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Update onot my doctors appt.

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Fibromyalgia
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Posted 11/21/2014 8:36 PM (GMT 0)
So today I had my appointment to see why I'm having difficulty walking. My doctor pressed on my lower back and my tender points from fibro were painful (of course). He then had me sit on the table to check the knee reflexes which are fine. My legs are really weak when he had me try and resist him pushing on my legs and feet. He thinks my weak legs and feet is strange and doesn't fit fibromyalgia. He wants me to see a neurologist to order MRI and nerve conduction tests for my spine.

Sigh. If the tests come back negative I'm going to feel lost. Oh well. ..we shall see.
Posted 11/21/2014 9:50 PM (GMT 0)
Best to test and know. I know that early on for me with Fibro (when the symptoms were worst) I had a lot of questionable symptoms, including weakness like you describe. I'd have to sit on a stool to brush my teeth. Everything pointed to MS except that every test came back negative. It was frustrating, so I know what you are facing. I'd say hope that things come back negative, I know it sucks to not have "real" answers. But, better to not have answers that are worse than Fibro. FWIW, things have gotten better for me over the last couple of years. I rarely have weakness, pain, or fatigue at the level that I had it initially (or for the duration). Sending you positive vibes.
Posted 11/21/2014 9:53 PM (GMT 0)

CountingMySpoons said...
Best to test and know. I know that early on for me with Fibro (when the symptoms were worst) I had a lot of questionable symptoms, including weakness like you describe. I'd have to sit on a stool to brush my teeth. Everything pointed to MS except that every test came back negative. It was frustrating, so I know what you are facing. I'd say hope that things come back negative, I know it sucks to not have "real" answers. But, better to not have answers that are worse than Fibro. FWIW, things have gotten better for me over the last couple of years. I rarely have weakness, pain, or fatigue at the level that I had it initially (or for the duration). Sending you positive vibes.


Thank you Julie! I'm not sure when I'll be getting these tests done, but I will keep posted!
Posted 11/22/2014 12:21 AM (GMT 0)
I have weakness in my legs often, but I have several things going on with me.

I hope whatever the tests say I hope it's nothing serious.
Posted 11/22/2014 1:08 AM (GMT 0)

couchtater said...
I have weakness in my legs often, but I have several things going on with me.

I hope whatever the tests say I hope it's nothing serious.

I hope so too!
Posted 11/22/2014 2:07 AM (GMT 0)
I am so glad you have a doctor that is thorough. That is great!!! This condition is so tricky and sneaky. You never know what you will have to deal with from one day to the next. That is its game though, more symptoms cause more anxiety which in turn causes more symptoms. It can become a vicious circle. You will eventually find a way to step out of the circle and handle this condition like a pro.

Not saying this is an easy condition to deal with by any stretch of the imagination, HOWEVER it could be much worse. You will feel relieved to know that it is just fibro symptoms when your other tests come back normal. It is very scary not knowing, Try and distract your mind as much as you possibly can, keep moving as much as possible and try your hardest to be as positive as you can.

You can feel better than you do right now. It is just going to take some time and trial and error of a right combination of tools in your toolbox, which can include medications, meditation, gentle exercise and stretching, supplements , massage etc etc. Just keep trying til you find what works best for you. We are all so different yet the same when it comes to this condition.

Do keep posting.
Take care,,
Michael
Posted 11/22/2014 2:16 AM (GMT 0)

Michael1968 said...
I am so glad you have a doctor that is thorough. That is great!!! This condition is so tricky and sneaky. You never know what you will have to deal with from one day to the next. That is its game though, more symptoms cause more anxiety which in turn causes more symptoms. It can become a vicious circle. You will eventually find a way to step out of the circle and handle this condition like a pro.

Not saying this is an easy condition to deal with by any stretch of the imagination, HOWEVER it could be much worse. You will feel relieved to know that it is just fibro symptoms when your other tests come back normal. It is very scary not knowing, Try and distract your mind as much as you possibly can, keep moving as much as possible and try your hardest to be as positive as you can.

You can feel better than you do right now. It is just going to take some time and trial and error of a right combination of tools in your toolbox, which can include medications, meditation, gentle exercise and stretching, supplements , massage etc etc. Just keep trying til you find what works best for you. We are all so different yet the same when it comes to this condition.

Do keep posting.
Take care,,
Michael


Yes, I am grateful that my doctor doesn't think I'm crazy and is helping me every step of the way. This forum helps a ton. So many positive people :) I do have a fear of being in the dark not knowing what's causing my body to rebel against me. ..lol, if that makes sense. I'm trying to become a positive person but I have to control my anxiety and depression. Cymbalta had helped a lot with my mood. ..just waiting for it to help with my pain and anxiety
Posted 11/22/2014 2:32 AM (GMT 0)
Alex,

I, too, really hope that your tests come back negative and you can start getting on with your life again. When you don't know, that's hard.

Just to let you know, you don't need to copy someone else's post within yours when you answer them - - (that takes up a lot of writing space on the forum, which our administrator pays for...)

People can scroll back up and see what you're referring to.

Have a good night.

Debbie
Posted 11/22/2014 2:35 AM (GMT 0)
Oh thank you Debbie!
I'm still new at this and wasn't sure how to reply
Posted 11/22/2014 6:12 AM (GMT 0)
Be thankful they are looking at all things to rule out other diagnoses. I believe sometimes the Dr's are in the dark on how fibro really can cause all these symptoms you listed. I know I have muscle weakness which has got better over the years. I had the nerve conduction test done showing some decrease sensation probably due from spinal cord compression from an old injury. I was surprised after looking at all my symptoms from fast heart rate to a page more of symptoms that not one of my Dr's said "oh your page full of symptoms are all caused by fibro" I thought I was falling apart! They knew I had fibro, but never explain to me all my symptoms I was experiencing was fibro. It was on this forum where I put the puzzle together. So you might have to do your own homework too is what I am saying.

I finally listed all mine and work on a treatment plan for each one. Next thing I knew it all started to come together. I began to see results after a month or two. So if you don't get results with Cymbalta you might need to look at another drug. Give it some time first. I take remron because it helps with anxiety, sleep and depression.

Pain is one of the hardest things to get control of. I take buprenorphine which has worked great for me. It's not for everybody. So you just have to play around to find that right fit for pain control.
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