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I have the will but the way is becoming tougher

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Fibromyalgia
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Posted 11/18/2011 5:12 PM (GMT 0)
I have always been an advocate of walking...it is so good for fibromites. It is such a wonderful stress reliever and it really helps with allover health.

Lately, I have been having some trouble  with my endurance due to feeling weaker and short of breath. I know this is due to heart disease, my right ventricle has become stiff and thickened(diastolic dysfuntion)  which makes my heart have to work harder to pump blood out to my body. My heart and lungs are being affected by systemic autoimmune disease. Right now my lung function is still adequate and I don't need oxygen, my pulmonary hypertension is still considered mild.

It is frustrating cry not to be able to exercise the way I want and even doing my deep breathing exercises have been more challenging. The things that have helped me have been difficult. I am stubborn and will continue to try to do my best...I do have the will...I just wish the way was easier :)

I want to encourage you all to start walking if you have not already..it really  does help! yeah   Thanks for letting me vent, I think I'll go and get some cheese to go with my whine turn

 

Posted 11/18/2011 5:51 PM (GMT 0)
I have a lovely goat cheese in the fridge.

How about water therapy? I do find the pool to be easier on my endurance and my joints...

Keep the spirit up!
Posted 11/18/2011 6:40 PM (GMT 0)
May I join you and bring some Milky Way Bars to have with our whine and cheese?  I love to walk also but I have two bugling discs in my lower back and by the time I'm done, my legs tingle.  My back also aches in a way that is not like anything I have felt with fibro.  I try to walk on a flat surface with no dips or hills...it's hard.  My usual mile or two has shrunk down to a few hundred yards....WAHHHH!  Oh, and I walk laps around the house...my husband showed me where I've started to take the finish off the hardwood floors...LOL!

I'm hanging in there with you, my friend! 

Huggies

Donna

Posted 11/18/2011 8:42 PM (GMT 0)
Myself and Donna, I'll take you up on your offer of goat cheese and Milky Ways...I'll supply the wine...yum sounds good to me...what a feast we could have.

I've thought about pool therapy...I'd have to find a pool with warm water and the air temps would have to be warm also because of my Raynauds.

All I know is that I need to keep my exercise going, maybe when I see my doc, I will ask about some form of physical therapy I can get into.

Donna, I walk around the house too...my cats will follow me...they get so confused :)

I'm off to go grocery shopping.....YIPPEE and I'm being daring...I didn't make a list. How is that for excitement!!!!

Hugs, Robin
Posted 11/18/2011 9:33 PM (GMT 0)
I just have trouble walking, due to the hills, the terrain ( I can trip over an invisible leaf.) If I push too hard, my legs tingle and feel like jello, and they hurt.

I have been doing deep water aerobics at my local YMCA for four years now, using a flotation belt. No strain on my legs and back, heated pool. Even just getting in and water walking will be easier.

Hmmm... a nice pinot grigio or a sav blanc with goat cheese... I am thinking cabernet for milky ways.
Posted 11/19/2011 12:38 AM (GMT 0)
I have been walking faithfully, except for this week. Winter decided to show up early in Alaska. We are having -30 windchill factors. I tried to walk, but I was worried about my dog. Today I have been lazy and cold. The only place I walked was to the couch and the heater. Lol.
Posted 11/19/2011 1:03 AM (GMT 0)
Oh my goodness AK Angel, do be careful in that cold, I know you are one that has Raynaud's...I'm sure your dog appreciated that you didn't decide to walk him today!

I'm grateful that I don't have to deal with such harsh winters anymore. My thermostat is at 70 I'm weraring a sweater and jeans and wearing a thick fleece housecoat over that and I'm still chilly...it's currently 56 outside and damp...I'm chilled to the bone. It got up to 67 today and I was able to get a walk in...not as far as I had hoped, but I really am grateful that I can still exercise...there are so many people out there who are unable to get out of bed because of their conditions...I feel embarrased to have complained in the first place. I need to focus more on an attitude of gratitude.

Hugs, Robin

Posted 11/19/2011 2:05 AM (GMT 0)
Robin,

Of all the people I can think of, you are probably the one who complains the least! You are always helping others on this forum to see the good in their situations. Please don't be embarassed about complaining one out of a thousand times!

I'm really sorry you're having more trouble walking. Darn it, that's a tough blow. I know how you love it...that and your deep breathing.

Hugs, Debbie
Posted 11/19/2011 3:38 PM (GMT 0)
Thanks Debbie...I just hate losing control to these dang conditions ...I do allow myself my share of vents...recently I feel as though I've had more than my share. Thankyou for understanding and caring...I do love my walking and deep breathing exercises.

Hope everyone has a great weekend :)

Hugs, Robin
Posted 11/19/2011 7:06 PM (GMT 0)
Robin and AK Angel, have you tried a walking in place video?  I have one that if you do it for 15 minutes it's like you walked one mile.  It's really very easy, too.  Robin, you would have to probably do it less than 15 minutes...until you were tired...but you might be able to build up to 15 minutes.  It would give you the benefit of walking without having to be out so long. 

 

I'm so sorry you are having all of these problems.  Life isn't fair but no one said it would be fair.  But, you make the most of a bad situation and you bless us so much.  Feel better, my friend!

 

Sherrine

Posted 11/19/2011 10:54 PM (GMT 0)
Thanks Sherrine...you are always there for all of us! You truly are a blessing, and I appreciate everything you do my friend.  yeah

Hugs, Robin :-)

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