I was confirmed by my primary doctor.... on Friday that there is "NO DOUBT THAT I HAVE FIBROMIALGIA!"
BUT THAT WAS NOT A RELIEF AFTER ALL. She tells me threes nothing she can do except ibuprofen and exercise. The only medication for my illness will never be covered with my insurance. I left there unhappy and then realized that she is only one doctor, I hope to find more options for treatments and start the journey to making my pain and other medical issues more manageable.
I GAINED the currage to request a copy of the diagnosis so i can find a possible trial or other means to fight it. 2 other doctors told me they thought it was fibro, but did not wright in on the paperwork. I'm tierd of befing overlooked because there is no "real" illness in some doctors minds. I don't want to give up, because at least 2 percent of Americans have this Chronic Pain Syndrome, and many of them have a struggle finding the help they need. Even children suffer from this decease and Im scared that my own daughter might someday show symptoms. It is not right that people are just forgotten about when they in pain, pain they have no control over. Why are so many left in the hell that I think living with this condition (FM) is. https://www.healingwell.com/community/emoticons/redface.gif
I have yet to find another case with a patient having both FM, and CM ( Cavernous Malformation cerebral_ leaking blood). Seizures combine with fibro pain. Not life threatening but disabling potentially getting worse because I have yet to have surgery for my active CM in my right frontal lobe. Stress is my enemy know more then ever. Having these too conditions together, for me, I would say is a humbling experience. Today is a good day so far, but on the m=bad days without the medication i take for the pain I feel terrible. My Hands feel like there channeling and trapping electricity that burns or aches in my palms and joints. Sharp gabbing pain from nowhere hits me and I literally try to keep my scream to a muttering moan. I pray at those moments to some unseen force trying to imagine the pain gone. Some things have gotten harder to do, and I avoid certain things. I feel limmited to my home inviroment because the average JOE won't understand if any of these things happen.
Still the volcanic explosion or (Cerebral hemorrhagic lesion) might be triggered by the fibro_ and epilepsy. its Already 1.4 CM doubling in size from 9mm in a 6 month period My second referal has been sent to highland and ucsf for a nuero surgeon. I hope to check in on all of you and see what you think. is there anyone else that has both these things together?
Post Edited By Moderator (Sherrine) : 6/11/2014 11:04:10 AM (GMT-6)