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Posted 10/22/2013 7:42 PM (GMT 0)
My Rheuma refered me to a pain clinic. I went today, got accepted and I'm starting in January. Yay!
However, today when doing their tests: touch here, bend like this, stretch that, they mentioned hyper mobility.
I know I'm more bendy than an average human being, but is this related to fibro or, does anyone of you are more bendy than average?

(Ex, they asked me to bend my head and back backward and when I did, I went so far all 3 specialists said: "Woooooah ok, not that far!")
Posted 10/22/2013 7:47 PM (GMT 0)
I remember another member with this but that's all.  I don't think it has anything to do with fibro.

 

Sherrine

Posted 10/22/2013 8:32 PM (GMT 0)
That's what I was afraid of :(
Posted 10/22/2013 8:56 PM (GMT 0)
Anna,

I have a daughter (who's also named Anna, btw) who is extremely bendy. As a child, she used to "fold herself" almost in 2 and hide in a tiny closet. Once, she fell while skiing and her leg was actually turned backwards when my husband went to rescue her. Yet she was fine! There didn't really seem to be a downside to this when she was young...she'd brush her hair with her foot, bend her thumb all the way back to her arm, etc. I questioned her doctor and he said not to worry.

But now that she's in her early 20s, not so much. She had to wear a knee brace for a few weeks because her knee just "gave out" when she was casually dancing at a club...her ankle rolls really easily...and her back is prone to injury, too. A physical therapist she went to for the knee said she should do strengthening and water exercises, and that she'd always have to take this tendency into account.

I take it you've always been very flexible, too?

We do, or did, have a member who has Ehlers-Danlos Syndrome, and being extra-flexible is one of the symptoms. You might want to google that if you haven't already.

I'm glad you got admitted to the pain clinic, though!

Debbie
Posted 10/22/2013 9:14 PM (GMT 0)
I'm quite the opposite of bendy! But a neurologist said my muscles were very 'floppy' whenever he tested them. My foot would shake when he tested it and he'd say, "Whoa! whoa!" Kind of embarrassing, but that's my weird body.

He also said my muscle tone is 'so good it's almost too good.'

Do you think they may have possibly meant something like either/both of these and just said it another way? That just crossed my mind.  But then again, I'm not at all bendy, so maybe that's a long shot.

These two things I'm mentioning are neurological and not fibro-related.
Posted 10/23/2013 2:29 AM (GMT 0)
I have hypermobility. I believe it may be related to my FM. But I'm also not convinced. But given my body problems are widespread (vision problems, skin rashes, hair loss, really low vitamin D, menstrual irregularities, and other abnormalities that all occurred at once) I wouldn't be surprised if any pain or abnormality is connected to, or exacerbated by my FM-issues, although I also wouldn't be surprised if it were a separate issue.

My back problems and hyper-mobility in my back began around the time I experienced all of my other FM problems. It started in my mid 20's which is a bit abnormal for severe back pain, that is why I believe it might be related to my problems with FM.

I'm also not convinced all of the people diagnosed with FM are dealing with the same type of 'FM' or that its caused by the same issue, but that is also debatable, and is purely my non expert opinion, so take it for what its worth, not too much. :)
Posted 10/23/2013 3:53 PM (GMT 0)
My dr. calls it hyper flexibility. Everyone who tests me is always stunned, I've always been this way and I don't know if it is connected to fibro. I tried some arthritis exercise classes once because I also have arthritis, but they concentrated on range of motion which was nothing for me.
Posted 10/23/2013 4:03 PM (GMT 0)
I am very flexible, due to lots of movement classes. It is just the way I am.

Although, the range of movement in my lower spine is far less than it used to be, and hurts if I try to work it out. So long as it doesn't hurt, you ought to be fine.
Posted 10/23/2013 5:57 PM (GMT 0)
I also have above average flexiblity, my VA doctors say that is what is causeing all my pain in ankles, wrists, etc....I think that this above average flexibility can irritate fibro, because I can easily twist my ankle, but it takes me twice as long to get over it.
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