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Posted 9/14/2013 6:37 PM (GMT 0)
turn hi all im new here i have been diagnosed quite a while but didnt know about your site i have fibromyalgia ibs gastritis anxiety and depression what a list.i suffer quite bad pain in my hips wrists pelvis fingers and shoulders but worst of all in my rib cage,on both sides its so painful i use a lot of topical cream but try to avoid nasaids as they aggrevate my gastritis and ibs i hope there are lots of people out there i can talk to on here as people dont know what its like unless they have it

I added a subject line so you'd get more responses ~ Debbie

Post Edited By Moderator (Acheybody) : 9/14/2013 7:51:18 PM (GMT-6)

Posted 9/14/2013 8:36 PM (GMT 0)
I'm new here also.  Just wanted to say hi.  My worst pain is also in my ribs.
Posted 9/14/2013 11:15 PM (GMT 0)
Welcome to hw.

We are a wonderful support group here. I take gabapentin and tramadol for my pain management.
Posted 9/15/2013 1:50 AM (GMT 0)
Hi, Tracieann. Welcome to the Fibro Forum, where everybody does understand!

Take a look at the first thread on the forum list, "Fibro 101." A lot of your questions might be answered, or, at least, it will give you some ideas. We all suffer many of the same symptoms, but are all different in what helps us.

One thing I think everyone will agree with is that you don't want to stay in any one position too long, whether it's sitting, lying down, standing still, or anything else. Our muscles seem to crave different movements.

A lot about Fibro is still a mystery, but they know a lot more than they used to. Fibro 101 has good info on the latest research, among many other things.

I hope you'll keep posting so we can get to know you! Have a good night.

Debbie
Posted 9/15/2013 3:49 PM (GMT 0)
Tracie and Jasonm, welcome :)

I've had Fibro for 27 years, so I can probably relate to pretty much any crazy ache or pain you have suffered with.

Much, much better for the last few years.... but I do still have Fibro, and maybe always will. It just doesn't control my life anymore.
Hope I can help you guys to get to the same point, also.

In any case, we all know your not crazy !
Fibro and IBS suck !

Peace,
Fish
Posted 9/15/2013 5:40 PM (GMT 0)

Acheybody said...
Hi, Tracieann. Welcome to the Fibro Forum, where everybody does understand!

Take a look at the first thread on the forum list, "Fibro 101." A lot of your questions might be answered, or, at least, it will give you some ideas. We all suffer many of the same symptoms, but are all different in what helps us.

One thing I think everyone will agree with is that you don't want to stay in any one position too long, whether it's sitting, lying down, standing still, or anything else. Our muscles seem to crave different movements.

A lot about Fibro is still a mystery, but they know a lot more than they used to. Fibro 101 has good info on the latest research, among many other things.

I hope you'll keep posting so we can get to know you! Have a good night.

Debbie

 

Debbie, I just figured this one out about not staying in one position for any length of time. Could not understand why my body would hurt more at rest...because I am sitting with everything just settling.

Posted 9/15/2013 6:54 PM (GMT 0)
thanks to all you wonderful people for your replies its so good to know there are so many kind people out there just a shame so many of us have fibro wow to put it politely its poo sometimes i feel like my ribs are like a hundred years old it gets so sore, when i have to lie on it at night its awful when i get up in the morning i apply some heat lotions which seem to ease it but my hips and pelvis hurt too and the centre of my back outer shoulders and elbows at first being a dreadful sufferer of health anxiety i imagined all kinds of terminal illness cos of the pain i was in but fibro has explained a good lot of things .it seems as if a lot of us with fibro also have anxiety depression or ibs too thanks for the advice about staying in the same position too long your right.this is a great place to air your views concerns and just to chat take care all
Posted 9/15/2013 6:58 PM (GMT 0)
also Jasonmom its a horrible place to have the pain when trying to get comfy in bed its so sore i sleep on a piece of sheepskin doubled over try this it takes the pressure off your rib cage a little take care
Posted 9/15/2013 7:37 PM (GMT 0)
Hello everyone. I've just joined and looking at the posts, you're all so supportive of each other. I was diagnosed almost a year ago after suffering with various symptoms for 5 years. I began a new relationship just over a year ago. Sadly, he doesn't seem to believe that I have this debilitating condition. He has said on two separate occasions I use my condition as "an excuse". He apologised for saying it last time but he obviously doesn't believe me because he's said it again. I'm sitting in another room because I just don't know what to say to him. It hurts that he doesn't believe me. Have other people experienced this with their partner? Thanks for listening guys xx
Posted 9/15/2013 8:37 PM (GMT 0)
Hi Bee 75,
Hi Jasonmom,
Hi Tracieann,

