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Help for Daughter/Diet?

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Fibromyalgia
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Posted 10/27/2014 12:43 PM (GMT 0)
Hi everyone. I have fibromyalgia myself, but right now my teenage daughter is really suffering with this. It started about six months ago and has gotten worse as of late and she can not even get to school. What do any of you take to ease your pain? Hers is so bad she can't do anything but lay down and moan. I try to get her to move around but it's really bad. She is suffering so much. Advil and Aleve do not seem to touch it.

Also, I read about magnesium and malic acid and vitamin D, but do any of you do a special diet to help the fibro? I am starting to read about it, but was wondering if anyone could direct me at all. Thank you so much!
Posted 10/27/2014 12:59 PM (GMT 0)
Hi, most of us do need help from both supplements, and some type of medicine...i use tramadol in very low doses...also stretching and light yoga help.

I think any medical condition can at least be helped by eating better.

I persnally seem to need a little protein in the morning.and usually have a banana to get some potassium / magnesium

Vit d has helped a lot cause mine got low and it is almost back to a good count. It has made a difference in my pain levels.
Posted 10/27/2014 2:15 PM (GMT 0)
Diet is important to treating all disease. That is how our bodies get the vitamins and minerals we need to repair itself. A good place to start is the raw fruits and vegetables. Foods that give the most problems today are dairy, gluten, and sugar. Magnesium is found in the green leafy vegetables. Vitamin D is the sunshine vitamin and most people are deficient. Have the vitamin D level checked. Some people use juicing to get the vitamins and minerals in the body faster. For sure stay away from the fast foods and process foods. If you read the ingredients on the package you will find they are not really food but chemicals.
Posted 10/27/2014 2:23 PM (GMT 0)
I don't know if a "special" diet helps. The thing that caught my eye was that your daughter "lays down and moans". In my experience moving around helps with the pain. Of course it is hard to get moving at first.
Have you read Fibro 101. It is here on this forum. It lists so many great ideas for sufferers.
I do take Malic acid and vitamin D. I also walk everyday and do yoga, along with other forms of exercise. The more I move the better I feel. I've had fibro forever I think and I am 68 now and still moving as much as possible.
Posted 10/27/2014 2:52 PM (GMT 0)
I am finding that for my daughter moving around does not help her. It seems to make her worse. And she hurts so much that she can do little but lay down. I try to move her around, take her on little walks, but she just can't do it very well or for long. I know for me, when I am having a bad flare up, movement makes me worse as well. If I am having a not too bad or medium day, moving is good. But when I get really bad, it makes it worse. I also have lupus, so it's a combo of the two. My daughter does have discoid lupus, but so far nothing other than a positive ANA is showing up in her blood work, so SLE has not been diagnosed. Only about 10% with discoid developed SLE. But I am not sure that fibro is the only problem here. Her pain level is so very high. The past week it has been a 7-9 on the pain scale. And we just can't get her to school. She loves school! But she just can't do it.

As far as the special diet, I meant that I know there are anti inflamatory diets out there, and I didn't know if anyone had a specific one that had been successful for them. Instead of just a few things here or there that I am finding to be a bit overwhelming to put together. This has been so overwhelming and I just wanted a little advice.

Thanks for the help everyone, I really appreciate it. Every little bit helps.
Posted 10/27/2014 5:44 PM (GMT 0)
Hi, Ashaline. Sorry to hear about your daughter's pain - I know I can suffer myself but it's not half as bad as watching one of my kids do it. Advil and Aleve never touched my Fibro pain, either...but then, Fibro's not inflammatory (as far as they know) so that makes sense.

Sometimes moving doesn't help me, either....so I know what you're talking about.

As far as diet, not one particular diet helps us all, so we've limited diet discussions to one thread: "Diet and Food Discussions." If I can find it, I'll bump it back to the top of the list for you (you can also search back pages for it yourself.)

Do you think you could get your daughter to come here? We offer eachother a whole lot of support....maybe you could participate together.

There's also a great Lupus Forum here at HealingWell - don't know if you noticed that.

Hope to hear more from you..

Debbie
Posted 10/27/2014 8:49 PM (GMT 0)
Hi, and welcome! I'm so sorry your daughter is suffering like this. Diets help some people if they have a sensitivity to the foods but so far the majority of fibro patients don't notice a difference either way. You can try various things to see if it helps. I did bump up the Diet and Food Discussions thread just now for you. You can get some ideas there. This is where we are keeping diet and food talks.

I use magnesium malate and vitamin D3 along with a muscle relaxer to help with my pain. I also take ibuprofen with food (I have to take 600 mg at a time for it to work for me) and Tylenol when needed. Once she gets the pain levels tamped down a little she does need to start moving. If she sits or lays too long she will be stiff as a board and have more pain.

Has she been checked for Lyme disease? That's another illness that had many of the same symptoms as fibro.

Be sure to read Fibro 101...the first thread on the forum. It's chock full of good info and fibro. There are links about the supplements I mentioned and how they work in the body. All of it is good and you might pick up tips there also

I'm looking forward to getting to know you better. Don't hesitate to ask questions because we are here to help you. Hope to hear more from you soon.

Sherrine
Posted 10/28/2014 5:25 AM (GMT 0)
My daughter also has fibro, as did my mom and sister...well one of my daughters...

Hers is in an early stage, as mine was at her age...

You know often we need a good medicine to get us through a bad flare and to our more normal days...do they not give her help for pain? I do not mean narcotics as they can be addictive.

Do they recommend therapy at all? Most of us finds it takes a multiple approach to get relief.
Posted 10/28/2014 12:19 PM (GMT 0)
Some people use curcumin for pain. It is the yellow spice turmeric. It needs to be in an oil base in order for the body to absorb it. When God created Adam and Eve and put them in the garden he instructed them to eat the fruits and vegetables bearing seeds. That was his instructions for good health. If you don't get the vitamins and minerals necessary the body cannot repair itself. The body is always trying to repair itself but it needs the vitamins and minerals. The bible is a good place to start if you want a diet.

http://curcumin-turmeric.net/inflammation.html
Posted 10/28/2014 5:04 PM (GMT 0)
I take magnesium malate, and Vitamin D to help with the pain. I definitely notice a difference if I run out of magnesium. Fish oil also helps.

A couple of years ago I reached a point where I was willing to do anything and I finally tried an elimination diet. What I found was that my body reacts negatively to anything with gluten in it, and honestly it doesn't react all that much better to processed foods in general. Taking those out of my diet has made a world of difference and has allowed me to get back to school and actually get through the day reasonably, rather than spending the whole day on the couch in a fog. This may not be the answer for you or her, but it's worth a try. Take a look at the Whole 30 diet, it's a 30 day elimination diet that I've seen do wonders for other friends with Fibro (I wish I'd found it when I did my elimination diet, as it would have likely been easier than what I did).
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