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Posted 8/15/2014 12:49 AM (GMT 0)
Hi yall! My name is Brittney. Im 27 years old and was just diagnosed with fibromyalgia. I am in constant pain. Was on cymbalta and i was throwing up so bafly on it i lost 10 lbs in one week. Craziness! Now i just FINALLY found a pain management doctor that takes my insurance September 15th which is amazing BUT i have NO medicine and the my fabulous (here my sarcasm) does not prescribe pain medicine to chronic patients. So im doing the whole fibromyalgia thing all natural. Im in the first stages of my treatment so there is no plan yet and i still have to go to the nuerologist for my high sensitivity and migraines. Plus im lookinh into going to see a therapist becaue this disease has taken over my life. I am a mother to a beautiful 5 year old that sees me in tears every day which i just try to hide and the no's i have to tell her cause im either tired or can barely move. My boyfriend of 6 months yes not that long has stood by me through it all (his mother was a single parent with chrons disease so any of this is nothing new to him) i have been treating horrible and its not me its the pain. So therapy i feel may help me one vent so im not driving anyone crazy and two learn how to live with thisbdisease and not punish the ones i love because i am mentally and physically tired but yet the one that keeps this house going 24/7. But any hoot im glad i found this site and hope to get some newbie tips and tricks cause this is all new and im scared as hell!

Brittney
Newbie Fibro challenger
Posted 8/15/2014 1:17 AM (GMT 0)
Hi, Brittney, and welcome. I happen to go a more natural route with this illness. I've had it for decades and have had a full and enjoyable life in spite of it. You will too when you find what helps you control the pain.

I use ibuprofen with food, Tylenol, magnesium malate, vitamin D3, and a prescription muscle relaxer that has made a significant difference in my pain called Robaxin. I also walk one + miles daily as a gentle form of exercise. This is important because if you sit or lay too much you will be stiff as a board and have more pain. I also pace myself when doing things. It all gets done but in a different time frame. By the way, I also have Crohn's disease but still have a very good life.

Be sure to read Fibro 101...the first thread on the forum. There are links to good info about fibro and you will learn a lot there. Good starting links are Symptoms, What Else Could It Be, and A Thorough Explanation of Fibromyalgia. You just might see yourself there. There are links about the two supplements I mentioned above Hd how they work in the body. Quite a few members have had good results with these. All of Fibro 101 is good so do read it.

I'm looking forward to getting to know you better. Don't hesitate to ask questions because we are here to help you. Hope to hear more from you soon.

Sherrine
Posted 8/15/2014 1:33 AM (GMT 0)
Hi Brittany. My name is Dawn. I am new here also. I was reading all the post before I actually joined. I liked what I saw.

Let me be the 1st of many to welcome you. People here really seem to care. Some have alot of experience and offer suggestions. Their are also people here to just listen if you need to vent.

It's always advised you check out the 1st thread on the page, Fibromyalgia 101. There's tons of info and links to more info. You may find some answers there.

Also, never hesitate to ask questions. I've never seen anybody belittled or made to feel stupid on here.

Hope to hear more from you. Hang in there! Things will get better.
Posted 8/15/2014 1:34 AM (GMT 0)
Lol..someone beat me to it! Shucks!
Posted 8/15/2014 2:31 AM (GMT 0)
Thank you everyone! I definetly read fibro 101. Best thing i have read yet! When i told my bf i should get a massage once a month he was like u get one every day.. Its like nooo i need to get real ones: ) def. Ready for that! Thank you shrrine for the advice! I find myself laying down more than exercising cause im so tired but def. Will have to try that. Im alittle loss on everything cause im finding my 3rd primary care doctor so im just winging it right now. From everything i read i basically everything we cant eat i love! I just cant wait to be on a plan with a routine so i can get my life back. I have already been through the ringer and its only the beginning! Im happy to find a geoup that knows exactly what im going through (sigh of relief) cant wait to get know everyone!

Brittney
Posted 8/15/2014 2:52 AM (GMT 0)
Brittney, I can eat just about anything. The majority of fibromites don't have dietary problems either. But we are all different so listen to your body...not what you have read.

Below is a link to where we post food discussions in the fibro forum so you might be interested in this.

https://www.healingwell.com/community/default.aspx?f=24&m=2898598

Sherrine
Posted 8/15/2014 3:29 AM (GMT 0)
Why hello Brittney and Welcome!!!

Sorry you are here because of Fibro, but you have landed in a wonderful spot. Brittney you will feel better once you get a good plan in motion. TRY.... and this is hard not gonna lie, to not constantly dwell on the pain. I know it is like telling you to ignore the purple elephant in the room right? lol (hope that made you smile} Do not google about this condition. There is so much scary negative information out there about this condition that is just simply NOT TRUE.