Welcome to the forum all of you!!! We should call this the "newbie" thread... I am glad you all have joined us, and you all have come to a wonderful place.

I know Debbie posted, it but I want to reinforce to you reading the "fibro 101" thread. It is so full of useful information. It is a wonderful thread...

Bee, I am so sorry that your boyfriend doesn't support you with the fibromyalgia. That must make you feel so lonely. Maybe get some literature on it and put it there for him to read. This is kind of known as an invisible disorder. A lot of people don't understand it. I hope he does soon.

I often think of the pain in the rib area as costrochondritis. And I know I spelled that wrong. But it effects the muscles in the chest. You might want to read up about it. I sometimes get tightness in my rib cage too. I know how scary that can feel. You are afraid to breathe.

I hope you all have a good day. Again, welcome to the fibromyalgia forum. The weekends are sometimes slow, you there will probably be a lot more responses on here tomorrow. Take care all, newbies and otherwise... lol...

Hugs, Karen...
Posted 9/15/2013 8:45 PM (GMT 0)
 Tracieann, I too have anxiety and with Fibro (yet to have official dx) it makes the anxiety so much worse.

who dx you and how long did it take for the dx?

 I too have gastritis and IBS, this all came after having H-pylori and then having SIBO (small intestinal bacteria overgrowth) !!!!!

I believe all the stress from these brought on the fibro. although I have been achey for a long time it just now seems 100xs more intolerable

I will be seeing a RA on the 18th, and really don't know what to expect

Posted 9/15/2013 9:12 PM (GMT 0)
Thank you so much for your reply Karen. I've tried the literature before but he wouldn't read it. As you say, it's an invisible condition. People don't understand an illness that they can't see. I've encountered this from my employer, friends and dismissive doctor. That's why groups like this are so important. At least we feel understood. I will have a look at the thread.
Welcome to my fellow newbies and I look forward to getting to know everyone.
Gentle hugs xx
Posted 9/16/2013 11:41 AM (GMT 0)
You are so welcome Bee. I hope you have a good day today. I am sorry that you can't get him to learn about fibromyalgia. It is hard to convince the people we need to convince. And the lack of support must be devastating to you. Know all of us understand you here.

Take care and have a great day!

Hugs, Karen...
Posted 9/16/2013 4:19 PM (GMT 0)
Welcome all new people!

It is scary at first, Tracie, but then it become the normal, and you learn how to live with it! I don't mean that in a bad way, either, but you learn how to navigate with the pain and discomfort and lack of energy. For me, it's the low energy I mind most. Soon, you will find meds/tactics/supplement that make a difference. If I am super-achey, I take a hot bath before bed.

Bee, sorry to hear of the gentleman's disbelief. It's hard for some to believe in what they cannot see. My gentleman is mostly supportive, but sometimes he can say things that sting. He knew me before the diagnosis, and knew I was not a person to fake things, nor was I someone to want to be inactive. So, that helped. We've been together 12 years and I have had fibro for going on ten. Sounds as if you two need to plan a chat.
Posted 9/16/2013 5:08 PM (GMT 0)
Bee75
There are several threads re: family & friends..
You can do search & find some or, like I did (still do!) just look thru at the topics.

though as important as they are, the tips & info on here are secondary , for me, to the "emotional" support. Reading threads I know I am not the only one who is not believed.

