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72 HOUR EEG RESULTS

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Fibromyalgia
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Posted 1/30/2015 10:05 PM (GMT 0)

Hi, I'm new to the board, so here is a brief history. Diagnosed with Fibro 8 years ago. Sudden onset of symptoms 10 years ago following heat stroke. Pretty sure I have had it my whole life to a much lesser degree. My Mother was told after various tests when I was 5 that I was just a "naturally nervous person" I recently had a 72 hour ambulatory EEG.

During the EEG I was supposed to push a button when I felt a symptom occurring. Having Fibro Fog on a daily basis, I didn't remember to push the button. I did have to sit for 2 hours in front of a camera each day, during which time my jerks and ticks were occurring. Well a month later my GP called me and said that my EEG results were "unremarkable". That they showed no signs of anything abnormal. Now she is doubtful that I have Fibro at all based on a lack of "remarkable" data. I have struggled with the theory of,  Its all in your head, knowing there is something terribly wrong with me but having no medical test results to confirm it. I am now having difficulty getting my Gabapentin and Tramadol refilled. I get one fill at a time with no refills. , these are maintenance  medications that I have been on for three years . So I guess I'm really asking if a negative EEG means I don't really have Fibro?

Posted 1/30/2015 10:39 PM (GMT 0)
NO it doesn't mean that. There is NO test, to test for fibro and I'm surprised your doctor told you what he did. I would go see a board certified rheumatologist to get a second opinion.
Posted 1/30/2015 11:10 PM (GMT 0)
Hi, Lovemyboxers, and welcome! You need to see a board certified rheumatologist who treats fibro patients. Be sure to ask. They should run you through a myriad of of tests to rule out other illnesses that have many of the same symptoms as fibro...things like Lyme disease and lupus. As AngleLisa said, there is no good test for fibro. If all the tests come back normal then you usually are diagnosed with fibro.

No, it's not all in your head. Fibromyalgia is recognized by the American Medical Association, the American College of Rheumotology, the National Institutes of Health, and the World Health Organization just to name a few. Don't let anyone tell you that. It's a real illness with real pain.

The criteria is to have pain in all four quadrants of the body that last over three months. We usually have the cognitive memory problems too along with various other symptoms. You sound like you fit the criteria. This link is from the Mayo Clinic.

http://www.mayoclinic.org/diseases-conditions/fibromyalgia/basics/tests-diagnosis/CON-20019243

Be sure to read Fibro 101...the first thread on the forum. There are links to good info about fibro and you will learn a lot there. Good starting links for you would be Symptoms, What Else Could It Be, and A Thorough Explanation of Fibromyalgia. You just might see yourself there. All of Fibro 101 is good so do read it.

I'm looking g forward to getting to know you better. Don't hesitate to ask questions because we are here to help you. Hope to hear more from you soon.

Sherrine
Posted 1/31/2015 2:16 AM (GMT 0)
Hello and welcome!
Sorry you're having all these symptoms and related problems with your Dr. You need to follow the advice already given and find that board certified rheumatologist!! Fire your Dr. And move on.

My twitching muscles combined with all over pain is very real and so is yours don't ever let anyone make you think this is all in your head. All my EEG tests were normal as well. My arms still flail in the air when trying to sleep as well as muscles in my body twitching everywhere which looks like I'm trying to make Jiffy popcorn under my skin. My skin will burn and feel like it's sun burnt. My hips ,butt, legs and shoulders ache, burn sting and so on and so forth.

However with all this said, I motor on. I work, I have fun and I still do whatever I want because I have the attitude of, I'M GOING TO HURT REGARDLESS IF I DO OR DON'T DO SO I'M GONNA LIFE MY LIFE TO THE FULLEST DESPITE THIS STUPID RIDICULOUS CONDITION.

See a Doc whom will work with you on this condition. There is no magic pill and honestly probably won't be, BUT....I PROMISE YOU THEY ARE WORKING ON THINGS TO BETTER IMPROVE OUR SYMPTOMS. THAT'S EXCITING!!!

Please keep in touch we are The Best Positive support forum on the net. Our members care about each other and we want you to feel better.

Take care and keep posting
Michael
Posted 1/31/2015 2:56 PM (GMT 0)
Thank you so much for the advice. I have been to 2 Rheumys . The first one diagnosed the fibro, tried several medications and tests decided it was fibro with other underlying issues. After a year he decided I should be released back to my GP. All was well until she moved to another part of the state. The one I see now is in the same office as my old dr. She sent me to rheumy #2 visit was very thorough and I felt some hope. Then he starts telling me that many rheumatologists no longer believe that fibro is a real disease. WTH!!!! I am so disappointed in the options available to me. I live in Oklahoma City and I'm sure there has to be at least one rheumy that will take me seriously.Thank you so much for the info and support. I am starting to see that light at the end of the tunnel again.
Posted 1/31/2015 3:16 PM (GMT 0)
Get another rheumy. He obviously doesn't believe fibro is a true illness...even though the American College of Rheumatology says it is. Most DO believe it's a true illness but there are still some that are in the Dark Ages about this illness...and yours is one of them. Did you read Dr. Clauw's interview when you first open Fibro 101? He talks about what they think is happening with this illness. YES, it IS an illness and if any doctor tells you otherwise, run to the door.

Why couldn't your new doctor follow your existing procedures for fibro like your other doctor did? You said you were doing fine. You might need another GP, too. Good doctors that try to understand this illness is imperative.

Let us know what you do. We do care about you.

Sherrine
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