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Posted 5/28/2011 2:18 PM (GMT 0)
can you have fibromyalgia without very much pain.I have paraesthesia's a little achiness sometimes and stiff muscles plus vibrations but it makes me think that maybe its something else.I went to my regular doctor yesterday and he said to go back to the neurologist which I am trying to get into before september.I was just curious if any body here had very little pain but all the other symptoms of fibromyalgia
Posted 5/28/2011 6:54 PM (GMT 0)
I believe that it is possible to have a minimal amount of pain and still have fibromyalgia. Most of the time that fatigue is what bothers me. But I have a high pain threshold. I can tolerate a large amount of pain and still function. But I can't tolerate the fatigue. So I really think that it is possible.

I hope that you find the answers that you are looking for.

Hugs, Karen
Posted 5/28/2011 10:21 PM (GMT 0)
I agree with Karen.  She said what I was thinking, nearly word for word.  I think my having a headache all the time has given me a high threshold to pain, yet the fatigue has me so worn out.  I can barely make it to 9pm and I wake up at 5 just as tired as I was at 8pm.  Fatigue is my worst symptom.
Posted 5/28/2011 10:46 PM (GMT 0)
I am still getting used to the idea of all the things fibromyalgia can do.To day was the worst day I've had in awhile and it is too close to the aniversary of the beginning of getting sick last year.june 2and my wedding anniversary last year I developed a 3 day dizziness(which could've been fibro then)but I was smoking too and I developed bronchitis and that gave me an asthma attack in which I almost croaked 1month later in july so when (now) I got this bout of dizziness for the last couple of days I am panicking because my mind is telling me it could be a repeat of last year(only I don't smoke).I have no one that wants to listen to talk to about this,even my counselor seems like she doesn't listen and everyone else doesn't understand my fear at all.I suppose if I make it through the summer I will be a little less paranoid since the last 3 i've been sick(another reason for my fear).every year it keeps getting worse and there's only one thing that can happen that is worse than last year.I know this probably sounds irrational to all of you.I wish I could change my attitude or outlook reallllly bad.
Posted 5/29/2011 12:09 AM (GMT 0)
That is why it is good to take life one day at a time, one moment if necessary. You are projecting the future, and that can cause panic attacks. Severe fears of what might happen. Try to relax and not worry. Has the dizziness gone away yet? And know that every year isn't going to continue to get worse. Fibromyalgia waxes and wanes, we have good days too. So try to be optimistic about it. Know that we are all in the same boat. We all want to feel better. And we will. Between us, we can beat this or at least have a good life even with fibromyalgia. Keep your chin up. Keep moving around. The more that you can move, the better. If you don't move around your muscles go into rigor and get stiff and non flexable. So keep moving. Try to walk. Even if it is just five minutes to start. And add a little more everyday. Start any exercise regiman slowly. Even stretching. And stretch as often as you can. Hydrate yourself good. Your muscles need the fluids.

There is a lot that you can do to make life easier with fibromyalgia that doesn't even have to be medication. I am sure that you have read about the malic acid/magnesium supplements. They do help and are inexpensive. You might benefit from that. Not everybody does, but a lot of us do.

Know that we do understand. I am sorry that your family and friends don't. But we do, so keep posting and know that we all care about you.

I hope that your day gets better, think positive, that really does help.

Hugs, Karen
Posted 5/29/2011 12:40 AM (GMT 0)
thank you
Posted 5/29/2011 2:47 AM (GMT 0)
Isn't Fibro with minimal pain CFS?
Posted 5/29/2011 10:49 AM (GMT 0)
I agree with "getting by" (Karen).  We should always focus on the good things, good times, and don't let the bad days get us down.  Tomorrow is always another day.

CFS and Fibromyalgia are 2 different syndromes, with similar symptoms, at least that is what I was told.  I have both.  I have elevated Epstein Barr Virus numbers, which gave me the diagnosis of CFS.  I am not sure that Epstein Barr has anything to do with fibromyalgia.  Here is what Arthritis Today says:

http://www.arthritistoday.org/community/expert-q--a/fibromyalgia/chronic-fatigue-syndrome-fibromyalgia.php

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