So I went to the rheumy doc and asked him if he still thought I had fibro...he said "I don't THINK you have fibromyalgia, I KNOW you have fibromyalgia"!
Guess I was hoping he was mistaken...This thing is far from under control, I barely slept last night but slept 11 hours the night before. Yesterday, I vacumed, made some BBQ shredded chicken (for a dish I'm bringing to a party next weekend), took a nap and did not do much more than that. Today I feel like I ran a marathon and am hobbleing around on sore feet and ankles that don't seem to want to bend. Maybe I ran that olympic event called speed walking (power walking?) in my sleep, lol
Fibro is quite common in those with hep C (about 70%) and even though I am now in remission (YAY!) I still have stage 4 liver disease and the fibro it seems is here to stay. Many of the symptoms for liver disease, hep C and Hep C treatment side effects overlap. With my funky liver it is not feasable to take anything for pain or for sleeping. The only thing I know of that is safe to take is oxycontin and maybe marijuana. Oxy makes me tummy sick but my liver doc is ok with me getting a medical marijuna card as long as we are not talking transplant (it's legal here in Oregon). Occasionaly if the pain is unbearable or I know I'm going to be especially active I'll take some aleve.
I go to gentle theraputic yoga classes 1x/week and starting in sept I will go to warm water aroebics classes at least 2x/week. Walking is very difficult but I try, I like the farmers markets, tending my small garden and I push myself to be socially active. It keeps me connected. Depression is off and on depending on my pain/fatigue.
I read alot here about managing pain, fatigue & mental health and Rx's seem to be the norm. My quality of life pretty much sucks and I don't see it getting any better. I feel like no matter how much I work to make myself healthy I am but a passenger just along for the ride...
ok, time for some food, a warm bath and chillaxing on the couch. Football & Nascar are on the agenda as well!
Thanks for listening,
Donna