Help please is this fibromyalgia cfs or just stress!

Hon, you are not fainting from stress.

Have they checked your vitamin d levels? I got so weak and dizzy and a lot more pain this winter..and in the testing my vit d was low..

Its a slow process to get it back to normal, but some of your symptoms sound like d deficiency..as i read what others wrote about it, they often felt like they might die..

Also sounds like fibro, and i learned the hard way that these two together are fierce.

If you are having the fainting and all these symptoms and he is not helping you...you need another dr.

But please have your d checked if you have not already..and read up on d deficiency in fibro 101 here and online.

Its often hard for us to find the help we need but please keep trying.

The way my form of fibro was explained to me...is that its genetically passed but something activates it...an illness or an extremely stressful event...

I seemed to track its activation to an awful flu that left me extremely fatigued..

My mother and a sister also had it

Welcome to the forum. You really do have some complex medical history. I would go see a rheumatologist that is board certified and works with fibro patients. Many of your symptoms does sound like fibro with other underline medical issues going on. Sounds like you need to see a neurologist too. I would get a referral to the rheumatologist. You can give him the symptoms, but let him decide the test and give the diagnoses. Fibro patients usually just don't pass out. Sounds like your going through other things. Go see a neurologist and maybe they can rule out some things. Just remember you probably didn't get this way over night, so it will take some time to get it all figured out.

What has your GP Dr. say about all your problems? If you do get fibro diagnoses this is a good place to learn how to manage it better. I have been down that road where everything seems to be falling apart. The good thing to know you an get some control over it. It does take a trial and error method. You will try new meds and treatments trying to figure what works for you. We are all so different in how we respond to meds and treatments.

You mention how you forget so many things. That is called fibro fog. You will find out some days are worse then other days. It can be very scary! I remember losing we're I parked my car several times. I just wanted to cry in the parking lot. So I do understand. Sometimes stress will make this fibro fog worse. You can look this up on line and they have several books on it on line too. Amazon has some great fibro books. As I read these books I could see myself on each page. I wanted to cry because it was like finding the missing puzzle all these years. You will learn more here and in those books then from the Dr's office. I do memory games to help with some of that fog. I really try to limit my stress in my life. I try not to over extend myself too.

If this is fibro your going to have to make some changes probably in your life style. Things such as having good sleep habits, exercise, limit hrs. of work, eat healthy,rest and limit stress. Once I made these changes my fibro was so much more manageable. Believe it or not the most helpful treatment for fibro is mostly natural methods. I have taken meds for fibro only to have lots of side effects, so I try to limit what I take.

I hope we see you around the forum again. Please let us know how your appointments go. Make sure you go over fibro 101 on top of the post. Getting some fibro books once your diagnosed is extremely helpful. Education is so important in how you treat your fibro.

Post Edited (ak angel) : 6/28/2014 12:02:32 AM (GMT-6)

Eulalia- I believe your diagnoses is just around the corner. It really does sound like fibro with maybe some underlying health problems. The twitching undr your eye lid is probably really not much. I get that and all my scans are normal.

Just by reading your post I thought you might be under some stress. Usually fibro will flare like your discription under lots of stress or illness. Fibro flare is where all your symptoms come screaming at you. Lol once you learn how to manage your fibro things will get better.

Going to the rheumatologist who works with fibro patients will figure it out. They are very smart Dr's. They do numerious blood test. Good characteristic of fibro is we are low in vitamin D. When your low in vitamin D, your pain and depression can be worse. Fibro has so many similiar symptoms as other diagnoses, so this is why we just can't say it's fibro. They will look at other auto immune diseases such lupus or ms. Ms does take a brain scan to confirm it. Another good characteristic of fibro is most of your test will be normal. This is why it's hard to detect fibro sometimes. So never think your symptoms are in your head. They are true symptoms! If your Dr's don't want to believe this then you need to find a new one. You need a Dr. that will support you and believe you.

You mention your meds your trying for blood pressure. Fibromites are very senstive to meds. I use to remember my Dr. always saying why do you get all these side effects? So some of your symptoms could be med related. Maybe take a note and watch for it. Hip pain is common in fibromites. I use to get steriods injections for them, but got scared off after they had a bad batch of them. I use a prescription gel called voltaren gel for the hip pain. I rub it on and it works well. The injections are great too. I also got a new memory foam bed and now I rarely have hip pain at night. It's the best investment I made!

So in the mean time try to limit your stress, light exercise is very important, use heat for the muscle pain.

I just wanted to tell you I came here in bad shape and desperate too. I finally got control of this fibro syndrom. I took some trial method to figure what works, but I got my treatment plan figured out now. I do the following for my fibro. Vitamin D, calcium, magnesium, remron, heat, light exercise, limit stress, eat healthy and subutex for pain. The magnesium really does help with the muscle pain. It took about a month to work, so don't give up too early when trying new things.

Feel free to ask questions or if you need to vent the day away. We support each other here and it's great to know someone understands. I never feel alone in this anymore. I hope you get as much as I have from this forum.

Post Edited (ak angel) : 6/28/2014 11:58:32 AM (GMT-6)

The thing i like about my dr..he does not make me come all the time..lol..he asks me to come in more often, i say..is there anything i would be doing different, he says no.. And i wonder, why do i need to go in for a chat...i don't..they are more used to fibro patients coming in often...gotta say have never been fond of docs, so he knows if i come in things are really bad...which was where i was in the spring...my vitamin d was too low and my symptoms were horrible..luckily he thought to check that.. After about two months on vit d , my pain is better, but still waiting on the fatigue side of it to kick in..i still get dizzy at times, and occassionally my memory is faulty, but it is improving.

I had coped pretty well over time with the fibro..but the d on top was way more than my body wanted to handle..it kicked my butt, but i am kicking back.

Oh i can see how confusing it would be to see a mix of 20 drs...that would make the communication so much worse...

Hope you will keep writing

You might talk to your doctor about performing a tilt-table test. It's to find out the cause of fainting.

Here's more information:



www.medicinenet.com/tilt-table_test/article.htm