Hello there, Weeble is here. Need help!

Hello all, I am Weeble, I have been tossed and turned through loads of doctors and i have had enough now, I am now taking all my medical reaserch into my own hands basically.
My first doctor .. Who i went to see told me "if i tell my knees NOT to bed backwards when i walk they wont do it, its all in my head!" lol
My new doctor.. Who i went to see a few day's ago said something simlar he started out promicing but just does not seem to care about how i feel, Im slipping into a big depression at the moment and didnt know where to turn, I typed in Fibromyalgia on a search engine site and your name came up, I have ordered a knee brace to stop the injurys i keep getting from falling over when my knees give way..
All i seem to get off the doc is, "Remember, You are lucky, There are people in wheelchairs that can still live a normal life, Be thankful you can still walk" ... Yes i can walk but i can only walk around my flat - to walk to shop its a day's task because when i get home im exausted because of lack of sleep and pain in my knees, back and well everything really.. so spend the rest of the day in bed.. I would rather be in a chair at least then i could do things i want to!
Basically my story is:

When i was 12, I dislocated my shoulder in physical training at school, Through lifting a 2.1lb weight above my head.. Went to hospitial and after relocating it just wouldnt go back and kept dislocating every time i moved it, they found the join was too lax so they did some tests and i was diagnosed "double jointed"
When i was 16, I went to the doctor complaining of my back and knees... <My knees bend back> They again said its just double jointed and gave it a name as "hypermobility syndrome"
At 17, I was diagnosed with EDS "Ethlers-Danloss syndrome"
And now at 24.. They just keep giving me new names for it but not doing anything about it, They refuse to give me pain medication and tell me to use ice on the muscle spasms and my hurting joints.
they say my memory loss is due to not sleeping, they say me not sleeping is due to me not working.

SO i am taking it into my own hands and getting in touch with a lawyer.. I am ill with Fibromyalgia they now say and i feel like PAP... I want asnwers and i want the treatment and pain medication my friend is getting - He suffers with Fibromyalgia also and is 45yrs old and he is on muscle relaxers, pain medication, at the pain clinic, phsio, hydrotheropy - you name it... And for some unknown reason my doctor thinks im stupid and should get on with it..

They even tuck me off my Anti-Depressents (Bi-Polar) Also because they saw no reason i should not be working!

Im fed up and need help

Sorry for the rant but it had to be done, Take care x

Post Edited (weeble6) : 10/17/2011 7:00:04 PM (GMT-6)

Hi, Weeble, and welcome!  I'm glad you found us and joined in.  Have you been diagnosed with fibromyalgia or are you just guessing?  This is important because many of the symptoms of fibro are like symptoms of other illnesses and the treatments would be different.  You need to have a battery of tests to rule out the other illnesses before a diagnosis of fibro is given.  If you haven't done that, you need to find a doctor that does treat fibro patients.  Perhaps go to your friend's doctor.  I use a board certified Internist for my fibro and many here use a rheumatologist for their fibro.  Hopefully this will give you an idea as to who to see first. 

 

As far as your knees and shoulder, you should probably see an orthopedic doctor.  They specialize in joints.  The knee bending backward has nothing to do with fibro but these types of doctors could really help you and probably help you with the pain involved, too. 

 

Be sure to check out Fibro 101...the second thread on the forum.  There are links to good info about fibro and you will learn a lot there.  Good starting links for you would be the ones called Symptoms, What Else Could It Be, and A Thorough Explanation of Fibromyalgia.  These can help you see if possibly you do have fibro if you haven't received an official diagnosis.  All of the links are good so check them all out.

 

I'm looking forward to getting to know you better.  Don't hesitate to ask questions because we are here to help you.  Hope to hear more from you soon.

 

Sherrine