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Posted 8/26/2011 2:05 AM (GMT 0)
My blood test results came back - everything they checked - blood cell counts, SED rate, calcium, etc came back normal. So that's good -- I guess? But it's maddening. I'm going to have a sleep study done this weekend. I am so exhausted. I took the trash bin out to the street at about 8:30 tonight, and I just wanted to lie down in the grass, it was that bad. So I got the little ones to bed & intended to sleep myself, but now I have insomnia and my legs are hurting and restless. I have been waiting to fill my prescriptions until I have the sleep study but I feel like I'm about to crawl up the walls!
Posted 8/26/2011 2:43 AM (GMT 0)

I'm glad to hear your bloodwork came back normal yeah It is frustrating when you are exhausted and cannot sleep. I understand, I've been plagued on an off since childhood with insomnia. Sometimes a warm bath will help relax me, but the there are nights that...

I lie awake in the middle of the night

The room is dark except for moonlight

Time passes slowly when others sleep

I hear the tick of the clock

as the second hand sweeps

Keeping time while I count sheep

Try some deep breathing exercises or do some reading. I do hope you can get a good night's sleep.

Hope to see you at Sherrine's party!!!!

Hugs, Robin 

Posted 8/26/2011 2:46 AM (GMT 0)
I'm sorry to hear you are battling such deep fatigue. Hopefully the sleep study will provide some answers and they can get you back on the mend soon.

Why does insomnia heighten at times like this when you already feel like you've been run over by a truck? One would think you'd fall asleep at the drop of the hat, but for some reason it's just the opposite. So frustrating!
Posted 8/26/2011 10:49 AM (GMT 0)
Thanks. You messages mean a lot to me. At some point, I did sleep & I woke up feeling pretty well but now it's attacking again. Ringing in the ears, bottom of my feet are sore & prickly feeling, elbows, wrists & fingers hurt. My 5 year old son got in the bed & wanted to snuggle, but his head on my shoulder hurt!
Posted 8/26/2011 2:30 PM (GMT 0)
Sorry to hear u've been having sop much trouble sleeping, i wish i could help u but i wouldn't know how.
I'm also a severe insomniac and parasomniac. Lately my sleeping seems to be getting worse instead of better... I wake up again between 2 to 5 times a nigth and ifind it difficult to find a comfortable position to get back to sleep in.
I find drinking a special night time tea sometimes helps me a little bit (these types of tea ussualy contain camilla amongst other things) since i live in Belgium they probably wont have my brand over in the us bu i bet they will have something similiar. This helps me get to sleap a bit easier but it doesn't stop me from waking up again.

I hope u find something that works for u!

Fiona
Posted 8/26/2011 5:40 PM (GMT 0)
My Doctor finally gave me ambien, and it is a miracle!  I didn't get the time release cause it was to expensive.  But it really helps.

Take care,

Marilyn

Posted 8/26/2011 5:52 PM (GMT 0)
I'm glad your tests came back fine but I'm so sorry about the fatigue.  It is hard when you are virtually dragging yourself through the day.  Summers are my worst time for fibro and I'm REALLY having a problem with fatigue right now.  I'm seeing my doctor on Monday and want my iron and thyroid checked out.  BUT this very well could be part of my summertime flare, too.  So could your fatigue!  We can only hope!

 

Sherrine

Posted 8/26/2011 6:09 PM (GMT 0)
Thanks. I get sort of aggravated when test results come back "good," because how can I feel SO BAD and have "normal" results...I'm torn because it seems like they should be able to "find something" so I end up feeling like I am crazy. But I know I'm not and that I am really having these problems. I am always kept running around (have 4 kids) and I know I need to try to relax. I need to change my thought pattern that the blood tests are going to find something, but focus on that it's a good thing that my doctor is monitoring my condition to ensure that there isn't inflammation or anything indicative of Lupus...so if I'm in a holding pattern, that's a lot better than my condition worsening. In that way, my problems ARE somewhat in my head -- it's a matter of adjusting my attitude about what the tests are. I hope you feel better Sherrine...that's good to hear that you have discovered a pattern to your symptoms. It helps to know it will pass or at least change with season.
Posted 8/26/2011 6:20 PM (GMT 0)
Your pain and fatigue are not all in your head.  It's always good to have test run periodically when you have fibro because we tend to blame fibro for everything!  That's not good either.  You do need balance.  Once you have been checked out and the tests come back fine, then  you know what you are feeling is fibro.  Don't be in denial.  That just frustrates you.

 

If your doctor has ruled out other illnesses with tests, then your diagnosis of fibro is accurate.  If you get something new that concerns you, pass it by your doctor.  I did that when heart palpatations starting happening for me.  I knew that was a symptom of fibro but I wanted to make sure it WAS fibro causing them.  I had many heart tests run and the tests were fine.  I'd much rather have the symptoms with no "cause" than have heart disease!  I was thankful it was only fibro and now they don't frighten me. 

 

You will get that way, too.  Just stick with us and you will get the hang of how to deal with this illness.  Hope you feel stronger soon.  Go join the party.  Instead of thinking of fibro, use your imagination to join in the fun!  That's where I'm heading soon.

Sherrine 

Posted 8/26/2011 6:25 PM (GMT 0)
Sherrine, I didn't know how to send a direct message to you. But here you are. I ordered malic acid from Puritan. Omg They are so huge. I can't take them. I was so so excited to get them. I tried to crush them up, but still feel like choking.
Your thoughts,
Marilyn
Posted 8/26/2011 6:47 PM (GMT 0)
I have no problem swallowing them.  They have a coating on them and they go down smoothly for me.  I take one at a time...no more than 2 for a "dose".  I bet you swallow food in larger chunks than those pills are...meat expecially!  Maybe pretend you are swallowing a piece of steak.  When you see you can do it, then you shouldn't have a problem.  Sometimes fear can do that to you.  Try it when your hubby is home and I just bet there won't be a problem.  Let me know, okay?

 

If you ever want to contact me for whatever reason, click on the envelope under my name at the side of any of my posts, and it will bring up an email that you can send to me. 

 

Sherrine

Posted 8/26/2011 6:59 PM (GMT 0)
Are your pills yellow, Sherrine that are huge. Biggest pill I ever seen in my life. lol
Posted 8/26/2011 7:27 PM (GMT 0)
No.  Mine are white!  I get them from Puritan.com.  Magnesium is in them, too.

 

http://www.puritan.com/magnesium-335/malic-acid-825-mg-008655?NewPage=1#product

 

Sherrine

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