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Newbie here ~ Fibro and hot flashes?

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Posted 7/30/2013 10:53 PM (GMT 0)
Hi all:

I am new here. I have noticed that beyond menopausal hot flashes, which for the most part have subsided; I get something akin to a hot flash whenever my fibromyalgia pain flares up. Anyone else have this experience? Any thoughts about how to handle that - something herbal or natural?

Sucappy, I added "newbie" to your subject line, so people will know to greet you. 

Debbie

Post Edited By Moderator (Acheybody) : 8/4/2013 8:50:07 PM (GMT-6)

Posted 7/30/2013 11:41 PM (GMT 0)
Hi sucappy, welcome to the forum!

I used to get terrible hot flashes for the first year I had fibromyalgia. I knew something strange was going on because there's no way I could be menopausal at my age (I was 16-17 at the time). I really don't know what's happening with my body now... I no longer get hot flashes but then I have only had one period in the last 2 years since the hot flashes ended (I'm almost 19 now). I am a little concerned that I may not be able to have kids. I actually still look like a 12-year-old. People keep telling me that I'll appreciate looking young for my age when I'm older, but I'm more concerned about developing correctly than looking youthful when I'm 40. Sorry for all the extra info - just wanted to provide extra details so that you know it's uncertain whether my hot flashes were from fibro or peri-menopausal. I don't know how I got rid of them, except that I just learned how to manage the pain in general and that seemed to coincide with the hit flashes receding. Sorry if this doesn't make sense, I'm feeling very unwell today.

Jasmine
Posted 7/31/2013 12:20 AM (GMT 0)
Hi there and welcome!
I have something similar too. But both hot and cold flashes. It's like my body doesn't know how to control/maintain temerature anymore. I'm always either too cold or too hot. No idea what it is, but it did start when my Fibro symptoms started.

I'm 99% positive it's not normal menopause, since I had a hystarectamy 14 yrs ago. Before my fibro symptoms started I was always on the warm side, but not hot flashes per se.

I've actually got an appt with my new primary care doc in the morning and its one of the things on my list to discuss with her. I'll let you know what I learn.

Have a blessed day!
Mari
Posted 7/31/2013 3:08 AM (GMT 0)
I have had cold chills throughout - I still get them.
Posted 7/31/2013 3:14 AM (GMT 0)
I get odd shifts in body temps myself. I used to get hard chills so bad i'd have to put on my coat and sit on the heater at work. Now I break out in sweats at the drop of a hat.
I think my thermostat is busted. LOL!
Posted 7/31/2013 3:42 AM (GMT 0)
I get horrible hot flashes. It happens so often that my grandmother keeps suggesting I have peri menopause. My dr says its the fibro. Thank goodness! Peri menopause is something I don't want to worry about.
Posted 7/31/2013 10:49 PM (GMT 0)
Check the side effects for any medications you use. I found out that taking tramadol will cause hot flashes and I had a horrible time during my menopausal years because I was on tramadol; I didn't find out until I quit taking tramadol that it caused hot flashes.
Posted 8/1/2013 1:29 PM (GMT 0)
Well, the appt with my PCM didn't go quite as I had hoped. She seemed nice enough and very competent, but since it was a first appt with her she treated it as a physical and we never got to discuss any of my big concerns and the list I wanted to talk about.

We did go over all my bloodwork and the the routine health screening preventative medicine stuff, (diet, exercise, annual exams, etc.). On the really good side from that perspective I got a clean bill of health (as long as you set aside my known chronic conditions, lol!).

So to this concern, it's definitely not my thyroid causing the radical temperature swings, and it's not typical menopausal hot flashes. Don't know what it IS, but I know it's not either of those.

So now I get to try and get another appt, likely will take a month or so, before I can address the main concerns I have. arrrrrggggg. :(

Anyway, Said I'd let you know what I learned, unfortunately not too much.

Have a blessed day!
Mari
Posted 8/2/2013 6:21 PM (GMT 0)
many FMers say their thermostat is broken. I always ran hot even before menopause, but now get chilled easily too. And sometimes, I am freezing and burning up at the same time!!

Oh, that crazy fibro!

I did buy one of those Chillows which helps at night (for me) Hubby hates his

Mags
Posted 8/2/2013 6:45 PM (GMT 0)
yep I get hot flashes also...like it lasts about 10 mins and they are literally just flashes of heat running through my body. I just wait for it to pass

Before fibro I used to get very hot and sweat a lot...still do, even though my temperature is actually below normal
Posted 8/4/2013 12:25 PM (GMT 0)
Same thing with me..whacked out body temperature thing going on. Freezing and cold both it's like it has a mind of it's own.
Posted 8/5/2013 2:48 AM (GMT 0)
Hi, Sucappy. Welcome! Have you seen "Fibro 101," 1st thread at the top of the list? It's worth your while to peruse - chock full of great info.

I wear turtlenecks and a cardigan every day, at least 7 months of the year - talk about depressing! - because I'm so incredibly cold. But I can still get hot flashes, no matter what the weather. Not often at all, though. I completed Menopause 5 years ago. My last period ended the day of my mother's memorial service (something meaningful enough to make me actually remember the date, something I practically never do.)

I will often get some hot flash-like feelings without actually feeling hot, if that makes sense - shakiness, a weak feeling in my arms, confusion (or should I say, more confusion) and the only thing that helps is to eat a few bites of something...which may or may not help....or better, lie down and shut my eyes for about half an hour. They say I'm not hypoglycemic, but it feels like what I imagine that to be.

Debbie
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