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Posted 10/16/2012 10:27 AM (GMT 0)
wow, after reading the topics on this forum, I don't feel"crazy" talking about my symptoms. A year and a half ago I got injured at work, I hurt my left shoulder and developed "Long Thoracic palsy" with some nerve damage up my C column. I progressively got worse over the course of 6 months from injury, weekly appts at my doctor's office complaining about "new" symptoms. I have done aggressive physio, have been on a variety of meds, and have really not worked since my initial injury. ( Professionals all said I would be back to work in 6 weeks)
Following my injury, my left hip started to be sore, burning, and very stiff . My fingers and toes would go numb, I would get piercing headaches and "tired muscles". The most recent is extremely sore feet, to the degree that I cannot walk or stand without caution and lots of time.
I suffer from severe tiredness,short term memory problems, mostly I think from the pain as it has never been controlled. I am in the process of seeing more "experts", they are sending me to Halifax to see a specialists there, as my family Doctor refuses to acknowledge Fibromyalgia as a diagnoses. I feel like I have been in a fog for so long and I am really getting tired of trying to figure things out.If anything it is reassuring to read this forum and feel like I am not "crazy" as most have deemed me to be. If anyone can give me more direction on what I can do to alleviate my symptoms, I would be ever so grateful ....Thank You
Posted 10/16/2012 10:51 AM (GMT 0)
turn  Welcome! You're not crazy, just in pain! The first entry in Fibro Forum is Fibro 101 - chock full of info and helpful links and suggestions. First thing is to find a doctor who is up to date on Fibromyalgia and is willing to consider it along side of checking out all your symptoms from injury...Fibro can start with an injury or be in addition to it. If they are sending you to specialists, tell them you want to see a Rheumatologist while you're at it. There are serious conditions that can mimic Fibro and the Rheumy is the one to see! For pain, Magnesium if it is ok with doc and gentle but consistant exercise is a must. Pace yourself, stick to a written plan and make sure your pain is being adequately controlled or it will all snowball on you. Most importnt is to keep a positive attitude so depression from the pain won't be nipping at your heels! Stop by here often as you will learn lots of good tips from your new Fibro Family.  Again, welcome!
Posted 10/16/2012 11:00 AM (GMT 0)
oh, and I forgot to mention getting a good nights sleep...why am I awake and posting at this hour??? I'm going to pay tomorrow!
Posted 10/16/2012 11:04 AM (GMT 0)
HI tonton,

Welcome to the fibromyalgia forum. As mermaiden said, fibro 101 is a wonderful thread full of tons of information.

I wish you luck with finding a doctor, I agree a rheumy might be the way to go. I am sorry your family doctor doesn't agree it is fibro.

Keep posting, you have come to a great forum where the members are so wonderful.

Take care and have a good day...

Hugs, Karen
Posted 10/16/2012 11:21 AM (GMT 0)
tonton: Yes, it does sound familiar. I can especially relate to the stiff hip (though I think it's more my upper leg, but not sure), numbness, and difficulty walking or even standing. My feet lately are super sensitive, making it hard to even walk around long in the house or do dishes. It's like the nerves are only partially working--or alternating overworking with not working at all. I will check back with my doctor today as I haven't been as 'bad' as this for 9 years.
Posted 10/16/2012 2:03 PM (GMT 0)
Hi, Tonton, and welcome!  I see you have already been directed to Fibro 101.  It's important to read since you have to be your own advocate with this illness.  You have already found out that there are still doctors in the Dark Ages when it comes to fibro.  Be sure whatever doctor you see treats fibro patients.  Most here see rheumatologists but still make sure that doctor treats fibro patients because there are still a few out there that don't. 

 

The doctor should run a myriad of tests to rule out other illnesses that have the same symptoms as fibro.  They have to do this because there is no real test for fibro except a tenderpoint test. 

 

I use malic acid/magnesium supplements and also vitamin D3 supplements to help with pain and fatigue.  I take ibuprofen and Tylenol too.  I also have one prescription for a muscle relaxer that has helped me quite a bit.  Gentle massages help, too.  You do need to keep moving so I walk daily and do gentle stretching exercises that help.  Above all, pace yourself when doing things.  It all gets done but in a different time frame.

 

I'm looking forward to getting to know you better.  Don't hesitate to ask questions because we are here to help you.  Hope to hear more from you soon.

 

Sherrine

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