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Posted 5/23/2012 12:49 PM (GMT 0)
Hi all,

I've been having difficulty breathing through my lungs since I was in a car accident 30 years ago. I bent the steering wheel like a pretzel with my throat area and my diaphram. I wasn't wearing a seat belt.

I've also been exposed to a great deal of unhealthy chemicals through the years. What I was wondering is if I should look into seeing a doctor about whether I have pulmonary fibrosis and or gullian-barre syndrome? Has anyone heard of these? There's not much you can do to help them. Maybe I don't want to know and why should I go through all the testing if there is not much that can be done? I just know I haven't been capable of taking a deep breath for many years.

I think I also have peripheral nerve damage which can cause pain, numbness, tingling, muscle weakness, burning and loss of feeling. Is this something I can ignore and just except? I've had this for many years too.

Maybe these sensations could be just part of fibromyalgia? I was diagnosed with fibro many years ago.

I at last found some one special in my middle age years who is excepting of my fibro with its limitations. I'm hoping we'll be marrying soon. But my concern is if he learns there's more serious conditions going on with his future wife I don't think he would marry me.

What do you think?

Thanks. 

 

Posted 5/23/2012 2:28 PM (GMT 0)
Answer seeker, I think that you should see a pulmonologist and have lung function testing done. You should not ignore your condition...there might be a treatment available to you to help with your breathing.

I believe that a person who loves another accepts that person with all their health problems, stands by to help in any way they can.

I'm sorry that you are going through this, but I think you need to be as proactive about your health as you can. Ignoring the problem could cause it to only get worse.


The testing is time consuming but very informative...I have it done every six months for pulmonary hypertension.

Wishing you the very best.

Hugs, Robin

PS....about the peripheral neuropathy, see a neurologist. It is never a good idea to just ignore health problems. yeah

Posted 5/23/2012 4:44 PM (GMT 0)
Amswer Seeker,

I agree wholeheartedly with Robin. Sometimes, what you imagine is way worse than the reality.

My mother had Pulmonary Fibrosis. I think it must be fairly unusual, because in the nursing home, the nurses and aides didn't ever seem to have heard of it or know that she didn't have to keep her oxygen turned down...they always assumed she had COPD. I would be glad to tell you anything I can about our experience, if you'd like. As far as testing, I should remember better, but I think she did have a biopsy taken and of course, lung function tests.

That said, if you've never had your lungs tested, they may actually be fine. I often feel that I can't take a deep breath either, and yet I always test as completely normal. Fibro can make us feel MANY strange sensations!

Hugs, Debbie
Posted 5/23/2012 8:32 PM (GMT 0)
While I'm not familiar with either of those two lung issues, seems like a good idea to have it checked out.  As for the PN, there are many different forms of it, and treatments.  Would be good to get that checked out too.

If your friend wouldn't marry you if you did have confirmed issues now, what would he do a few years in the future and something happened?  Sure you want to deal with him? That could be a deal maker or breaker for me.

Posted 5/23/2012 8:42 PM (GMT 0)
I agree with the excellent advice from everyone.  Please get checked out.  It's better to be safe than sorry. 

 

Sherrine

Posted 5/23/2012 9:24 PM (GMT 0)
Welcome to the fibro forum. I am not for extenstive test, but If you think you might have one of these diagnoses, please get it checked out. Once they get in a certain stage then it's hard to recover from them. I have seen people left with 24 care if they live through it. Fibro doesn't mimic these diseases. SOB is something you need to look into if it continues. I know the fibro symptoms can get so annoying at times. It's hard to distinguish from a real like threating symptom to something that can be monitored closely. My thought if it doesn't go away in a week or so I will let my Dr. Know the next time I see him. Most all times it goes away and the magic to that is refocus your mind on something healthy.
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