My blog

Hello all. It has ben a couple of weeks since I posted here,. I was originally diagnosed with Fibro in May but it turns out I have Myotonic Muscular Dystrophy. I have started a blog in case youd like to read it.
It can be found at
myjourneywithmmd.blogspot.com


I will continue to come here and offer support as they think I have fibro as a secondary condition. blessings to all:)

Oh, I am sorry to hear about your illness. I know getting a diagnosis of that kind must be tough. You probably have been sick and wondering what wrong with me. It must be a relief in some way. Now you know and now you can focus on the treatment. Glad you are going to continue to visit the forum. Hope we can support you.

There are a host of things that they can use to test. one being EMG study, muscle biopsy, genetic testing or just plain physical examination. I was diagnosed by physical examination( coupled with the idea that they think my 6 yr old has it).
i have a long face and hollowed temples which they say is do to muscle wasting. I also have what is called grip myotonia, where if i grip something tightly say a cup or something, a lot of the time my grip doesnt want to let go and will take longer to relax. There are some good youtube videos demonstrating it.

--Tracey