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Posted 9/1/2015 8:46 PM (GMT 0)
I would like to hear if others totally lose words they need to carry on a conversation. I retired from the medical field because I was too exhausted to do the long days and deal with other peoples problems.

Because I like my work I do volunteer work but I am finding that terms and words I have used for 40 years are lost in my memory banks - if I sit long enough they do come up but it makes me feel incompetent when I cant express myself

I am also finding that I cannot cope with simple things that I used to do all day.

A few weeks ago we went to the beach and I was at peace sitting on the balcony watching waves and shore birds all day - that seems to be my level of ability. The rest of the family went sightseeing and eating out...I could have cared less.
Posted 9/1/2015 10:14 PM (GMT 0)
You need to dive in and do what you can. Sightsee but rest periodically.

Oh Lordy do I ever forget words. I was trying to tell the receptionist that a car in the parking lot's CAR ALARM and I couldn't think of the words. It was like pantomime. Imagine if I was trying to tell someone I saw a fire and forgot the word fire. I'm 71 so I keep thinking I'm getting Alzheimer's disease. I talk slower so I have time to remember all the words I want to say. It's maddening I know.

This will make you laugh: A guy goes to Starbucks and asks for a latte and says his name is Mark with "K". The barista called the name Kark, sure enough that was the spelling on his cup.

Get out there and do what you can or you will become isolated and that's not good at all.

Also it's harder to suffer fools yes.

Make the best of the fibro situation you can. I find having told those around me what I have they are more willing to help me keep up. There are tv commercials now and people seem to be more familiar with fibromyalgia so they understand it's fatigue and muscle soreness and a myriad of other symptoms.

Barb
Posted 9/2/2015 1:30 AM (GMT 0)
Glad you find people are empathetic barb,

I do not talk bout my fibro out much, but find people show no empathy at all... Even people who share their health issues with me..

I am pretty sure that one friend has been told that its not real , by the way she acts.

We are blessed because of our chronic issues, to be compassionate ..even if we cannot get it back...
Posted 9/2/2015 9:27 AM (GMT 0)
I've been finding some people are empathetic to a point. Most don't know much about fibromyalgia at all. Maybe some think it's like arthritis. They don't understand that it's much more than that. I'm glad we have this website so we can share with others--people who know what we're going through.

Concerning the beach, AndreaM, I recently learned about negative ions. They're a mood booster and you can expose yourself to them at the beach, in the mountains, after a thunderstorm, and even in the shower.

Here's an article about negative ions:

http://www.webmd.com/balance/features/negative-ions-create-positive-vibes
Posted 9/2/2015 1:02 PM (GMT 0)
We are all in the same boat. It's so easy for us to sit back and watch the world pass us by but you definitely do not want to do that. In a few minutes my son will be picking me up to go to the botanical gardens in Cleveland. It's the last thing I want to do but I know that once I get there I will have a wonderful time. I can't tell you how many times I wanted to back out of things but, after I went, I was so happy I made the effort. Do get out and enjoy life. It truly is possible with Fibro.

We have cognitive memory problems and then as we age we are more forgetful. I'm 68 now and all of my friends are now forgetful so I don't feel so bad. turn It's not the end of the world. I figure I could have a whole lot more things wrong with me so I thank God everyday that I can enjoy my life with all of my illnesses.

You might want to try folic acid supplements. I do take these and I think they do help with memory issues. They are starting to use these with Alzheimers patients so I think they help.

Now get out and have a great day!

Sherrine
Posted 9/2/2015 2:37 PM (GMT 0)
I agree with Sherrine - don't ever give up. I have had to alter my lifestyle tremendously but I have also found work arounds that keep me in nature - at events and still physically active.

When we fight against what is and believe that we have to have it a certain way or nothing we suffer - this is a Buddhist tenant.

I hurt but I move - I feel sick a lot but I go and do...I just do less and shorter !!
Posted 9/2/2015 6:12 PM (GMT 0)
I just got back from the botanical gardens and LOVED it! We then had a lovely lunch so my day was delightful. I didn't want to go this morning but am very glad I went. :-)

Sherrine
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