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Fibromyalgia
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Posted 4/1/2015 1:30 PM (GMT 0)
I've read hundreds of websites, blogs, Facebook posts etc. on managing fibromyalgia symptoms and treating them. I'm not looking for solutions to treat or manage it. I keep hearing it's a chronic condition. I don't believe this. I believe there is a cure for everything regardless of what the medical establishment says. I also believe the cure for many chronic conditions just haven't been found. I was wondering if anyone has heard of a cure. I have heard the cause of fibromyalgia is the absence of good bacteria in the small intestines or "leaky gut". I have greatly improved my symptoms but would rather cure it, not through drugs but naturally. If anyone has heard of a cure I would like lots of information about it.
Posted 4/1/2015 1:58 PM (GMT 0)
Most of the recent studies I've read about say that there's been testing done that shows, within the test groups, people with fibro have a more intense response to certain stimuli than people without. And that most of the people in the test groups who have fibro have a higher count of certain chemicals that carry pain responses to the brain, and have fewer of the chemicals that stop pain messages to the brain. There were also tests on people with and without fibro that showed much higher activity in the part of the brain that processes pain.

From what I understand tho, it's extremely difficult so far to pinpoint the exact cause of fibro because it typically overlaps with other chronic pain conditions or with autoimmune diseases. And everyone with fibro experiences different combinations of the many different symptoms. There's no set parameters to fibro, the only thing that is common in all is the hyperactivity of pain sensitivity. Researchers need to know WHY before they can do anything else.

I'm sure that once researchers can figure out what causes the imbalance, whether it's a messed up gene or something, they'll be able to work out how to fix it. And with the increased number of people diagnosed with it, and the recognition that it really IS a chronic pain thing not a mental thing, a lot more research is being done to find the cause.

We just need to have patience and trust that it'll happen. Until the cause is found tho, all we can do is find what works best for us individually to treat the symptoms we have.
Posted 4/1/2015 5:34 PM (GMT 0)
If there was a cure, this forum most likely wouldn't exist. If you go to Fibro 101..., the first thread on the forum, the very first link is an interview with a doctor who is one of the top researchers for fibro. He explains what they think is going on. They don't know what is causing fibro yet so there will be no cure until they do.

Yes, you can go to Dr. Google and find sooo many cures for fibro but they really don't work for the true illness. IBS is one symptom of fibro but not everyone has it. I don't. But for those that do, things that deal with the intestinal tract and getting rid of some stress will help but that's not what fibro is all about. Fibro is having pain in all four quadrants of the body that has lasted many months and also most everyone has cognitive memory problems.

Be sure to read all of Fibro 101. There is a wealth of information in that thread. You will learn a lot there.

Sherrine
Posted 4/1/2015 8:20 PM (GMT 0)
I don't know of a cure but I am praying for one:). I think this forum is good so we can share info with each other and it helps to relate. Have you read the melt method book . I am finding it very interesting. It talks about the connective tissue in the body as a whole system. it's all over the body and accumulates stuck stress . From what i read , the connective tissue (fascia) gets dehydrated and causes chronic pain, and affects different functions in the body. And you can't hydrate it by drinking water, or eating healthy or common exercise."

Does it work? I can't say. But if it is correct it would make more sense to me because of the so many variables Involved with this condition . The routine for fibro is outlined in the book and its the slowest pace. Maybe I am just wish ful thinking but I don't want to give up hope. If your digging around maybe you should take a look at it. I just started it myself and I am still in pain. I did notice some of my deeper pain going away after the first day but I don't know if that was why.

If you find something , please share :)
Posted 4/1/2015 8:55 PM (GMT 0)
At the moment, there is no cure. The medical establishment might find one eventually, and I am fairly sure that they will. eventually. But right now, the best we can do is manage it successfully.

I just heard an interview with a doctor on NPR. She wasn't referring to FMS, but she said something I found quite arresting.

A 'cure' discussed on the internet or in some communities is not what doctors use to make their medical evaluations. If something benefits a few people, that's great, but it is not a cure that has been researched and tested by physicians. Physicians will study recent breakthroughs, and will prescribe medications that have been tested, are safe, will make their patients lives better or more bearable, AND are beneficial for most patients.

Others will say they do not trust the medical establishment, or doctors, or drug companies, or a whole variety of other things. That's fine, for everyone is entitled to make up their own minds and do their research. I will give my trust to the very flawed medical profession, for it is based on science, trials, and evidence, not anecdotes.

Good luck in your search!
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