 hours later you will get/ could get dizzy, sweaty, nauseous, faint feeling, fatigued, and even disoriented. This is caused by the sugar levels going way up and then falling very quickly a few hours later.
I have had this happen to me on many occassions. I came across a site that explained what was happening to me and now I never eat a non protein meal. I have had my sugar levels checked on many occasions and they are always fine. This is just a temporary reaction and can be "fixed" by eating or drinking something like juice, regular soda, .....I just stave it off by not ever having high sugar meals in the morning. (this is usually the meal that is the culprit most often because we go so many hours w/o eating before that meal.)

hope this helps
Posted 5/27/2011 4:07 PM (GMT 0)
You do need to get a grip on the anxiety.  Anxiety is fear and it sure can play havoc with your mind!  I have things like this happen all of the time and I know it goes away so I don't worry about it.  I focus on something else at the time.  If I were to really start thinking about a symptom, boy, my mind could conjure up a mess of problems!  If a symptom were bad and never ending, then I would see my doctor.   If you've been checked out and your doctor can't find anything, then just keep on keeping on. 

I think the scariest thing I have happened was one day, after lunch, I could not swallow!  Nothing.  No matter how hard I tried, I just could not swallow!  Of course the anxiety and panic raised it's ugly head.  I had visions of stomach tubes dancing in my head.  Nope.  I didn't want to go there and add more symptoms to my problem.  I focused on other things and after a few minutes tried to swallow again.  I could. 

 

I did get on the forum later and ask about this and a member told me they had that happen and they would cough and then could swallow again.  It worked!  This problem happened on and off for several months and has since disappeared...like some of the other symptoms we get.  Something will disappear and another symptom will pop up to take it's place. 

Oh, I did talk to my doctor about it and he felt it was muscle contractions in my throat causing this.  Whew!  Hey, I'm not dying afterall!  turn

 

Sherrine

Posted 5/27/2011 5:52 PM (GMT 0)
I have had similar 'hot flashes' before. They are not exactly the same as yours, but than again Fibro is nowhere near an exact science so hell :)
I just get very hot and sweaty all of a sudden, no matter if i'm in a warm room or a cold room, i usually feel very light headed when it comes up and when it starts to fad it's always replace with nausea.
Since i'm only 26 i guess i can thrw that menopause explanation right out the window.
When it happens i ussualy try to step outside for a minute in the cool air (or at work i stand right under the airco) and duck my head in between my knees, that ussualy makes it fade away for me.

Again don't know if its in any way related to my other symptoms but it has turned up around the same time so it probably has something to do with one another.

Fiona
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