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Fibromyalgia
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Posted 12/15/2011 1:09 AM (GMT 0)
Hi everyone,

I am still new to this just dx in Sept, but I have been doing alot of research and reading. It seems that alot of you are taking supplements or vitamins. Were any of you tested or did you just start taking them; and if so, which ones? How do you know if there are certain supplements that your body requires?

I have been thinking about talking to my dr about this. But reading alot of these post I notice some take Vitamin D and sor forth. Is this something common with fm?

I do drink ganoderma coffee and that has helped me with my stamina...but haven't taken any supplements. Any input would be appreciated.

Yellwdaisy rolleyes *****************************************************************************************

Fibromyalgia, Herniated Disc L3-L4, Migraines, Anxiety disorder, PTSD, Depression, Degenerative Arthritis, Tendonitis

Posted 12/15/2011 2:52 AM (GMT 0)
Hello yelledaisy,

I was diagnosed with Fibro a few months ago, but have been experiencing symptoms for years. The fatigue at one point got so bad that I had to drop out of uni, quit my job, and sleep 14 hours a day. My life was miserable. Then a rheumy had me checked for a vitamin D deficiency, and it turned out I was very deficient. After a few weeks of taking 1000iu a day, my energy levels where normal (for the first time in years) and I could concentrate like never before.

If it wasn't for vitimin D supplements, I'd still be out of school, depressed, and constantly lethargic. Now that I've been taking suppliments, my fatigue has improved drastically and I can function normally again.

Although I haven't noticed any change in my pain levels, and I still have many days where I am worn down, Vit. D definitely changed my life for the better.

I'd recommend that anyone with chronic fatigue try it out, you never know, it might help!
Posted 12/15/2011 5:07 AM (GMT 0)
Tara,

I think I will. Anything that helps is worth a shot.

Thanks.

Yellwdaisy

Posted 12/15/2011 6:11 AM (GMT 0)
I would start with 1000iuv a day. From what I've read, its near impossible to overdose on vit. D, so take as much as you think you need.
Posted 12/15/2011 12:27 PM (GMT 0)
I was very low in vitamin D and now take 5,500 IU a day...that includes the D in my calcium supplements and my multiple vitamin.  I did have a blood test for that.

 

I also take malic acid/magnesium supplements and that has helped me a lot, too.  There is a link in Fibro 101 all about them.  I didn't have any testing for these.  I just asked my doctor, he said I would be wasting my money but they wouldn't hurt me, so I tried them and he was wrong!

 

I do have a wonderful pharmacist that knows a lot about vitamins and herbs along with his background with medications.  I talk to him and he helps me, too.  He knows if an herb would interact with my medications.

 

Sherrine 

Posted 12/15/2011 12:45 PM (GMT 0)
I also take teh malic acid/ magnesium that Sherrine mentions. I do notice improvement in my pain and muscle fatigue with it. B/c of the extra magnesium, I also take calcium and vit D.
Posted 12/16/2011 7:45 AM (GMT 0)
my other post lists the ones I take ... here's a site that may help identify...otherwise I try stuff, then take a break to feel if my body misses it.

http://www.health-science-spirit.com/deficiency.html
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