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Fibromyalgia
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Posted 5/31/2014 4:54 PM (GMT 0)
Hiya, Im Rebecca.
I have had fibro for a few years now, only got officially diagnosed in May 2013.
Had all the symptoms and 'pressure pain points'.
I also have arthritis in my back, bad joints with my knees and hops.
And I also have a non alcoholic form of liver disease called auto immune hepatitis.
I struggle everyday, but keep fighting.
I am on a lot of meds for my liver. But for my fibro im on 400mg of tramadol (does NOTwork at all), and 300mg lyrica.

Thanks all

Look forward to getting to know you all.

Rebecca x
Posted 5/31/2014 8:18 PM (GMT 0)
Hi, Rebecca, and welcome! I have ankylosing spondylitis which is in the same family as your psoriatic arthritis. Not fun. Are you on medication for that? My rheumatologist wanted me on either Humira or Remicade infusions but I didn't go that route. I'm just taking ibuprofen with food and a muscle relaxer and that helps me.

I also have a few autoimmune illnesses but don't need steroids now. I took them for a while but have been weaned off them now. It's not fun dealing with these things and I'm sorry you are going through this.

There are a few things that I do that help with fibro though. I take a couple of supplements that help me. They are magnesium malate and vitamin D3. Both can cause more pain if you are deficient in them. Of course, with your liver problems, be sure to pass any supplements and medications by your doctor. I also walk daily...about 30 minutes a day...and that has helped me a lot. I had to start out slowly but now don't have problems walking. I always have less pain and fatigue by the time I get back home.

Be sure to read Fibro 101...the first thread on the forum. There are links to good info about fibro and you will learn a lot there, too.

I'm looking forward to getting to know you better. Don't hesitate to ask questions because we are here to help you. Hope to hear more from you soon.

Sherrine
Posted 6/1/2014 2:32 AM (GMT 0)
Hi Rebecca,

Its a nice forum...

have had fibro a long time and surviving it..now my vit d level is too low and i have much worse symptoms with this...thankfully the weather is better and i can get some sun

We all struggle with this disease, but it helps to have a forum of people who get what you are going through

LJ
Posted 6/3/2014 7:47 AM (GMT 0)
Welcome to the forum! I hope you find this forum helpful. It sure has been a blessing to me. I have learned so much here and maybe you have some helpful ideas you can share too. We all learn from each other here and support each other. It helps to know others care when your day is rough with pain. So many of us feel lonely in this syndrom.

I try to keep my treatment simple. I use to take hard narcotics for many years only to become very addicted to them. So I try not to go down that path again. I use vitamin D, calcium, magnesium, rest, exercise, eat healthy, limit stress, heat, remron and subutex for pain.

I hope we see you around again. Please feel free to ask questions or if you need to vent the day away.
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