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Fibromyalgia
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Posted 10/10/2011 1:42 AM (GMT 0)
I'm new here and glad I found this active message board. I will try not to write too much.

When I was 12, I started having some kinda electric shocks in my forearms and the doctor told me it was fibromyalgia. It stopped as I got older, but I always had random pains in my body. Something that sounded like arthritis. I also got these weird sensitivity thing. Like my nerves were very active in some parts of my body, like patches of sensibility.
Weird for me, but I always knew there was something wrong.

Fast forward to 26 years old, I started being very tired and it got worst. They diagnosed me with hashimoto 2 years ago. I take pills, it's going better but the pain and everything are back.

In the past 6 months, I got insane muscles twitches. Pain too, at random places on my body. I cough a lot too. For no reasons. X-Rays are fine, no virus or bacteria.

I met a neurologist, who told me it wasn't the nerves. Husband and his family think I'm crazy.

My question: Where do I go from here? What kinda doctor do I need? Can any kinda vitamins be helpful? Diets?
Exercises?

Just know that I know exactly what you're going through.
Posted 10/10/2011 2:57 AM (GMT 0)
I'm finding that taking vitamin D3, magnesium, zinc, & B12 is helping me quite a bit. Try to avoid anything that might excite the nervous system -- like caffeine, chocolate (because it too has caffeine), artificial sweeteners (as well as high fructose corn syrup), and MSG. For every study that says these things are bad for you, there's another study refuting it.

I just try to do whatever makes sense to improve my health, regardless of what the diagnosis is, improving your sleep, mild exercise, taking vitamins & avoiding artificial ingredients & drinking plenty of water are good things to do.

Have they ever checked into multiple sclerosis?
Posted 10/10/2011 3:17 AM (GMT 0)

applevenus said...

Have they ever checked into multiple sclerosis?

Yes and it's not the case. The neurologist I see is specialized in MS and I don't have it, no signs of it either. It's not ALS either.
Posted 10/10/2011 4:00 PM (GMT 0)
Anna,

Welcome to the club! Have you looked at the FIbro 101 thread, at the top of the list on this forum? It has so much good info in it. I got so much out of it, still refer back from time to time, and I've had this blasted Fibro for over 20 years.

You know you're not crazy...let other people think what they will - they will anyway, until something happens to them.

Debbie
Posted 10/10/2011 4:39 PM (GMT 0)
Hi, Anna, and welcome!  I'm glad you found us and joined the family.  Nope, you are not crazy.  That type of "diagnosis" is given by people who don't know what they are talking about and don't know much about fibro.

 

Fibromyalgia is recognized by the American Medical Association, the American College of Rheumatology, the National Institute of Health, and the World Health Organization to name a few.  BUT, there are still doctors out there that don't believe in fibromyalgia.

 

I would suggest that you see a rheumatologist.  Be sure to ask if they treat fibromyalgia patients before you make the appointment.  Many with fibro use these doctors.  My board certifies Internist handles my fibro and other illnesses.  A good neurologist might help, too, but they too need to believe in fibro.

 

Be sure to check out Fibro 101...the second thread on the forum.  There are links to good info about fibro and you will learn a lot there.  Good starting links are called Symptoms, A Thorough Explanation of Fibromyalgia, and What Else Could It Be. 

 

Another great link is called Doctor's Respond to New York Times Article.  These are doctors that are studying fibro and most feel this is a neurological illness so, yes, it can involve nerves.  We fibromites know it involves nerves when we feel like water is running down our leg but it really isn't, when we feel like a bug is crawling on us but it really isn't, etc. 

 

I use malic acid/magnesium supplements and vitamin D3 to help with pain and fatigue.  There are links in Fibro 101 about these and how they work in your body.  You might want to check that out.  Also, gentle stretching exercises, also in Fibro 101, are good along with gentle daily exercises.  I walk and swim as my gentle exercises.  Yoga is another good exercise.  Pacing yourself helps, too.  It all gets done but in a different time frame.  Lastly, I get gentle massages and that really helps.  No deep massages.  I would be miserable if I was given a deep massage.

