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Fibromyalgia
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Posted 6/21/2014 9:38 PM (GMT 0)
I've had fibro long enough to know about pacing myself, etc. lately the fatigue has gotten so bad I asked for my thyroid to be tested. It's fine, darn it.
Yesterday I met DD for coffee at 1:30. Sat outside and talked till almost 6. Then dinner and dog park. Bed as normal. The dogs run, I sit.
I can't stay awake today. I think I've slept more than been awake. I really didn't do ANY thing yesterday. I don't know what to think. Anybody have any ideas?
Posted 6/21/2014 10:17 PM (GMT 0)
I have terrible fatigue with the fibromyalgia. I have been taking Adderall for a few years now and it really helps me.

The only other things I know that help is exercise, getting good sleep, eating small portions throughout the day. Pace yourself is right. It does help.

I can't function without the Adderall though. It has saved me...

I hope you find what works for you. There are vitamins, supplements that you could try. Coffee helps me too. Mine is all artificial...

Best wishes Spookiesmom...

Hugs, Karen...
Posted 6/22/2014 2:03 AM (GMT 0)
Hi,

Have they checked your vitamin d? I kept getting worse all winter.and my dr checked my d level and it was way too low..i had more day time sleepiness, muscles weakness, way more fatigue, much foggier thinking, and pain levels were elevated...

I have been on additional d supplements and getting into the sun more for about 6 weeks...the first improvement was the pain levels..but feel i am improving slightly in all areas.. They say it takes about threee months to raise your levels
Posted 6/22/2014 2:10 AM (GMT 0)
Yes, my D3 was low, have been on that for years. My medical oncologist wants me on 5,000 u per day. And I'm in Florida. Sure helped with the pain, thanks for the thought!
Posted 6/22/2014 2:30 AM (GMT 0)
I know the fatigue can be worse one day then the other. I got where I shut down very early at night due to the fatigue. If I don't I actuallywill feel sick in my body. Getting my sleep apnea machine has helped only with taking less naps. i still have poor memory and fatigue. I know my snoring less too.
Posted 6/22/2014 2:52 AM (GMT 0)
Hi. Sorry you've been so tired lately I've had it bad on and off as well. Could it be the weather changing? It's just been getting more humid and hot where I live and I noticed it has made my fatigue go crazy. I'm starting to wonder if I have narcolepsy, but it's probably just fibro.
Posted 6/22/2014 11:31 AM (GMT 0)
Are you under a lot of stress? Maybe just too much going on in general?

I find summer is such a busy, busy time and I really have to watch myself or I overdo it so easily.

ETA:  I find some days I have to sit and rest or lie down for a short while or I'm doomed! shakehead    But I also realize not everyone can do that, due to their work situation.


Hope things are better soon!!

Posted 6/22/2014 6:32 PM (GMT 0)
I notice that in the summer when the weather changes so rapidly, that I feel worse. I get tired of the fatigue and pain too. I've got to go back to my doctor in a week. I can't take this anymore. I logged on today to see if I could find any answers. I have AI issues as well and sometimes I don't know which dz the pain is coming from. Sooo frustrating. I was on cymbalta a few years ago and back then didn't have as much pain but I started having too many side effects and had to go off. Tramadol helps me as well but right now I am on wellbutrin and those two don't mix for me. Very frustrating. It's like I've run out of options of drugs to take. Lyrica and lots of other drugs just knock me out.

I wish I had some answers for you but it happens to me too, fine one day, miserable the next. Usually though, if I have a miserable day, I won't be fine the next day, it takes days and sometimes weeks to get a break.
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