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Posted 7/22/2011 1:29 AM (GMT 0)
Hi everyone, I haven't been on much lately and almost feel guilty for coming on tonight to be a crybaby to someone. I have had chronic pain for the last 20 some years and 4 years ago was diagnosed with Fibro. I also have sjogrens syndrome and have a very hard time walking. The pain in my low back, legs, feet and shoulders, even my arms is constant and unrelenting. I had back surgery in 2008 with fusion and total knee replacement in 2010. I'm 51 years old and yes, I'm overweight. The pain shooting from my back and down my leg feels like an electrical shock or lightning bolt. Anyway, today I had a EMG testing and nerve conduction testing thinking that we would find an answer better than
"fibro" as an answer to everything. in addition, I've been having issues with incontenence. Well, guess what.. My nerves are fine. Now I'm feeling at a loss. Just so hard to get it through my head that all this pain can't be defined. Sorry for the complaining,I need to find a quiet place and breathe. How can you have all this kind of pain with no definite cause? I just don't get it...
Posted 7/22/2011 1:47 AM (GMT 0)
Hi minny, you are not a crybaby and so what if you want to have a cry...we all do at times...wow you have a lot going on no wonder your in so much pain..and hey I'm overweight too no biggy it's hard to exercise when everything hurts isnt it....I'm glad your emg was all good, unfortunately with fibro there is no cause except fibro and it does take a long time to accept that it is fibro, I know I still struggle with my diagnosis..
I'm often at the dr saying "it can't just be fibro that makes me feel like this" but it is... I don't really know what to tell you except be strong keep posting on here there are great people with good advice and answers and it does help to share problems.....best wishes to you hope things get better...shannon
Posted 7/22/2011 2:31 AM (GMT 0)
Hi Minny, it is great to see you again! I'm so sorry you are in so much pain. The pain you described going from your lower back down your leg sounds like sciatica...the description, electrical shock...lightening bolt certainally is the way I'd describe my sciatica. The sciatic nerve is as big around as your thumb and when that is impinged it is extremely painful. Inflamation or a bad disc can cause this. I'm not a doc, but ask yours if it could be.

My back surgery has helped it, but every so often the sciatica will rear it's ugly head and cause lots of pain. Physical therapy might help you. A combo of PT. muscle relaxers and pain killers worked for me.

Hoping that you get pain relief soon!

Hugs, Robin
Posted 7/22/2011 5:50 AM (GMT 0)
Hi Minny~

And welcome back. I'm sorry that you are so miserable but I do understand your thinking. There have been times I've felt very similar when one problem after another occurs. It's almost more than we can bear. But for me I've learned to take one problem at a time and push the rest aside otherwise I'm so overwhelmed that nothing gets accomplished and I collapse.

One problem I'll share with you is the one of incontinence. I had a fairly quick onset of stress urinary incontinence (SUI). It's what my urogynecologist calls the "Sneeze and Pee Disease". That sure got me to laughing. For a couple of years it had been just an annoyance but about 5-6 months ago something changed and I had times when I just lost control. I immediately told my PCP and headed for the pharmacy where I found pads designed for the problem. No, they are not Depends, they are like menstrual pads only better. My doc referred me to a wonderful female doctor at a local woman's clinic and it's the best referral I've ever had. about 6 weeks ago I had the corrective surgery. It's day surgery, the procedure lasts about 20-30 minutes and I had immediate results. I've not had one incident since the surgery, no pads, no leaks, I have control and it was so easy to get taken care of. Below is a link to the type of procedure I had done.

If this is similar to your problem I encourage you to get a referral, if you need one, or get in to see someone who deals with the problem. Below is a link to the procedure I had done. It's new, simple and effective. Some people need something mild for pain or just Tylenol, others have very little pain at all.

I hope I've given you something helpful to think about. Please feel free to email me if you want to talk more.

Chutz

www.amsminiarc.com/
Posted 7/22/2011 6:39 AM (GMT 0)
Not knowing why is particularly enraging to me, so I really understand that frustration.

I found EMG to be excruciating and stopped after the second needle. It amplified my pain to an extreme I wasn’t willing to put up with, so I walked out. The small bit of info they gathered indicated carpal tunnel and other nerve damage.

I second the Sciatica. Having lost 80 pounds I can honestly say that losing weight does help, but I’m sure that doesn’t help you at the moment. It’s truly hard to find an exercise you can do. Ever tried Thai Chi?

And hey, it’s a chronic pain forum. Kids who can’t have ice cream are crybabies. You are not.
Posted 7/22/2011 9:21 AM (GMT 0)
Thank you everyone for responding. I know that sometimes we / I get overwhellmed and this was just one of those times. It's great knowing there are others out that just to lend a kind word of understanding. I am going to see a gastrologist in the next few weeks and hopefully this will help.

I'm obviously not in bed and it's 4:19am, lol, I know that some of you are right here with me and am so gratefull for this forum. I will get over this bump in the road as I have others. Again, thank you for the kind encouragement.

Take Care

Steph

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