Hi All

Hello All smurf

I'm Ganesa ...I am new to this forum and thought I would post a little about myself.
I am 37, mother of 2. I work full time from home, 45-60hrs a week online as a Chat Moderator & Site Manager. I have been doing this for over 6yrs, ever since the Dr's told me I could no longer be a PSW :( A job that I truly loved.

I was diagnosed with Fibromyalgia about 13yrs ago. I have been on just about every med combo on the market for Chronic Pain. I was also diagnosed with Deep Infiltrating Endometriosis. I have it in my bowels, and other pelvic regions. I have had to have uterus, right ovary, tubes, scar tissue, & appendix removed from the Endo.

I now suffer from, what my Pain Clinic Dr is calling..."phantom limb pain" although not from an external limb but from the removal of my right ovary. Apparently all the pain I'm still having in the right side is phantom. LOL Who knows right? We suffer from so many kinds of pain who knows whats what anymore.

Besides the Fibromyalgia, DI Endo, I also have Gluten & Lactose Intollerance, PTSD, Migraines...ect. I am currently on Nabilone 1.5mg/day, Buprenorphine patches 10mcg/hr, Cypralex, Seroquel, Flexeril, Vit D, and multivitamins...I think thats everything wink

I have had more surgeries than I care to list, too many med trials, to many months in bed....and I am in need of a boost. I feel like....even after all these years of this there just seems to be new things popping up everyday and I am getting run down & depressed. I have reached out on Forums & Help sites before and I stumbled across this one..."searching for sweat smelling like vinegar!" lol and thought I would join.

Look forward to chatting with you all and hopefully helping any way I can :)

*Gentle Hugs* to all
Ganesa smilewinkgrin

Thank you Debbie ;) I will deffinately check it out and thank you for the lovely welcome xx

Hi, Ganesa, and welcome! I'm so glad you found us and joined in. We have wonderful members who love to help one another and as a bonus, we really do care about each other too. I think you will like it here.

I'm sorry you are having so many health problems. I have a lot too but they haven't made me bedridden. That's hard. But maybe we can help you a little.

I didn't want to go on the medication they usually five for fibro so I have tried a more "natural route". I use ibuprofen with food, Tylenol, magnesium malate, vitamin D3, and a prescription muscle relaxer called Robaxin which has made a significant difference in my pain. The Robaxin has even helped me sleep much better since I'm not awakened from pain. Unfortunately fibro s not a one size fits all illness. What works for one doesn't necessarily work for another. It's more a trial and error process to find what will help you control your pain. You will get many suggestions on this forum since we are all so different.

I also do daily gentle stretching exercises, I walk and/or swim daily as my gentle form of exercise, and I pace myself when doing things. All of the above have helped me live a full and enjoyable life in spite of this illness.

I also am a positive thinker and that has really helped me with all my illnesses. I focus on the blessings in my life and that really helps. I look at all I CAN do...and that's quite a lot. If I start looking at the negative things, it will start to pull me down.

Be sure to read Fibro 101...the first thread on the forum. There are links to good info about fibro and you will learn a lot there. I've had fibro for 27 years and am still learning new things. And since we have to be our own advocates with this illness. It's good to arm yourself with knowledge.

You will find, in Fibro 101, information on magnesium malate. It has malic acid in it which studies have shown it helps some with fibro and the magnesium is good for your muscles and muscular pain. The link will explain a lot and show how it works in the body. Another great link is one about how to maintain a positive attitude when you have chronic pain. It really is good and I have read it many times....when I'm having one of those days.

I'm looking forward to getting to know you better. Don't hesitate to ask questions because we are here to help you. Mope to hear more from you soon.

Sherrine

Welcome welcome welcome

Glad you have joined us though sorry that you too hurt..

look forward to chatting.