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OT Prednisone is doing a number on me

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Posted 12/31/2013 2:48 PM (GMT 0)
I've been on high dose prednisone since December 13th for my lung "stuff". The first week I was in euphoria while on it...everything right with the world. Now I've been transported to the land of crazy side effects.

My pulmonologist reminded me of some of the side effects I might experience. Being on high doses before, I was familiar with the common ones and did experience the moon face, chipmunk cheeks, little buffalo hump, pot belly and weight gain. This time around, I haven't gained weight. My appetite is one of a giant, but I'm exercising lots of self control...only slight chipmunk cheeks have appeared. The most aggravating side effects seem to be mood changes....I feel like I'm having extreme PMS and I'm wired to boot. Haven't slept real well for over a week, waking almost every hour on the hour. I know I have to stay on this dosage to try to find out if the pleural effusion is due to my autoimmune conditions or if it is a malignant process. I feel manic and drained.

I just re read my last thread...emotional pain is real too....don't even know where that one came from turn

My thinking is somewhat out there right now and I'm trying to just maintain. I might not be posting as often. Don't see the pulmonologist till Jan. 16th...more scans and hopefully know by then what is going on. My life is one big adventure turn

Hope we all have a great week!

hugs, Robin
Posted 12/31/2013 3:07 PM (GMT 0)
People with fibro have deregulation in the HPA axis of the brain. Steroids further alter the normal neurotransmitter balance. They are effective for major conditions that require lifesaving intervention. They are extremely destructive to the whole body when used for more than a week or two.

Be sure not to stop them suddenly – steroid withdrawal can be a life threatening issue.
Posted 12/31/2013 3:11 PM (GMT 0)
Oh Robin,

I feel so bad for you w/ 'everything' you are going thru. Is it possible to get something from the dr to help you sleep, at least until your Jan 16 visit? Perhaps if you had some decent sleep, you wouldn't feel so manic & drained. I know I'm not the most calm person when I haven't sleep well.

Post when you feel up to it, but remember we all care about you a great deal, and we are here if you need us. Do what you need to do to calm yourself. Music, meditate, & pray. Hope today is a better day for you.

You are in my prayers.

God bless you, dear friend. Alice.
Posted 12/31/2013 3:42 PM (GMT 0)
Robin, I've been on high dose prednisone....80 mgs a day for one month. I was put on it for my autoimmune inner ear disease. They were hoping it would help stop the progression of my hearing loss. I went through what you have described but I also get sick....I caught everything that came down the pike! So, be careful, eat healthy, wash, wash, wash your hands and use antibacterial soap, and I think I would stay away from children at this time. I couldn't do that since my three children were still at home. All this will help keep the "bugs" away.

It will take a while to wean you off the prednisone, too. It took me four months at the high dose I was taking. But all the symptoms get better and better.

Meanwhile, I'm really praying that this will take care of your lung problem. You certainly don't deserve all that you are dealing with but, as I have said it before, you deal with things with such courage and grace. I'm praying that God will bless you.

Sherrine
Posted 12/31/2013 4:26 PM (GMT 0)
Been there too. Hopefully never again. Praying you get through it!
Posted 12/31/2013 4:36 PM (GMT 0)
Ack. Pred. I am already tempermental; Pred just gives it that little extra spice of bat-guano crazy.

Blessings, Robin.
Posted 12/31/2013 10:28 PM (GMT 0)
Thank You...for being here for me, sending well wishes and prayers, always supportive. My fibro family has been with me through a lot and I'm so thankful, I have you pulling for me!

I've been taking a muscle relaxer before bedtime hoping it would let me sleep...but no luck. Things could be worse, everything could be flaring right now and it isn't...so I can celebrate that!!!

Tomorrow is the beginning of a new year....A new year....A new beginning...A hope for many dreams :)

Hope all your dreams come true!

Hugs, Robin
Posted 1/1/2014 3:33 AM (GMT 0)
At least you'll get to ring in the new year.
I hate going on pred. I'm wired up, stuffing my face, and crash when I'm finished.

Feel better...
Posted 1/1/2014 6:58 AM (GMT 0)
Boy, you really are going through a lot, Robin.  I wish you could just bypass all this stuff, but for whatever reason, the only way out of it is through it.

I'm here for you too - you are one special lady.  Your strength, humor and ability to see the bigger picture always amaze me.... :-)   You take the time to really understand all your conditions and do everything you can to help yourself.

Maybe, hopefully, the new year will bring you a lessening of all these crazy symptoms.  And good SLEEP! :) 

Hugs, Debbie 

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