rant

Yesterday, I said "Man, I am tired" (this being after being up till about midnight night before, having very restless sleep,getting up at 6am working till 1:30 then coming home to have to travel to get parts to fix my vehicle....)
and I wasn't really saying it to dear hubby just complaining outloud...and hubby says "surprise me, when aren't you tired"....it hit a nerve...I cant help that I am always tired,I even asked my family doctor AND my rheumy for something to help this horrible fatigue. all they gave me was amnitriptyline....25mg daily....it doesn't work even at the 50mg they had suggested then took away....and put it back to 25mg

I still have to function, go to work, be a Mom,clean entire house on days off cause I'm to tired after working, you know do all the things 'normal' people do, and sorry but it makes me tired. sheesh sorry I have fibro and RA and its inconveniencing you dear hubby....

anyway I am sure many people here have felt as annoyed and hurt really as I did/do from some healthy peoples comments. Sorry to bug you with my rant   but thanks again for understanding and listening

I totally know how you feel. The frustration of people expecting you to have boundless energy and resilience, even though you've told them you're sick.

It took 2 and a half years for my family to finally understand that I can't help being tired and in pain. But maybe that's just because of the new research that I make sure to tell them about. There is finally starting to be recognition of the physical reality and nature of fibromyalgia, so things are getting better. Actually, I think what convinced them my pain was real was that when I got painkillers in the hospital, almost all my pain was gone!! :) So if a medicine can cure it, it's real, huh? Okay, then...

Good luck, TayIsa. I know what you mean - it seems even the people who are kind and try to give you the benefit of the doubt don't really understand. Those blank looks hurt, don't they? Especially when it's from someone you expected more from....

I hope you can take something that works for your fatigue. I'm fighting that today, too. Been up a whole 2 hours and wish I could flop back down. Some days are just like that.

Do you have any help with cleaning the house? I finally got to the point where I figured if someone (hubby) wanted something clean, he could do it himself, a whole lot easier than I could. It's not that I don't do what I can, but I'm not going to ruin my body over it. Been there, done that! Of course, my kids are older and pretty much gone, so there aren't the same safety issues that you're probably dealing with.

Debbie

It still stings everytime doesn't it Taylsa!! I interpret those comments as calling me a 'liar' myself (and that has been said flat out before too)

When I make myself participate in extra family functions - you know, take additional pain med ahead of time,
plaster my body with Lidocaine patches & put myself in robot mode just so I can take the next step -despite all that effort & pain, it comes back & bites me in the you know what

Because later my family SAYS "well you did such & such last month"
And
"It did you good to get some exercise !"

I just wanna roll my eyes & ask why no one noticed
I spent days in bed
Ice packs on knees (they do know I hate ice!! I usually have a bed buddy somewhere on my body as well as electric heating pad behind my back)

They did not seem to notice that My dirty dishes & laundry pile way up
And that I am just miserable with more pain.

They just never seem to add it all up. So, though years ago I stopped voicing how I really feel for reasons you all know.. I do now Occasionally throw out something like 'my knees are still hurting' 3-4 days after the outing.

My personal life is different from yours as I am in my 60's, single & can no longer 'work' . My kids are grown. As a single mom myself I know the responsibilities that go with being a parent & am grateful my children were on their own when I was injured .

I do not know how you do it !!

Many of us understand how difficult it is to even shower some days. Much less work, be mom & wife.
Come rant again when you need. Glad you are here!

Blessings

Thanks everyone for such AWESOME support!! It truly is wonderful that even though we are all strangers someone out there gets it!
My hubby does/did sometimes get it but lately its like he thinks i am just looking for sympathy and its not real. He actually told me once to suck it up. But thats another matter....lol.
My kids are 10 and 7 (the two that live with us, my stepsons live with their Mom and only visit well...very rarely and are 19 and 20 hence the rare visits) My two biological sons are very helpful, and bend over backwards most days to help out when needed. I am truly lucky that way. I just end up feeling guilty that I cannot do things, or when they say I want to sit with you but dont want to hurt you. I immediately respond with SIT WITH ME! IT makes me feel better!! I LOVE snuggling with them and want it now before I get the Mom I'm too old ! so there are ups and downs with family life and I get that. Hubby just ticked me off and hurt my feelings.
Sad when strangers seem to be more caring than your family/support system do. Know that I really appreciate all your posts and inputs, and care and understand somewhat how you are all feeling too. Thanks for letting me ramble on and rant here. :)
on a happier note I get to go on my youngest sons school trip tomorrow, and then my oldest next Monday. They will both be long tiring days but sooo worth it for the huge smiles,and appreciation that I get to go. They are so excited!! and to tell you the truth I am excited because they want me to go and they are making me excited :) Take care. ((gentle hugs))

thanks for your post applevenus it is appreciated. Hope you are having a good day :)

ya DianeB I do think you are right! if only the guys (who fall in that category) would see how much we really do suck up before we just cant do it anymore and need a little help.
I guess only in a perfect world....
Thanks so much for your reply hope you have a fantastic day!