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Wrong diagnosis?

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Posted 1/14/2015 4:09 AM (GMT 0)
I'm not convinced my doctor has made the right diagnosis.

I have flareups of my both ankles joints, both knees, both wrists, hands and feet and both knees. At other times the pain lodges in just one side of the body. The pain came on suddenly when winter hit and has come and gone but mostly stayed. The joint pain burns. Exercise makes it worst.

I thought it was caused by food intolerances. I have had horrible knee pain in the past until I connected it to dairy.

All the blood test for RA,etc. have come out normal. The Dr. referred to a Rheumatologist and they decided it was Fibro. It just doesn't sound like it to me from what I have read.

I have had problems with some of the other symptoms that are normal for Fibro such as muscle spasms, insomnia, anxiety but I can relate these to other problems that I've been able to manage.

I would greatly appreciate your help. I don't know how to manage this pain if I don't know what is truly wrong with me. I went grocery shopping today and hit stores (sales) which normally was not a problem. I was in bad pain today by the 4th store. Is this normal? How do I manage the pain to not cause flare ups?

Thank you for letting me ramble.
Posted 1/14/2015 6:29 AM (GMT 0)
It can be the soft connective tissue in the joints that cause the pain...so yes we can have lots of joint pain.

Most of us need help finding something that helps with pain , but still lets us function pretty well.

I cannot take strong enough meds, so use alternatives for pain. , like turmeric, heat, topical pain relievers, a mens unit....etc...

Its often trial and error to see what works for you personally...what are you trying?
Posted 1/14/2015 8:05 AM (GMT 0)
You also need to learn to pace yourself. I used to marathon shop with my sister and niece. I could go all day. Now a quick 30 min. trip nearly kills me.
Posted 1/14/2015 12:21 PM (GMT 0)
Hi, GrammyG, and welcome! Yes, these are symptoms of fibro. They are symptoms of other illnesses too but you have seen a rheumatologist, had tests run to rule out other illnesses with many of the same symptoms as fibro and given a diagnosis. I would suggest you get a second opinion if you really think the diagnosis isn't correct. Doctors can make mistakes.

Please read Fibro 101...the first thread on the forum. There are links to good info about fibro and you will learns a lot there. Good starting links for you would be Symptoms, What Else Could It Be, and A Thorough Explanation of Fibromyalgia. You just might see yourself there. All of Fibro 101 is good so do read it. It will help you.

I'm looking forward to getting to know you better. Don't hesitate to ask questions because we are here to help you. Hope to hear more from you soon.

Sherrine
Posted 1/15/2015 12:27 AM (GMT 0)
I am very interested in knowing about the turmeric. I have been reading about it but I can't figure out how much to take? Which topical pain relievers help?

I'm using heat, an aspirin topical I had on hand and Naproxen (as a last result). I don't handle pain relievers well, either.

Ljm2014 said...
It can be the soft connective tissue in the joints that cause the pain...so yes we can have lots of joint pain.

Most of us need help finding something that helps with pain , but still lets us function pretty well.

I cannot take strong enough meds, so use alternatives for pain. , like turmeric, heat, topical pain relievers, a mens unit....etc...

Its often trial and error to see what works for you personally...what are you trying?

Posted 1/15/2015 4:20 AM (GMT 0)
I have been taking tumeric i found on amazon called tumeric force.

Its a strong dose so i only added one per day. I am guessing they checked your vit d? Getting that into a good range really helped my pain levels.

The strongest topical one i have used is soothanolx2.. Its pricey per bottle, but only takes a few drops and relieves pain longer..at night i use one called pain erase.

I can take very low dose tramadol for pain, but not enough to wipe it out, just enough to keep the edge off..so i really need the other tools to help.

Sounds like you are reading up , so thats great..it is trial and error to find the things that help us.
Posted 1/15/2015 4:34 AM (GMT 0)
I'm sorry that shopping brings you so much pain, now! I will take your advice. I'm having to learn a new way to get things done.

couchtater said...
You also need to learn to pace yourself. I used to marathon shop with my sister and niece. I could go all day. Now a quick 30 min. trip nearly kills me.

Posted 1/15/2015 4:52 AM (GMT 0)
This is so helpful! Thank you so much. I just found out that Costco sells Tumeric. Should I look for a certain amount of mg. per capsule?

I have some over the counter aspirin creams and some PAS patches. Do you know how they would compare to the cream you use?

Thank you!

Ljm2014 said...
I have been taking tumeric i found on amazon called tumeric force.

Its a strong dose so i only added one per day. I am guessing they checked your vit d? Getting that into a good range really helped my pain levels.

The strongest topical one i have used is soothanolx2.. Its pricey per bottle, but only takes a few drops and relieves pain longer..at night i use one called pain erase.

I can take very low dose tramadol for pain, but not enough to wipe it out, just enough to keep the edge off..so i really need the other tools to help.

Sounds like you are reading up , so thats great..it is trial and error to find the things that help us.

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