Does Fibro progress?

I read somewhere that Fibro does not progress. Has everyone else found this to be true?

Last year my pain was much less than this winter.

Sherrine,
That is so encouraging. I often think that I don't have Fibro because I don't end up in bed with it. I can still do most of my work... just slower some days... I just do it all while in pain. I have a family gathering in a few hours. I over did yesterday so I had a hard time sleeping and had to get up and take an Ibuprofen and then ended up with a muscle cramp which woke me up. All because I didn't take time out to rest yesterday in between all the cooking and preparations. BUT, I got a lot of work done in spite of it. I'm so thankful. Today I'm resting more in between my work.

I feel so bad for those who suffer so much more with it.

You are an encouragement! Thank you forr all you do to help us?

I think to a point it can seem progressively worse. But we age, develop other aches and pains. I think you have to find what works for what is going on at the time. When I first got fibro, it was getting worse everyday. But after a couple of years, I seemed to have leveled off. This winter I was worse too. We had a lot of damp weather in the beginning and then it got terribly cold. All this effected me.

I Hope that everybody finds their niche and can feel progressively better. Spring is just around the corner (I hope)...

Hugs, Karen...

PS it was much warmer here today. I did get out in the fresh air. Wonderful day!!!

Oh well... Idon't want to scream at a friend.

I called off for tomorrow. Explained a little about my problem. It's not like I'm out devil worshipping, gambling, drinking, or dealing drugs. Geez. I just got a little Fibro problem.

Jen

So, have any of you developed new fibro symptoms over time?

Good clarification, LJ. Makes sense.

GrammyG said...
You are an encouragement! Thank you forr all you do to help us.

I had a "flare" come on, and it was all new to me symptoms. Things I didn't even know fibro could cause, because even though I knew I had it, my symptoms were pretty much limited to being painful to touch & fatigue. I'm sure there were a few others going on, but I've been plagued with "unexplained" illnesses my entire life. I've always baffled doctors.

Anyway, this "flare" was crazy. My fatigue peaked, and my joint pain went off the charts. My neck started hurting like crazy & causing horrible headaches. I've always gotten headaches. I'll get them from some foods, and always been light sensitive. Now though, I can't stand light. I work in a dark office with lamps around me, because the florescent kills me. I started having the worst muscle cramps ever. In my muscle next to my shin bone is the worst! It's such a tight muscle anyway, so there is very little you can do but wait it out. Blurry vision! I'd had a few episodes of it years ago, and I blamed it on sinus problems. Those are chronic too. I'm just a barrel of fun. Anyway, now I get blurry vision almost daily, and I went from having a photographic memory to not being able to remember complete conversations. I've no clue what I got up to go get most of the time. This has been going on for 2 years. I don't think it's a flare. I think there's something else going on. The bad Rheumy blamed all on fibro. He did order a cervical MRI that I requested, and found I have severe osteoarthritis. I'm pretty sure that's what's going on with my shoulder, and the nerve problems there. That's the neck pain too.

That's why I'm asking if any of you guys ever developed more severe symptoms later on. Is it connected to aging maybe? I am a woman, and I'm almost 48. Hormonal? Primary doc keeps coming back to Lupus or MS. I'm waiting to get into a new Rheumy late next month. Hopefully I will get some answers then. I know fibro is a beast, but it's so odd how quickly this came on and how long it's been going on.

Thanks, Sherrine. I'll check out that book. I looked Ankylosing Spondylitis up once, but can't remember now, so I may again. I appreciate the feedback.

I agree with LJ and tangodancer. My symptoms and flare ups are getting worse. This could be due to my circumstances getting worse but it's hard to say with fibro . From what I have read researchers are still researching and they don't have the answers yet. They have some theories but hasn't been proven. Yes they are narrowing down this illness but It seems up in there air to me. There have been so many variables as to what causes , this mysterious condition. This forum helps us so we the sufferers can learn more , relate and help each other .

LJ what is the acupressure mat? Also has anyone been to a neurologist to provide a map of the body's nerve system to find nerve damage/misuse? This was advised from an orthopedic doctor that my husband works with.

The acupressure mat , i got from amazon.. You lay on it and it stimulates acupressure points, which increases endorphins...

I also use acupressure pens , and just my hands to work on acupressure points. Acupressure is one of many tools i use to reduce symptoms.

I cannot tolerate enough pain meds to handle all my pain levels so i use self help methods to help even more..its very trial and error what works for each person.

I think one of our fellow posters said it was too much for her..there are ways to start low and work up..

My pain intensity roller coasters but, in general, it steadily worsens as time goes by. And has ever since my fall, which was the beginning of my health issues, including fibro & myofascial pain. I use to think the fibro was worsening but came to realize that the joint injuries (and aging) have also caused scar tissue, arthritis & adhesions. And thus more pain.