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Posted 11/5/2011 1:54 AM (GMT 0)
I am in the middle of a really bad flare at present and my GP does not believe in giving pain killers for someone with Fibro.

I know it was brought on by lack of sleep. just trying to walk on the soles of my feet has me in tears.

Next Thursday I see him and do not know how to get through to him that the sleeping meds he gave me DO NOT work he gave me a fancy name for them but when I picked the up from the chemist he gave me the gernaric ones and they have never worked for me and I have had them a number of times over the years.

I was sort of enjoying life again with out too much pain when I was sleeping well, but now the pain has gone off the chart I am back to where the clothes touching me hurts.

I have no idea how to get him to help me, changeing GP's is out of the question because of the lack of GP'S just having one is great let alone finding a new one.

i seem to have come up against a brick wall with it all, unless I tell him I am depressed then maybe he will give me some help. He loves to send people to have surgery but that is it.

Kathy

Posted 11/5/2011 11:52 AM (GMT 0)
Kathy, go to Fibro 101.  You will find a link to pain charts and a pain log.  Start recording the pain you get when doing everyday things...like walking, doing dishes, etc.  The charts will help you.  One has a description of the pain and the other has a face that shows the pain.  You can print out these charts, too, and show your doctor.  Just tell him that you want him to really understand the pain you are in since you can't really see pain.  So you made this log, basing the pain on these charts, to let him know the intensity of your pain so he can help you.  I think that's a reasonable approach and shouldn't offend him.

 

Sherrine

Posted 11/5/2011 12:07 PM (GMT 0)
Yes, and maybe a sleep log too...show him the direct correlation between bad sleep and bad days.

Have you had a sleep study? This helped me with my doctor cause they wnat a piece of paper to tell them, not their patients!~!!

Good Luck
Maggie
Posted 11/6/2011 12:23 PM (GMT 0)
I love Sherrine's advice. Not sure if it will work with that type of dr. but it is definitely worth a try. If your insurance is good, I would also recommend going to an ER. I went once when I had my first migraine and they gave me Hydrocodone (about 15 pills, I think). I hate taking any medication, so that ended up lasting about 9mos, I think. I can tell you that it is about the only thing that really helps me and I have not noticed any side-effects. I would NOT ask for pain meds when you go to the ER or they may well write that you are "drug-seeking" in your charts, but if something has worked for you in the past, you may want to subtley advise them of that and maybe they'll understand and give you a limited amount of it.

It is unfortunate that this is the route you have to take but if it accomplishes what you are in need of - pain relief - then so be it.

Best of luck to you. I am having a flare and know how you feel.
Posted 11/6/2011 12:55 PM (GMT 0)
Hi Kathydownunder,

Sorry to hear about your sleep issues. I, as many others in here, can identify with that. It's so very painful to lay there and not be able to sleep then on top of that to suffer from lack of sleep the next day.

I've been where you're at. Try sleep supplements and see if those help you. Sleep meds did little for me and they caused side effects which made my situation even worse. As I've mentioned in other threads what works for me is Melatonin and L-Theanine. But just to add they don't always work well for me. Sometimes I have to take a good number of them to fall asleep or to stay asleep. I've come to accept that. But at least with these sleep supplements I can take more and I couldn't with sleeping pills.

Good luck.
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