I can totally relate
I go to Wal-Mart with my 64 yr. old mother and my 85 yr. old grandmother who uses a walker that she can sit on if she gets tired, I'm 45 and I wear out before my grandmother and I'm the one that has to take a nap when we get home. If you still think your disease is in your head you need to get some new doctors
Hang in there and Keep In Touch.