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Fibromyalgia
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Posted 4/25/2015 11:53 PM (GMT 0)
I feel weird sensations. Almost like electric shots on my feet. Also on my head, some of the nerves constantly flicker. I get pins and needles and kind of cold sensation. I had all X-Rays, nerve and muscle study done and came normal. My Neurologist says Fibro. I am suppose to go to Pain Doc now. I am recently diagnosed with Ulcerative colitis as well. Any advise appreciated.
Posted 4/26/2015 1:21 AM (GMT 0)
Fibromyalgia is the nerves going crazy in our body.
It affects each of us differently. I used to get the wild nerve firing off like that. Now I'm just in constant ache.
Posted 4/26/2015 3:15 AM (GMT 0)
I would go to a rheumatologist before a pain doctor to make sure you're takin the right medication. Also many of us have chemical sensitivities and a rheumy should know a better dosing strategy to mitigate your CNS to not get too overwhelmed. I would start with your nearest university hospital or teaching hospital (like the VA). If that doesn't work, contact your insurance carrier.

Rheumy providers for MA: http://www.fmcpaware.org/healthcare-provider-directory/healthcare-provider-Massachusetts This is a partial list.

Good luck!
Posted 4/26/2015 11:03 AM (GMT 0)
Hi, Shortwoman, and welcome! You have gotten good advice. I also think you should see a rheumatologist...one who treats fibro patients. Ask before making your appointment. There are still some doctors in the Dark Ages when it comes to this illness. Also, there are other illnesses that have many of the same symptoms as fibro and those need to be ruled out...things like Lyme disease and lupus. You didn't mention if you had pain. That is one of the hallmarks of fibromyalgia.

There are medications and supplements that can help with this illness but what works for one doesn't necessarily work for another. It's a trial and error type of situation but you will get many suggestions from our members.

I use ibuprofen with food, Tylenol, magnesium malate, vitamin D3, and a muscle relaxer called Robaxin that has made a significant difference in my pain. I also walk daily as a gentle form of exercise, do stretching exercises, and I pace myself when doing things. All of the above have helped me live a full and enjoyable life in spite of this illness.

Be sure to read Fibro 101...the first thread on the forum. There are links to good info about fibro and you will learn a lot there. Good starting links are Symptoms, What Else Could It Be, and A Thorough Explanation of Fibromyalgia. You just might see yourself there. There are links about the supplements I mentioned above and how they work in the body. Also, when you first open Fibro 101, there is an interview with one of the top doctors studying this illness and he explains what they think is going on.

I'm looking forward to getting to know you better. Don't hesitate to ask questions because we are here to help you. Hope to hear more from you soon.

Sherrine
Posted 4/26/2015 10:02 PM (GMT 0)
Hi, Sherrine, What is Robaxin? Is that supplement? You are my inspiration. I see on your signature that you have Crohn's too. Tell you the truth I am little scared. I am being diagnosed (UC, Blepharitis and Fibro) with one after another medical issue in last year. I do not know how I will be able to manage and what future will bring. Until last year I was healthy and active. I was vegetarian and thought eat well. No idea what has triggered and not stopping.
Posted 4/27/2015 5:14 PM (GMT 0)
Robaxin is a muscle relaxer. This has helped with my pain quite a bit.

I was diagnosed with UC when I was 29 years old. Eleven years later, after the invention of the colonoscopy, I was told I really had Crohn's disease. Fibro came along about the same time as my Crohns diagnosis, hearing loss and diabetes and other illnesses came shortly after.

I've had nearly all of my illnesses since my mid forties and I've had a great life! I've never let illness define me and I have lived my life pretty much the way I have wanted to. I've done a lot of traveling...even overseas...and never had a problem with it. I do a lot of gardening, I take care of my home, etc. Yesterday my daughter took me to the casino and we did a lot of walking around and I was fine. But I walk daily so my body is used to that now. It wasn't that way before I started walking though.

I'm a positive thinker and expect things to go well and they usually do. Sometimes not, but I handle that if it arrives. I do not project myself in the future because we don't know what the future holds. Instead I take one day at a time and live it to the fullest. And, as I said before, I've had a great life! I turned 68 last week and am going strong and have no plans on stopping anytime soon. smilewinkgrin

I live by myself now. I've been a widow for over 17 years. I'm quite independent and plan on staying that way. I think because I can't depend on others to help a lot, it has helped ME a lot! My daughter wants to help me but I want to do things myself and I do. Then I get bragging rights. LOL. Right now I'll be ordering mulch for my many gardens...probably about 75 bags and will start spreading that most likely next weekend. I'll pace myself when doing it. It WILL get done and I will smile when looking at my beautiful gardens knowing I did it myself.

So don't worry about the future. You most likely will do just fine. Besides, worry causes more pain. Worry is nothing but fear and you definitely don't want to give fear a foothold in your life. Take one day at a time and I think you will be amazed at what you really can accomplish in life!

Sherrine
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