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new memeber talking about fibro finally...

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Posted 5/30/2013 7:11 AM (GMT 0)
hi everyone..i have just joined and am delighted and sorry at the same time to find so many sufferers like me.. I at the age of 12 had painful cramps in stomach and was put on the pill to help,,,no it didn't,,lots of problems followed on over the years, and I was always one of those,,,cant find anything wrong cases..So I thought it must be in my mind,,must be a bit crazy,,,but I was sure that all this pain was real..Kept plodding along working then taking large amount of ibrouphen to get thru a 4 hr shift and I thought ,,,nahhhh,,,this is not good...even went to a pain clinic and the bloke said,,mmm,u r the only person I see that actually is worse for seeing me,,,ok,,bye bye not spending any more money on that then lol...then I was to a physio who suggested I had something more going on and sent a letter to my GP suggesting I see someone..ok off I went in nov 2011 at the age at 46 I finally got an answer,,,,u have FIBRO,,,well omg can u imangine the tears of joy,,,u mean to say im NOT crazy, IM not a hyprecondriac,,,far out I was esstatic....last yr in june had chronic dirrarea for 3 mths , went from 66kgs to 53kgs while tests tests and more tests and colonoscopys and such were carried out,,,then finally,,,,graves disease ,,,hyperthyroidism,,still trying to get meds right for that...went to doc today full bloods again,,,testing for lymes and lots of other things,,been in a really bad flare up for the last week, never been this constant. maybe the cold weather,,,doc gave me lyrica to try...had a 75mg tablets before bed  last night along with Cymbalta which ive been on for a while, went to bed about 1 am,,,then up at 3am with a vomiting child after getting back to bed about 4am ,,omg I slept till midday,,,i have never ever slept that long in my life...don't know if its lyrica but,,,it was awesome...anyway just wanted to introduce myself to this wonderful site and talk freely about this as I have never talked about it,,,hardly even with my hubby,,,cause although he tries he don't understand he doesn't have it so he cant know what we go thru,,,and I don't want to be a whinging wife, mother, friend...so ty ty ty for listening,,,36 yrs its taken for me to vent properly....
Posted 5/30/2013 7:51 AM (GMT 0)
Glad lyrica helped you sleep. It's hard for family to understand this illness, but most try and never fully understand.
The best example is to have him place five clothespins on the tips of each finger and keep it there for 5 minutes. Most people can't tolerate even for a minute. Then explain that pain is what you feel all over every stinking day.


PS. I had a little trouble following your writing. Can you add some spaces and periods in there next time? It helps my poor mind keep up and not get lost.
Posted 5/30/2013 6:46 PM (GMT 0)
Hi, Kezz, and welcome!  Well, you sound like so many of us.  Most went many years and many diagnosis' before we got the correct diagnosis....fibromyalgia.  When I was diagnosed it was called fibrositis and no one had ever heard of it either.  It's almost impossible to explain this illness to those who haven't experienced it  They just can't understand most usually so I don't bother either. 

 

My husband helped me around the house with some chores and I was thankful for that.  He saw me struggling but I still didn't talk about it.  It's frustrating to those who love us and want to help because there isn't a lot they can do.  Men, especially.  They want to "fix" things and we can't be fixed.  But we can have a full and enjoyable life in spite of this illness.  I know because I have!

 

Be sure to read Fibro 101...the first thread on the forum.  There are links to good info about fibro and you will learn a lot there.  Good starting links are Symptoms and A Thorough Explanation of Fibromyalgia.  All the links are good so do check them out.  You just might see yourself there.

 

By the way, I do agree with Joy.  It's very difficult to follow a post that doesn't have paragraphs, etc.  I easily get lost in the middle and have to go back and search for where I did get lost.  You get more responses this way, too, with paragraphs.  The easier it is to read, the more members will take the time to read it.  Trust me, you get me yakking and I can go on and on and on.  If I finish and see that the paragraph is huge, I will find a good spot/spots to separate it.  Otherwise, the members probably wouldn't bother reading it.   smilewinkgrin  

 

I'm looking forward to getting to know you better.  Don't hesitate to ask questions because we are here to help you.  Hope to hear more from you soon.

 

Sherrine

Posted 5/30/2013 6:50 PM (GMT 0)
Welcome kezzbb to the fibro forum! I know how you feel about feeling validated. Many of us here have been down that road wondering when somebody is going to believe us. Now you can start understanding this diagnosis better. You have found a great place to learn how to manage your fibro better.

I started reading post daily and getting some ideas on how to approach my fibro better. You will see many of us have similiar treatments too. We are all different in how we respond to meds and treatments, so keep that in mind. It's a defiantly a trial and error treatment sometimes. I have learned over the years to keep it simple. Many fibromites are very senstive to meds, so the side effects to meds can be not pleasant. Always ask your Dr. before starting anything new. Something simple as a vitamin can cause problems in us.

I read a good book on fibro and it's good to share it itch your husband. I was amazed how I could see myself on each page. My Dr's have never shared all this info I read in my book. I am glad you found us and hope to see you around the forum.
Posted 5/30/2013 10:09 PM (GMT 0)
Hi Kezzbb,

It really does feel good to have someone validate what you're going through, doesn't it? When I was searching for a good doctor, I had one tell me I should have my hubby take me out for Mexican food (the spices would clear my sinuses and then I'd be able to think better.) He was serious. Talk about mad!!

I believe Lyrica is very similar to Gabapentin, which I'm taking. It really helps with my pain. Hopefully, it will keep helping you...

Keep posting! We do care. :)

Debbie
Posted 6/3/2013 8:53 AM (GMT 0)
thank you all for the replies and the tips in writing. Will probably take a while to get it right.

Thnx again xx

Posted 6/3/2013 10:06 PM (GMT 0)
You'll get the hang of it. I discovered putting two spaces between paragraphs really helped...and it helped when I had to read my own posts for some reason.

Anyway, I'm so glad you are here. We do have wonderful members who love to help one another and, as a bonus, we really do care about one another, too. I think you will like it here.

Sherrine
Posted 6/7/2013 2:47 PM (GMT 0)
Hi kezzbb,

Wow, you've been through a lot (I have too, but nowhere near as much as you, nor for as long - I'm only 18 and I already have a diagnosis). I understand the pain and the fatigue... and the way people misunderstand the condition. When I first got my diagnosis of fibromyalgia, my mother told a lot of people about it and I told a few people too - wow, I wish we hadn't. As soon as people know the name of the condition, most of them think things like "hypochondria", "lazy liar" and "crazy". The few people that didn't see it in one of those ways are the ones who are still my friends. All I'm saying is what I WISH someone had told me upfront: be careful who you tell. When possible, simply say that you have a chronic illness without specifying what it is. People are a lot more understanding of this.

But of course the one place you can be free and understood is here on this forum! That's why I'm already addicted to it after only a couple days since joining up.

Glad that lyrica may be helping you.

Hope to hear from you again soon
Posted 6/7/2013 3:46 PM (GMT 0)
Hello Kezz :) Welcome.

I have had Fibro for 26 years. Got it at 22yo, and had it for about 22 years (until the age of 44) until it was finally diagnosed. It was certainly nice to finally put a label on it.
about a year later, I started on my whole back to fitness journey, and after 1-2 years (for the last couple) I've been living a new life, in an all new body. Fibro 95% reduced, severe IBS, gone.

Peace,
Fish
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