Posted 10/6/2016 1:38 PM (GMT 0)
I had my Rheumy visit yesterday,
I felt it was a good visit, he listened to me, which doesn't always happen with Dr's. As my primary Dr. already ran a battery of blood work he had a few thing to go off of already, and ruled out RA and said my Lupus test was good also. He gave me a preliminary diagnosis of Fibro, but ran more blood work and X-Rays Anti SSA/ro and Anti SSB/La along with a Vitamin B12 work up... the X-ray was for Sacroiliac joints.
I think he is looking to see but of course I'm not a Dr. so really I am just guessing....if I have Sjogren's Syndrome, and with the x ray Ankylosing spondylitis. All of this make me so nervous, but yet at the same time I want and need answers....
He said if the test and x rays come back good then I have Fibromyalgia, if something else shows up I'll have to go back in and see what is up..... He offered me Gabapentin, he said a low dose, to be taken at night, but I declined.... I am so nervous to take any drugs. He did promise it would not interfere with my Epilepsy though and I was very nervous about that as I am no medicated for that. I want to be out of pain and feel like I am living again but so scared at the same time. I feel paralyzed with fear. I would love to hear what you all think with these test, and findings so far.
I am so happy this forum is here. It is such a help trying to navigate chronic pain and all that goes with this.... Thank you all in advance