Knowing that has helped me to not be SO angry & hurt at being called a liar.. not "you are a liar" but the little jabs of comments which mean that.

My fibro was result of a workplace injury so my family was not the only people I have to convince (fight !!) in order to get proper medical treatment.

Sometimes the less we say, the less we have to defend ourselves about. I no longer discuss my meds with anyone. Period. I wanted a family member to know in case I had a bad reaction.. but they used that knowledge as ammunition to try to convince me that I am a drug addict. I am dependent on meds for pain relief, which is way different.

They conveniently forget all the time I have spent in bed, feeling so tired I did not get out of bed. All the times I cried, from being in pain..

Hope the threads will help you & remember - you must NOT allow anyone to make you feel bad about the fact that you are hurting... literally, that (stress) will make you feel even worse.

Take care of yourself..
Posted 9/16/2013 7:16 PM (GMT 0)
Hi, Traciann, and welcome!  I have rib pain too.  It comes from back problems and also costochondritis.  There is a link in Fibro 101 about costo.  Anyway, my rheumy has be doing deep breathing exercises to keep the abdominal wall stretched so my lungs can expand easier.  I have a back problems called ankylosing spondylitis that can make it harder to breathe if you let it.  When I take the deep breaths, my abdomen needs to move...not my shoulders.  I do this quite a few times throughout the day and find I'm breathing better.  When you have pain you tend to breathe more shallow...don't want to move the muscles that hurt.  Know what I mean?  Anyway, try that. 

 

Yes, yes, yes, you do need to keep moving and we talk about this on the forum all of the time.  We need gentle daily exercises and I walk and swim as my exercises.  In the months I can't swim, I do walking in place exercises during commercials if I'm watching TV.  Sitting or laying makes you stiff as a board and have more pain.  Get up and walk around.  Bend from side to side and help stretch those muscles by your ribs.  There are also gentle stretching exercises yiou will find in Fibro 101 that you can do sitting down. 

 

I'm so glad you found us and I think you will like it here.  I'm looking forward to getting to know you better.  Don't hesitate to ask questions because we are here to help you.  Hope to hear more from you soon.

 

Sherrine

Posted 9/17/2013 4:41 AM (GMT 0)
Welcome traciann- glad you found this forum! It really has been a blessing to me. I have learned so much here and I love the great support here. Maybe you can share some ideas you do for your fibro.

You mention your ribs hurt a lot. I have trouble with oral anti inflammatory meds too, but I have a great ointment you can rub on your ribs or wherever your pain is. It's called voltaren gel. It's a antiinflammatory gel to rub on. You don't get the effects on your stomach as the oral one. It has kept me from taking steriods injections by using this gel.

I know many or most of us benefit from heat. I use heat on about every part of my body. Taking magnesium helps me control my muscle cramps.

I use to suffer with anxiety and depression. I had to seek therapy which made a huge difference. I took a class on anxiety. Getting great support with postive people on this forum has helped me too. I look at it as whole different way now. I think getting great control of your pain makes a world of difference. As soon as I did this my depression improved.

I hope you can get as much as I have out of this forum. Feel free to share or ask questions. This is how we learn from each other.
Posted 9/17/2013 7:26 PM (GMT 0)
I cant believe how helpful and kind everyone in on this lovely forum Bee people often need to see us walking with a stick or bleeding or fainting to believe that a person is ill well hun you know you ARE ill so partner or not keep on fighting this awful illness Its a terrible thing to go through without being doubted you sometimes think if they had your body for a week ..... wonder how theyd cope.laineyk i was dx by my own dr after a few months of tests and pain and weakness i thought i had arthritis which i do have in my fingers but this got worse all over my body and at one point i thought i had bone cancer (Thank God i was wrong )my ibs was dx 15 years ago and i have had gastritis for 5 years on and off thats horrid too
thank you all you nice people who have given advice its great to have tips and ideas about management
and its also great that we can help and share and empathise just going to get my hottie bottle for my hips now talk again soon love to all
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