You can have a good life with this inspite of pain. Will you have pain everyday? yes, that is the nature of the beast, however as Sherrine said you can get a handle on it so it is a background kind of pain , instead of a SCREAM IN YOUR FACE kind of pain you have now. You will find the best relief through a home plan you develop. IT may be a prescribed med with massage therapy or possibly stretching with a good supplement that helps or maybe walking with some meditation or heck it could be a combination of all of that and more. The important thing is NEVER stop looking for answers. You will eventually find something that helps. Many of us have had this for years and many have this and multiple other health issues. We all find great advice and comfort in each other

Do not worry that your little girl sees you cry. Sometimes people cry, and you know what? that is ok. She is young and when you get this under control, she wont remember mom crying anyways. Do keep moving as Sherrine said ....sounds like you do a good job of that. Distraction is key while waiting to see Drs and such. Have some great tea partys or make memories at a park with your daughter Find something to be thankful for everyday and look for laughter. You hang in there because you will be just fine. It is late and I have work tomorrow and I have a tendency to not shut up LOL. So in closing WELCOME ABOARD and find enjoyment in this up coming weekend. Look forward to seeing you take charge of this crazy wacky syndrome!!!!

....Michael
Posted 8/15/2014 6:04 AM (GMT 0)
Hi brittany! Welcome...

Things to try until dr...Are you taking anything for pain now?

Motrin used to helpme til dr put me on a perscription form of it...

Heat helps!!! Loosens you up and move better...start with gentle stretches...also look up acupressure points for pain ...pressing on them for 30 seconds can dial the pain back from like a 7 to a 4 ..just knowing you have that power to reduce pain is awesome..

I get a lot of help from topicals..they are not talked a lot about on here..but i consider them about 50 % of my help...i am sensitive to meds..take a little tramadol for pain and use other methods to reduce it...

5 years old is an awesome fun age!!!! Your self help and help from drs will get you feeling more like keeping up with her : )
Posted 8/15/2014 12:20 PM (GMT 0)
Wow thank you everyone for the crash course of this disease. I seriously already feel better just be reading yalls post. Im def. Going to try everything and find a plan that works for me. Thank you for the hope that some of this can be temporary or at least not screaming at my face. Lol. I hope i can be an asset to this forum and learn something new everyday.

Brittney
Posted 8/15/2014 1:59 PM (GMT 0)
Hi Brittney:

Welcome to the boards. I am pretty new also.

I have had Fibromyalgia for 12 years. I have a number of other problems. Fatigue is one of the hard parts of Fibro. I do find that getting up and moving around helps to wake up. It is hard to keep moving while in pain but it is important to keep your muscles strong. I go to a water therapy program in a heated pool once a week. I have Osteoarthritis also. It is much easier to do exercise in warm water. It is quite a drudge getting out but it is a good workout.

I have been able to travel with my illnesses. My Husband is a wonderful guy to travel with. I find the prep and the whole airport rather stressful but my Husband is great. He is so organized and very calm when travelling. He also does the packing. I do need many months to get clothes and medications together but when you finally reach your destination it is wonderful. It is so much easier to be on a vacation. No cooking, no chores, just walk and enjoy. I like taking pictures.

So, do explore with your little girl. Even if you can't go far or if you can't afford travel there are many free things to do in life.

You have already begun to live again with Fibro.

Take care. Loring


Osteoarthritis (many joints including neck), Fibromyalgia, Neuralgia, Chronic daily headaches, I.B. Fatigue, hard of hearing...
Posted 8/17/2014 12:50 AM (GMT 0)
Hi I'm Ray. I am 49yo.

Last week my pcp referred me to a Rheu for mild RA... My Rheu explained I have Fibromyalgia. He's a very empathetic doctor and listened to ALL symptoms patiently. I had to write it all down so that I communicated clearly what I was experiencing. Last month was my first flare up...if you will... Of multiple symptoms all at once.

I look back thru all the years and can relate all the episodes of pain/fatigue/depression but just never once maybe associated it with arthritis...much less Fibro.

My doctor suggested Cymbalta 60 mg (starting at 30mg first week) versus long term NSAID anti inflammatories. I reluctantly started the trial 3 days ago. I've had it before a few years back for the "flu-like" symptoms. Right I am going through the nausea/loss of appetite/strange weird feeling in my head/curl up in ball/sleep for hours at a time phase.

My wife suggests to give a try for just a month and then decide to continue or stop taking it. But I am also interested in alternatives remedies. I take turmeric and extra strength B12 but those are no longer working for me.

Are there alternatives that you feel may be just as effective as Cymbalta?
Posted 8/17/2014 1:24 AM (GMT 0)
Welcome Brittney and Ray too!
Ray, I found Savella to have almost no side effects for me. I did not like the feeling I had on Cymbalta…I just did not care much about anything. I am not going to lie. Cymbalta was hard to come off. If you are having tingling and numbing feelings, that is not good…if you decide to go off the Cymbalta, you need to taper down gradually. Take half of what you are taking now for at leat 4 days, and then if you feel you can, cut it down again.
You may have to go through trial and error to find what works for you.
Brittney, your help will come through your appt in September I hope! In the meantime, hot baths, heating pads, pacing yourself and maybe a massage could help you.
HEART
Posted 8/17/2014 1:47 AM (GMT 0)
Thanks <3

I will look into Savella and research it further.
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