Posted 7/1/2011 6:16 PM (GMT 0)
Just like all of you, i have my good days and bad days. On my bad days, all i do is sleep because I can't move, yet I can't hardly function. Yet on my good days, I have to use them to do the chores, shopping, and things I could not do on my bad days. I am trying to go to the beach on my good days or have fun, but something always has to be done that I have to make up so i miss out. The bad part is even though there is time afterwards, but I am so drained from the "make up" stuff that I lose out on my fun activity.Even worse,, I have too many doctors, even on my bad days, which extends these bad days to forever. Even worse is that on the good days that I do have no chores and I want to spend at the beach, friends always want me to do this with them. Though it is easy to say no, but then you get guilty. On top of that, I am now on medications that cause me to be sleepy and miserable, but yet have to put on an act to look perfect, so i don't get judged.
How many of you are going through the same thing? If so, is your good days wasted on things you could not do on the bad days.