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Antivirals?

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Posted 11/19/2014 6:57 AM (GMT 0)
I was reading some new research that is treating fibro with an antiviral, saying that some of the causation is a latent virus that settles into the nerve endings..

Does anyone else use antivirals with fibro?
Posted 11/19/2014 10:17 PM (GMT 0)
I've never heard of using an antiviral to cope with Fibromyalgia as it isn't a virus, but I don't know, maybe. :)
Posted 11/19/2014 11:30 PM (GMT 0)
Right, it is not a virus...but the research i was reading said a dormant virus was working on the nervous system.

I was curious about that, because i have.a genetic version of fibro.and how would that apply?

Also one of my therapists said that when patients went through a fibro clinic that i have read , used antivirals, they still had the pain.

So i am just uncertain....
Posted 11/21/2014 6:06 PM (GMT 0)
Oh think about HHV1, HHV2, HHV3 they love nerves. yes I take antivirals to help shorten viral nerve attacks and I don't leave home without them.
Posted 11/21/2014 6:39 PM (GMT 0)
Have you ever had chicken pox, fever blisters, genital herpes? I have had 40 years of study myself chicken pox HHV3 @17, & @18 genital HHV2 on my left side. I have not had shingles hope it stays away. My pain on my left side is 10x's+ worse and has spread from top and bottom to meet @ waist. Have never been told it was a brain cause and we are ALL different I would think if they had discovered what causes Fibro that would be a major medical news story. Again for me they help, where other meds haven't but do for others.
Posted 11/21/2014 10:00 PM (GMT 0)
I think this is the research you are referring to: http://uanews.ua.edu/2012/09/surgeon-ua-professor-team-in-new-approach-to-pain-treatment/

There has been a lot of research that has connected CFS (and many auto-immune disorders) to latent HSV infections (there are many). Not nearly enough research has been done regarding the possible connection with Fibro (likely due to the earliest research showing a lack of connection). These docs at UA have found that treating Fibro with a combination of anti-viral (usually used to treat cold sores) and Celebrex is working really well. They are about to go into stage 3 trials and I'd love to get in on that.

Part of the problem with making this connection is that there are several HSV viruses and almost everyone on the planet has at least been exposed to them (mono, cold sores, shingles, oral and genital herpes, among others) so almost everyone tests positive to the latent virus; but, that doesn't mean they've ever shown symptoms. For the Epstein Barr virus (which has been connected to CFS and others) there are 3 antibodies that they test for, one shows if you've been exposed, the others show if you have a current or have had a post infection. The blood tests are getting better and better and I'm really surprised that I've not been able to find more current research attempting to connect these viruses (especially Epstein Barr given the similarity in symptoms) to Fibro.
Posted 11/22/2014 6:55 AM (GMT 0)
I know there are ongoing studies and clinical trials. One is by i think dr pridgkin? Something like that..so we shall see
Posted 11/22/2014 4:11 PM (GMT 0)
Interesting theory. I know the research is ongoing regarding virus/chronic fatigue, but there does seem to be a connection, at least for some. I believe researchers have an idea of the mechanisms of fibro, but they don't know what causes it. Wouldn't it be wonderful if it is a virus and could be treated with an anti-viral?
Posted 11/23/2014 1:29 AM (GMT 0)
There may just be a subset of fibro patients with a viral component.

It certainly does not seem really clear at this point..but there are trials going on...

I think i read that at a site called health rising.
Posted 11/23/2014 6:39 AM (GMT 0)
Painwarrior,

Thanks for telling us that, i am sorry it did not help him at all...

If i am remembering it right , it may have mentioned that this was not the case in all fibro..
The research docs are spending millions trying to figure this component out. There were combining it with celebrex. Celebrex did nothing for me.
.
We are all so different
Posted 11/24/2014 2:22 AM (GMT 0)
Boy, Dottie,

I could have written a lot of your post! - I also have genital Herpes, almost exclusively on my left side, and 90% of my pain is on my left side. My left side feels totally different from my right, has for decades. Strange, isn't it?

I don't use antivirals (unless you count the topical cream) but maybe I should look into it.

Debbie
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