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Forum Newbie- Pain vs. Neurologic Issues?

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Posted 10/7/2012 3:50 AM (GMT 0)
Hi everyone!  I'm new here.  I've read Fibro 101 and many other sites over the past 2 years since I had my first major flare and received my FMS diagnosis.  Pain used to be an issue.  I had a deep ache in my back and leg.  I've had a very  few days of flu-like aches.  That's it.  My predominant symptoms are parasthesias with a left side dominance.  My legs sometimes feel like they are sitting under a heat lamp.  With this last flare (I'm in week 3) I have had tingling and reduced sensation along the left half of my body.  I also have tingling and reduced sensation that crawls up my face and enters my mouth.  I feel like I am wearing a full body weighted suit.  I am often very weak.  The intensity of the symptoms fluctuate throughout the day, but do not fully disappear.  I'm wondering if anyone else has been diagnosed with FMS with pain being only a minor concern.  I have many symptoms of FMS, but they could also be MS. All of my bloodwork is coming out normal except for a slightly elevated CRP.  I've had nerve studies, MRIs, and CTs that are all normal.  I have not had a spinal tap or EEG.   I'm headed back to the neruologist this week but just wanted to see what others have to say. 

As I'm typing this I'm realizing I'm not very coherant.  I'm in a fog.  Time for bed!  I'll check back in the morning! :-)

Posted 10/7/2012 6:21 AM (GMT 0)
Welcome, Tchrmom. You actually sound quite coherent to me! :) I'm glad you found your way here.

I'm also glad that you're getting a thorough analysis of your symptoms. What you're describing would certainly have me scratching my head. I do have the numbness and tingling to a certain extent, which I now know is due to degenerative disc disease. Or so they're telling me - I had spine surgery 7 months ago, and the pain is better, but the numbness isn't, really.

But pain has always been a biggie in my bag of problems. When I'm in pain, the numbness kicks into higher gear, too.

It sounds like as though yours is more widespread. I'm sure somebody will come along soon who can relate more. The forum is quieter on weekends, though, so don't be discouraged if it takes a little longer.

Debbie
Posted 10/7/2012 9:46 AM (GMT 0)
Hi tchrmom,

Sorry to hear about what you're going through. I've had several tests done also over the years for my pain and nerve damage. My nerve damage is so extensive my body slowly went numb.

What's helped me deal with the pain is seeing a chiropractor. If you decide to do so make sure he or she is knowledgeable about fibro. I would suggest you talk to them over the phone then go in for a free consultation.

Good luck to you.
Posted 10/7/2012 7:14 PM (GMT 0)
Welcome!  I, too, and glad you are getting checked out.  Fibro usually is in all four quantrants of the body...not just one side.  It sure is worth looking into. 

 

You might want to go back and read A Thorough Explanation of Fibromyalgia in Fibro 101.  This gives and excellent description of fibromyalgia.

 

Do let us know what you find out.  I hope you get some relief soon.

 

Sherrine

Posted 10/7/2012 10:28 PM (GMT 0)
I sometimes only get some loss of feeling and an odd pins and needles sensation, and other times pain.
Have had MRIs checking for MS and other diseases, but nothing specific--possibly cerebral palsy, which really surprised me. I pass all the nerve-conduction tests.
However, the tests were a while ago, and I seem to have hit a new bout of problems, so will probably be tested again. I will let you know what I find out, and your symptoms sound quite a lot like mine.

Best wishes!
Posted 10/8/2012 12:29 AM (GMT 0)
Thanks everyone!
Posted 10/8/2012 3:23 AM (GMT 0)
Did the doctor do an ANA test?
Posted 10/8/2012 7:08 AM (GMT 0)
I too get the heat sensations you mentioned and others, although i am also trying to figure whether this is neur/fibro. My mom is a fibrobite too. She is constant pain. Needs meds to get out of bed; however she also mentions alot of the neuro-like symptoms. I am only 37. I do not have the dibilitating joint pain. The neck, back, shoulders, hips, knees. But I have alot of symptoms that seem neurological and the rheumy calld those text book fibro. I will still pursue the neurologist, but at this point I am hoping it is just the fibro. It attacks us and takes its toll on us, but it doesnt kill us or leave us physically damaged and destroyed. shakehead
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