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COLD hands/feet symptom of fibro?
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Fibromyalgia
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cak
New Member
Joined : Oct 2011
Posts : 14
Posted 10/30/2011 6:29 PM (GMT 0)
I am awaiting 2 doctor apt. this week. I have fibro & Vit. d dif.and carpal tunnel. Latlely feeling so much worse. Not sure if its fibro related or not, so half the time I don't mention to the doctors because I just live with it. But I cant stand the cold hands and feet, turning blue/white. Is this common in fibro? I am being tested for auto immune, due to a low positive ana 1:80. Any thoughts?
vestabula
Veteran Member
Joined : Nov 2008
Posts : 2861
Posted 10/30/2011 9:00 PM (GMT 0)
Sounds like it could be Raynauds which sometimes accompanies fibro. It would be a good idea to ask your doctor about
it.
Donna
ak angel
Veteran Member
Joined : Apr 2011
Posts : 3197
Posted 10/31/2011 5:18 AM (GMT 0)
It does sound like raynauds. I have had it over 20 yrs. and it seems like I have learned to control the discomfort. I live in Alaska and this is he worse state to live in wih reynauds. I did lose a toe over it because of the poor circulation. I have learned a lot of trixes to care for my feet and hands. I hope you don't have it, but make sure you talk to your Dr. about
it.
TheDay
New Member
Joined : Oct 2011
Posts : 2
Posted 10/31/2011 7:18 AM (GMT 0)
I have Raynaud's, like the others. I don't think I have it as bad as ak angel (so sorry to hear that :-/), but I get the same symptoms. My hands and feet are always a different color than my skin and both tend to be either really cold or really hot, while my body may feel to be an entirely different temperature. Definitely talk to your doctor about
it. For me, it is just uncomfortable (especially when my feet get hot-happens often when I'm trying to sleep) , but I'm not at risk of losing anything from it. I think that might be very rare. The pictures you'll find online are often very severe. I know that none of the pictures I've seen , match the color that mine get. I do know that when I'm in the heat and wearing flip flops, people say "OMG your feet got so burnt!" when it's actually the Raynaud's. I've had it since I got diagnosed over 10 years ago.
My doctors have told me that it's nothing to be concerned with, but none of us here can diagnose you, so it wouldn't hurt to ask about
it at your next doc appointment. :)
Deb25
Regular Member
Joined : Apr 2009
Posts : 319
Posted 10/31/2011 11:43 AM (GMT 0)
Doctors can say it's nothing to be concerned with when it's not effecting them. My Raynauds was calm for years but has recently flared up again. Sat, just one finger on my right hand was effected and it turned gray and very painful. It was 45 minutes before the color came back and the pain left...never lasted that long before. Now I know I must wear my gloves, which I hate.
mamanan
Veteran Member
Joined : Jun 2008
Posts : 846
Posted 10/31/2011 2:56 PM (GMT 0)
I have to wear flannel gloves in the house in the winter, don`t I look silly! lol
Yes, my hands really ache and turn bluish from the cold. Making hamburger patties is torture, so I have been teaching my son how to do it.
When I had a test done last summer (can`t remember the name now, but it measured electric impulses in the muscles?) ther doctor kept telling me to put my hands under hot running water to warm them up, even though they didn't feel cold to me.
My NP also dismisses it as nothing to worry about
. Yes, I realize that cold does hurt everyone. Put your hand in a bucket of ice water and you will have to pull it out... eventually. What they don't get is that it is unbearable instantaniously for us.
crazykitty
Veteran Member
Joined : Jul 2009
Posts : 4796
Posted 10/31/2011 7:48 PM (GMT 0)
I also have Raynaud's and have found something that has helped my feet.
SmartWool socks are a blend of Merino wool and some high tech stuff that is supposed to regulate the temperature and wick away moisture from your feet.
These socks are really soft and are not itchy at all. My daughter found these for me and has been keeping me in supply. I wear them to bed too.
Stress can trigger an attack of Raynauds and I've been known to walk around in 100 degree temps with blue, white and purple fingers and toes. I have had strangers ask me, what is up with your fingers?
I take a calcium channel blocker...Diltiazem to help.
Hugs, Robin
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