New Member

Just wanted to say Hey to everyone...I just joined today.  I have been looking for an active forum online with others that have fibromyalgia, and finally looks like I have found one   I am newly diagnosed with fibromyalgia, and still somewhat in denial I think...matter-a-fact I just went to a new dr. this morning.  Sadly, I didn't like him at all...he didn't even listen to me, just gave me a new inhaler for my asthma that never even bothers me and sent me on my way.  I wanted him to give me something for this horrible pain I am in.  It seems like nobody will even listen to me.  Or like they think I am making this up.  I know I may sound crazy to some people, but its very real to me.  I really do hurt ALL the time.  Mostly the pain is in my outer thighs, my buttocks??? and my lower back.  I took Lyrica for a month, and cannot afford it.  So, I changed dr.s thinking this dr. today would prescribe something cheaper, and goodness he just blew me off when I mentioned fibromyalgia...I don't have insurance and don't know what to do now.  I thought about herbal remedies, but just don't know what to try...any suggestions?  l also have depression, anxiety, panick attacks, ibs, hypertension,fatigue during day and awful insomnia, but seems like I could deal with all that if I just didn't hurt so bad.  I miss doing things that I used to do.

Thanks for any info you can give me!

Hi Jule,

I also would like to welcome you to the fibromyalgia forum. You will find validation here. I am sorry for what you are going through. You might have to find a pain management doctor. It really helps. But like ak angel said, there are natural rememdies that just might help you. Many of us take malic acid with magnesium in it. It does help with energy and pain. The magnesium really helps with muscles. My girlfriend also takes collogen and flax oil. That helps the muscles too.

There is a thread called "fibro 101". It is the second thread on the forum. It talks about the malic acid in it. It is a very good thread with a lot of information on it. If you get a chance to read it, please do.

Ginko biloba helps a lot with fibro fog. It helps the memory. But it takes a month or so to start working. There are other supplements that can help you. There are also cheaper medications than lyrica too. Often doctors will give you samples of certain meds to help you with insurance costs. Not controlled meds though. I hope that you find a good doctor and that you can get some help with prescriptions. There is a site, I think it is called "needymeds.com". It can help you with prescription costs. I will check to make sure that is the site.

I sure do hope that you feel better soon. Grief is a symptom of fibromyalgia that we go through. Not being able to cope with the thought of not being able to do what we use to. Stress plays a huge roll in fibromyalgia, your pain and fatigue. Take it one day at a time. And if you get another doctor, make sure he believes in fibromyalgia. I consider myself lucky to have a good doctor that listens to me. It is hard sometimes, but you got to look at it as you are paying for thier service. You want to be satisfied after your visit.

Take care, keep posting.

Glad you found us!!!

Hugs, Karen

Hi, Julesbern, and welcome!  I'm so glad you found us and joined in.  It sounds like your new doctor is still in the Dark Ages when it comes to fibro.  They didn't want to discuss it because they probably don't know much about it or don't believe it exists!  Yes, there are doctors like that out there in spite of the fact that fibro is recognized by the American Medical Association, the American College of Rheumatology, the National Institutes of Health, and the World Health Organization...just to name a few. 

 

You need a doctor the treats fibro patients.  A rheumatologist does....but, still, make sure they treat fibro patients.  There are still some that don't believe in this illness.  If you are getting a general practioner, try to get a board certified Internist.  They have more education than a general practioner and any insurance I have been on did consider them a primary care physician.

 

I use malic acid/magnesium supplements, vitamin D3 supplements, and an alternative product called Curamin.  I also use ibuprofen with food and extra strength Tylenol.  I do keep moving and do daily stretching exercises and I walk or swim daily.  Yoga is another good gentle exercise for fibromyalgia.  If you sit or lay too much, you will be stiff as a board.

 

Be sure to read Fibro 101...the second thread on the forum.  There are links to good info about fibro and you will learn a lot there.  Good starting links are called Symptoms, What Else Could It Be, and A Thorough Explanation of Fibromyalgia.  There are also links about malic acid/magnesium supplements and vitamin D3 supplements and how they work in your body. 

 

I'm looking forward to getting to know you better.  Don't hesitate to ask questions because we are here to help you.  Hope to hear more from you soon.

 

Sherrine

It is natural to grieve. We just can't understand why we can't do what we use to. But you will get this straightened out and you will learn what you are up against. Keep posting and know that we all care.

Hugs, Karen