I'm looking forward to getting to know you better.  Don't hesitate to ask questions because we are here to help you.  Hope to hear more from  you soon.

Sherrine 

Posted 10/12/2011 12:24 AM (GMT 0)
Use malic acid/magnesium supplements and vitamin D3, 5000ui daily. Also, B vitamin complex will make sure your nervous system is upkept and energized! Water fasting on a Sunday (or Saturdays if you arent a busy person) helps too... Lets the body and your nervous system recuperate.

And watch out for aspartame and msg, if you do anything perfect, you really gotta avoid the aspartame and MSG... REad all ingrediants, they're sneaky and put it in a lot of processed foods.
Posted 10/12/2011 2:29 PM (GMT 0)
'In the past 6 months, I got insane muscles twitches. Pain too, at random places on my body. I cough a lot too. For no reasons. X-Rays are fine, no virus or bacteria. '

Which bacteria/ viruses have been ruled out diagnostically?
Posted 10/13/2011 12:00 AM (GMT 0)

Acheybody said...
You know you're not crazy...let other people think what they will - they will anyway, until something happens to them.

Debbie

I know I'm not crazy, but you know, when everyone around you is telling you you're hypochondriac, like everyone, you tend to believe them :(
Hence I'm so glad I found everyone here.
Posted 10/13/2011 12:02 AM (GMT 0)

FarBeyond said...
'In the past 6 months, I got insane muscles twitches. Pain too, at random places on my body. I cough a lot too. For no reasons. X-Rays are fine, no virus or bacteria. '

Which bacteria/ viruses have been ruled out diagnostically?

I'm not sure, I'm guessing pneumonia, since that's what started it all.
Posted 10/13/2011 12:04 AM (GMT 0)

Sherrine said...
and don't know much about fibro.
Fibromyalgia is recognized by the American Medical Association, the American College of Rheumatology, the National Institute of Health, and the World Health Organization to name a few. BUT, there are still doctors out there that don't believe in fibromyalgia.

I would suggest that you see a rheumatologist. Be sure to ask if they treat fibromyalgia patients before you make the appointment. Many with fibro use these doctors. My board certifies Internist handles my fibro and other illnesses. A good neurologist might help, too, but they too need to believe in fibro.

Be sure to check out Fibro 101...the second thread on the forum. There are links to good info about fibro and you will learn a lot there. Good starting links are called Symptoms, A Thorough Explanation of Fibromyalgia, and What Else Could It Be.

Another great link is called Doctor's Respond to New York Times Article. These are doctors that are studying fibro and most feel this is a neurological illness so, yes, it can involve nerves. We fibromites know it involves nerves when we feel like water is running down our leg but it really isn't, when we feel like a bug is crawling on us but it really isn't, etc.

<font color=#0000ff>I use malic acid/magnesium supplements and vitamin D3 to help with pain and fatigue. There are links in Fibro 101 about these and how they work in your body. You might want to check that out. Also, gentle stretching exercises, also in Fibro 101, are good along with gentle daily exercises. I walk and swim as my gentle exercises. Yoga is another good exercise. Pacing yourself helps, too. It all gets done but in a different time frame. Lastly, I get gentle massages and that really helps. No deep massages. I would be miserable if I was given a deep massage.







<font color=#0000ff>Sherrine

Thanks for the warm welcome. It means a lot to know I'm not alone anymore.
I cried after finding this site.

I'm going to look for rheumatologist as soon as I can. I'm having a bad day today. More tired than usual.
Posted 10/13/2011 12:17 AM (GMT 0)

ColitisMastery said...
Use malic acid/magnesium supplements and vitamin D3, 5000ui daily. Also, B vitamin complex will make sure your nervous system is upkept and energized! Water fasting on a Sunday (or Saturdays if you arent a busy person) helps too... Lets the body and your nervous system recuperate.

And watch out for aspartame and msg, if you do anything perfect, you really gotta avoid the aspartame and MSG... REad all ingrediants, they're sneaky and put it in a lot of processed foods.

Do you have any brands or quantity for the B complex and magnesium?
I have access to many health stores here and I don't know if any drugstore brand would work.
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