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New Dx's...really bummed

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Posted 12/23/2011 10:11 PM (GMT 0)
I have been in excruiating pain in my joints.  When I followed up with the Rhuemy 2 weeks after being dx with FM, she now has added Psoriasis and Psoriatic Arthritis in almost every joint.  I can barely move around as it has been debilitating.  It is all over my hands, wrists, elbows, knees, ankles(horribly), toes, back, and neck.

She gave me a steriod shot and now I have to give my self shots in the stomach and get blood work every 2 weeks. 

I do not have family support and just really down.  Any encouraging words would be greatly appreciated.

Thank you kindly,

Christie 

Posted 12/23/2011 10:43 PM (GMT 0)
Oh, wow!  I'm sorry to hear this.  I did look it up and it seems that this can flare and then have periods of remission.  That's good.  I'm glad your doctor figured out what was going on.  It's better to know now then later when your joints could really be affected.  It sounds like you are getting good help and hopefully you can get this under control. 

 

Things like this can be mind-boggling but you just have to take one day at a time and not project yourself in the future.  No one knows what the future holds for them.  So focus on each day and hopefully you will go into a remission soon.  Listen to your doctor and judiciously take your medications to keep the inflammation in check. 

 

I have some arthritis from Crohn's disease, they think, and I can't take ibuprofen anymore so I am taking an all natural product called Curamin and it is helping me with inflammation.  Fish or krill oil helps, too.  I take krill oil and it helps with inflammation for me.  I started taking it before I had to stop ibuprofen and I noticed I didn't need as much ibuprofen as I did before taking krill oil.  So these are a couple of things that can help along with medications your doctor prescribes.  Be sure to ask about this before starting it. 

 

Here is the link about Curamin that I wrote a week or so ago.  Many people with arthritis get help from this.  Also google it yourself and see the information about it. 

 

https://www.healingwell.com/community/default.aspx?f=24&m=2285428

Try not to stress out over this.  That won't help you one bit and could cause more pain with your fibromyalgia.  Just take a day at a time and you will get things figured out. 

 

Sherrine

Posted 12/24/2011 12:08 AM (GMT 0)
Christie, I am sorry for your pain and added diagnoses. Heat helps my arthritis...as it does fibro. Soaking in the tub helps me, along with using the microwaveable moist heating pads. Unfortunately, winter is usually a tough time, so I try to keep myself busy doing things I enjoy to help distract the pain.

I do understand how it feels to be overwhelmed at times, but try not to let it keep me down...that only makes it worse. The days you feel you need a good cry...have one...it is a good release. Being on this forum I've learned how important an attitude of grattitude is. I try to count my blessings and do the one day at a time deal. You can only do what you can do, but never give up...there are good days ahead :)

Remember to take time for yourself each day to do something nice for yourself...you are worth it!!!

Hope you will find some relief :)

Hugs, Robin
Posted 12/24/2011 1:13 AM (GMT 0)
Hi Christie,

I agree with these guys, take it one day at a time and try not to project into the future. Stress only makes everything worse. I too am sorry that you got this dx, but as was posted above, better sooner than later. You will learn how to handle both. Just keep posting and letting us know how you are doing.

Take care,

Merry Christmas...

Hugs, Karen
Posted 12/24/2011 2:11 AM (GMT 0)
Well that stinks. I am sorry to hear this.
Posted 12/24/2011 10:29 AM (GMT 0)
I am just learning myself how to take one day at a time. I am working on not looking so much in the future of my illness. I have very short term memory loss and it use to scare me. I am sorry for your diagnosis. I have been seeing a therapist for my chronic illness. I know that has helped me. Glad you let us know so we can support you.
Posted 12/24/2011 1:08 PM (GMT 0)
That really does stink!! I remember before I was dx'd I hurt sooo bad I told the doc it felt like"systemic arthritis" and that kinda sounds like what you have (but more severe pain)

try to educate yourself, maybe some PT? Take your meds and pray, pace yourself...kinda like we do with fibro

Take care

maggie
Posted 12/24/2011 1:47 PM (GMT 0)
It is so bad now the doctor said no exercise...I was thinking I am barely moving around...not going to run out and do a couple of miles.

Thank you guys for your sweet support. You will never know how much I appreciate it! :-) I will be glad when I can cope as good as you! Still all too new... The small things mean so much....Church is being moved to 10:30am instead of 9am....I was so excited as the later in the morning the pain lessens...Thank you God for small blessings!


May God richly bless each and every one of you!
Posted 12/24/2011 2:19 PM (GMT 0)
Hang in there dear and a Merry Christmas to you and yours.

Maggie
Posted 12/24/2011 2:26 PM (GMT 0)
Maybe your doctor meant not to head to the gym!  Remember, you were probably in some shock when they were giving you the diagnosis.  You can't think straight in those situations.  It seems to me that you need to move.  The saying "If you don't use it, you lose it" is true.  I would do the stretching exercises on Fibro 101 and walk as much as you are comfortable doing.  You do want to stay mobile.  Check this out with your doctor though.  Hopefully, this will go into remission for you and maybe never rear it's ugly head again!  Stranger things have happened.

 

Just look at all your blessings and know we are here for you, too.  I have added you to my prayer list.  Have a wonderful Christmas with your loved ones and try not to worry about this.  Things do have a way of working out.  We are all very adaptable so you are too.

 

Sherrine

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