I am so frustrated right now I could just scream.
I have been having alternating good days and bad days with the nerve
pain from my spine and the fibro. Last
week I finally had some decent sleep and have not felt like I was a survivor of
a Mack truck accident. Still having the
severe spasms in my hands and the nerve pain in the arms which really hasn’t been
identified because none of the doctors can agree on what the cause is. Is it from the 4 slipping discs in my neck, 2
of which now are touching the spinal cord, the pinched nerve at C7, or the bone
spurs? Or is it from the other opinions that the pain stems from the evidence
of EMGs showing nerve damage in both of my arms?
Recently my
bicep on my right arm has swollen up again so that I look like Popeye, but ALL
doctors seem to ignore this as if it is normal.
It took 4 months from the last time it swelled up to be able to open a
door without horrible pain. When I mean all I mean neurosurgeon, neurologist,
orthopedist, thoracic surgeon, rheumatologist and primary physician; they all
shrug their shoulders and say, “Yes, it’s not normal” but not a single one can
tell me what it is. Neuro told me on
last visit that I just need to accept my lot in life and live with the
pain. He said it couldn’t be all that
bad since I didn’t use opiates. Anyone who touches me, i.e. the acupuncturist, massage therapist and physical therapist all comment on how swollen and inflammed my muscles are and they all have witnessed spasms and twitching of the muscles under their hands. They SEE the issue yet the doctors do not for some reason.
Today was my
visit to the rheumatologist and I asked him about it after showing it to him
and asked if he could recommend someone to look at me for a second opinion on
what is going on. He asked if I
exercised, told him yes, I had increased it but still it hurt. He told me that I needed to learn to push
through the pain if I wanted to get better.
I tried reminding him of all the spine issues and the benign muscle fasciculations
and he just told me I had to stop making excuses. I AM LIVID!
I do not sit around and whine, I live my life and do things that I can
without setting my pain off. Have any of
you come across these types of attitudes and how do you handle it?
ARGH!!!!!