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Fibromyalgia
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Posted 5/13/2012 6:37 AM (GMT 0)
Well I'll start from the beginning. Im 20, female. From as far as i can remember i have been getting severe pain, usually in my legs, as the temperature and pressure change (normally with the rain). Im slso very sensitive to cold and things that shouldnt hurt do. Everything bruises me, and every scratch becomes a scar. Last year I was diagnosed with vulvar vestibulitus, and my brother was diagnosed with Mitral valve prolapse and the doctor heavily suggested I get checked too (which I have yet to do). That's a little background.
about 4-5 months ago I began feeling aches all over my body, but they went away after about 2 weeks so I dropped it. Then about 2 months ago they came back and have stayed. The easiest way to describe it is my whole body just feels heavy. Like something Is pulling me down, and I am constantly aware of my entire body, if that makes sense. It is especially bad by my elbows, forearms, neck, shoulders, back and thighs. (so everywhere basically) but its began getting worse. I've started getting burning sensations in my arms and neck, but it feels as though it is burning from the inside out. My arms and hands have also been getting tingly. My mood has changed drastically, and ive been slipping in to a mild depression. I have add so the concentration and memory loss has always been there so who knows on that. My question is though, I read these posts and people describe the pain as unbearable, but, while mine hurts, is not near as painful as described. Is it something that gets worse with time? Does it eve sound like fibro? I should mention my brother (23) has all the same symptoms as well as some extra, and my great aunt has been diagnosed with fibro.
Sorry for the long post, I just want to know what is happening to me.

Post Edited (Ashcrowz) : 5/13/2012 12:52:54 AM (GMT-6)

Posted 5/13/2012 11:52 AM (GMT 0)
Hi Ashcrowz,

Welcome to the fibromyalgia forum. It sounds very much like you could have fibromyalgia. But you need to get a doctor diagnosis. Basically they have to rule everything else out with blood tests and xrays. The shoulder and neck pain sounds very familiar. I get that all the time. The burning sensation too.

Check out the thread called "fibro 101". You may even see yourself there. It is the second thread on the forum. It is a sticky thread so it will always remain there for you. It has a ton of information in it.

If your aunt has fibromyalgia, it could very well run in your family. I think my mom had it, but that was so many years ago. It probably wasn't even thought about then. She suffered with depression, bipolar and arthritis as well. I remember her always having constant pain and fatigue.

I hope that you get a diagnosis soon so that you know just what you are up against. There are many suggestions here to make things easier for yourself. My main one is to take life one day at a time. Because you never know how you are going to feel from one day to the next.

Good luck with getting a dx.

Hugs, Karen
Posted 5/13/2012 12:26 PM (GMT 0)
Hi, Ashcrowz, and welcome!  I'm so glad you found us and joined the family.  Many of the things you mentioned can happen with fibro.  Also, everyone's pain is different so you can't go by what other people say.  But the pains in all four quandrants of the body happen with fibro, the burning skin, the cognitive memory loss, etc. 

 

As Karen suggested, please read Fibro 101...the second thread on the forum.  There is a link called Symptoms and I think you will see a lot of what you are telling us on that list!  Other good links to start out with are called What Else Could It Be, and A Thorough Explanation of Fibromyalgia.

 

What I would suggest is that you find a good rheumatologist that treats fibromyalgia patients.  I always look for board certified doctors and, if they are diplomates, that's a plus.  Ask first before making the appointment if they treat fibro patients.  There are still doctors out there that are in the Dark Ages about this illness.  The rheumatologist will rule out the other illnesses it possibly could be, also.  So I personally think that would be a good choice to see.

 

Please let us know what you do.  There is help available and you don't have to suffer in silence.  We are here for you too. 

 

I'm looking forward to getting to know you better.  Don't hesitate to ask questions because we are here to help  you.  Hope to hear more from you soon.

 

Sherrine

Posted 5/13/2012 11:13 PM (GMT 0)
Hi there, Ashcrowz. I sure feel for you, having these unpleasant symptoms so young. Believe me, your post was not long, and even if it were, that's what we're here for - to help you! There is an unbelievable amount of support in this forum, so I hope you'll stick around.

As far as whether fibro gets worse, you know, it's hard for some of us oldsters, who have had it for decades, to say anymore - because we don't know how much is the fibro bearing down and how much is normal aging. (But my parents did run circles around me most of their lives, so the fact is, I was never the peppiest kid on the block.)  They do say that fibro in and of itself doesn't cause any actual damage; but year upon year of a lack of exercise and too many meds can surely contribute to it. It seems we are continually weighing the pros and cons of this or that action, this or that treatment.  

But you may not even have it - good luck figuring it all out.  As Sherrine said, a really good doctor is so important...mine (who diagnosed me years ago) is actually an allergist/internist, not a rheumatologist, but I know that's the way people usually go.  In any case, keep us posted! 

Debbie

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