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fibro is stealing my sleep

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Posted 9/1/2013 12:42 AM (GMT 0)
Last night I could not get sleepy.
I laid in my bed reading until 6am!
I wound up falling asleep around 6 and sleeping until 4pm. I only woke up then because my mom came in the room asking me if I was still alive. :(

No matter what I do I just can't go to sleep at a normal time. My doctor told me my clock was out of wack and the only way to reset it was to go to bed earlier. I do but I still lay there wide awake until the wee hours of the morning.

Thank goodness I don't have a job to go to.
Posted 9/1/2013 1:23 AM (GMT 0)
I obviously don't know your medical history but what does your doc say about sleeping meds? I have been taking benedryl since insomnia hit in my teens. Now I don't usually have that issue. Any insomnia is purely med related but when it does hit I know how much trouble is will cause so I have to pop a pill. Not a good habit but it works.
Posted 9/1/2013 1:31 AM (GMT 0)
I can be sitting here watching tv and nodding off but as soon as I get to bed I'm wide awake forever. If I don't read or something to distract myself I'd just lay there getting frustrated but not falling asleep.
Posted 9/1/2013 6:03 AM (GMT 0)
I've asked for sleep meds from several of my doctors but no one will give them to me. The only one who told me why was my lung doctor who also monitors my cpap machine. She told me to do the sleep hygenie directions on a paper she gave me and reset my inner clock. Believe me it doesn't help if you're not sleepy and in pain some.

List of things keeping me awake:
Bed sheet hurts toes
Back locks up when turning over
Having night sweats
Ears ringing due to hearing loss
Mind won't shut up
Nose stuffy
Can't find a comfortable position that is pain free
Mouth dry inside and out
Itchy hair getting inside cpap mask
Cpap slipping and making odd sounds, if I adjust the straps tighter they hurt my head

As you see things just keep me agitated and keep me from relaxing enough to fall asleep. I could add more things but you get the gist. Sigh......

It's now 2:05am and I'm going to try to lay down and unwind. If I'm still awake at3am I'm taking benadryl and knock myself out. I just can't function the next day after taking it. Night ya'll. smurf shakehead
Posted 9/1/2013 6:50 AM (GMT 0)
I have the same issue. My dr gave me trazodone. I also have an anxiety medicine that I take at bedtime because my anxiety kicks in when I'm lying there with nothing to distract my brain.

The sleep hygiene is important. It's always best if you can sleep naturally but if none that works I'd ask the dr. Just have a serious chat about how the lack of sleep is affecting you. You can't heal if you don't sleep.
Posted 9/1/2013 8:49 AM (GMT 0)
Joy
Could it be possible you have something like delayed sleep phase disorder?
Sorry if you have already explored this avenue...I have posted a link:

http://en.wikipedia.org/wiki/Delayed_sleep_phase_disorder

Might be worth considering if you havent already

:o)
Posted 9/1/2013 4:39 PM (GMT 0)
On bad nights, it can be bad.

I have been known to change sheets in the middle of the night. Take baths. Even shave my legs.

I overdid it yesterday, and so had trouble falling asleep with the pain in my legs, butt, and back. After a little rubbing, I finally fell asleep by 2.
Posted 9/1/2013 9:37 PM (GMT 0)
I'm hurting a lot in my toes and fingers today due to thunderstorms rolling through today. Maybe that's why I was awake until 6am this morning too.

Wackers, I'm seeing my sleep doctor this month I'll ask her about it.

AV, I'm already on paxil for anxiety issues due to this disease. :/
Posted 9/2/2013 3:36 AM (GMT 0)
Joy,

I hope tonight is better.

What was the reason the lung doctor gave you for not giving you sleep meds?

Debbie
Posted 9/2/2013 4:40 AM (GMT 0)
She said she's a night owl like me and I just need to adjust my inner clock. She's the one who gave me the paperwork on sleep hygine.
Posted 9/2/2013 7:54 AM (GMT 0)
hi,
it is important to find a qualified fibromyalgia specialist
Posted 9/2/2013 8:23 AM (GMT 0)
Joy, are you taking any medication at all that makes you sleepy? Some antidepressants, pain medicines can be taken at bedtime to help you sleep. I take tramadol for my arthritis pain and it makes me sleepy. It may be worth asking for a medication that has the added sleepy bonus that you could take at bedtime.
Posted 9/2/2013 6:04 PM (GMT 0)
I would have to agree with the doc. You have wrapped your body clock into a pretzel, and now have created 'habits' of sleep which you would like changed.

The worst part for me, when i get into bad habits, is that I read too much in bed. My brain associates bed with thinking, not sleeping. Then, when I finally do turn off the light, it takes me forever to get my brain to an off position.
Posted 9/2/2013 6:43 PM (GMT 0)
I don't react to meds that normally make you sleepy. It takes two benadryl to get me sleepy enough to wind down.
Last night I took two benadryl along with my bedtime meds and was asleep in an hour. Unfortunately it makes my mouth so dry that my tongue sticks to my teeth.
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