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Posted 2/21/2018 1:37 PM (GMT 0)
I was diagnosed
With fibro 20 years ago. I had a few years of what seemed to be remission for the most part unless I really over did it or something I hardly had a flare. 2 years ago a series of life changing events started taking place. Long battle with adenomyosis led to a very rough hysterectomy, my daughter and 3kids moved back in with my husband and I fleeing an abusive husband which ended in her filing for restraint and ultimately divorce. The divorce led to us having to leave our church of 30 years and caused a separation of very close family. My husband lost his job of 28 years. My mom was diagnosed with Alzheimer’s and had to go to a facility and in 6 months time passed away. All in a 2 year span.... I can hardly sleep because of muscle pain... wide spread muscle pain. Shoulders, back, ribs, lower back, calves and arms. It has taken me forever to get “well” from the hysterectomy. I feel better once I get out of bed and start moving around and working..... if I never had to stop and rest I could cope with the pain. I am taking B12 sublingual, D3, magnesium, and my doctor tried to start me on oral Progesterone but has had to change it from what’s considered lowest dose to a compounded dose of 12 mg because my body over reacted to it. i’m venting all of this just to try and see if someone else is faced a lot of things that threw them into a terrible horrendous flare.. I had a better day yesterday and woke up at 2 AM in excruciating pain that kept me awake all night. I suppose I need to see a counselor with everything that’s happened in my life so I could have someone to tell it all to. I went for a massage a couple of weeks ago which normally helps me so much but the next day I felt like I was dying. one of the worst experiences I’ve had ever had. I’m just very desperate and needed to vent I guess. My pain is out of control . I don’t have an appointment with my doctor until 1 March I’ve been waiting for six weeks for this appointment I am hoping they can give me something to help with the pain that I am able to tolerate. I guess I just need to be reassured that it’s probably just from all the things that happened in the last two years that have caused this Terrible flare?
Posted 2/21/2018 2:37 PM (GMT 0)
I’m sorry you are going through such a bad time but you will come out on the other side. I lost my father, my sister-in-law, and my father-in-law in a five month period of time. My husband was unemployed at the same time too! I kept waiting for the other shoe to drop. But we made it through to much better times. Look forward towards the future. Don’t look back. You can’t change what has already happened. Do take one day at a time and expect it to be a good day.

I hate going to bed because I’m so stiff when I get up. I’m far better when I’m up and around and doing things. So you are not alone there.

You might ask your doctor to see if he would prescribe a muscle relaxer. I use ibuprofen with food, Tylenol, magnesium malate, vitamin D3, and a muscle relaxer called Robaxin (methocarbamol). The muscle relaxer has made a significant difference in my pain. Life is much easier to deal with when you are in abject misery!

Do let us know how you are doing because we do care about you.

Sherrine
Posted 2/21/2018 4:48 PM (GMT 0)
Sherrine, I am sorry you have faced all those things! It seemed so hard while it was all happeneing and now that things seem to “past” my body has just fell apart. In years previous I had taken Flexeril..... makes me cranky and sleepy.... is Methylcarbomol easy On stomach? I read it’s not supposed to be a narcotic. I am glad you mentioned it my daughter said she had taken it and it didn’t make her sleepy. Although I DO need sleep.... I wish I could be knocked out for a few days because real rest is so scarce.
Thank you for replying. Its nice to at least tell someone about it ... I have a small business also and have a website that generates sales and a brick and mortar storefront.... I long to be able to throw myself Completely into it but this pain is so limiting!😢😢
I take ibuprofen “with food” also my stomach is so sensitive.... I am sure I wait too long to take it and the pain is out of control by the time I get it in my system but the stomach issues get bad if I take it regularly.

Thanks for the encouragement! Have a Wonderful Day 😊
Posted 2/21/2018 5:23 PM (GMT 0)
The first time I was given methocarbomol was in the late 1970’s. (It’s a muscle relaxer, by the way.) Yep, it’s been around a long time and I think there is a good reason for that. I would take two tablets like the prescription said but I knew that when I took that first dose I would be asleep in several minutes! All subsequent doses didn’t do that to me. But now I’m a few decades older and take more medications so I tried only one pill per dose and it worked for me! My pain was so bad I almost couldn’t walk and needed two canes to walk. I thought I was going to have to sell my home and go into assisted living. This medication helped prevent that from happening to me. I have no stomach problems with it either.

I’ve been taking ibuprofen for 31 years. I have developed ulcers twice. The second time they were bleeding ulcers and my gastroenterologist said not to take NSAID’s ever again. I tried and it wasn’t possible. I have several inflammatory illnesses and the pain was too great. My rheumatologist wanted to put me on Remacade infusions but I declined. My family health history was my reason. I spoke with my Internist and he said he didn’t blame me and said sometimes we have to take things for quality of life. He put me back on ibuprofen plus he prescribed a medication called misoprostol. It’s actually a medication that can cause an abortion (UGH) but it had shown to help protect the stomach from ulcers. I had the hardest time swallowing that pill the first time because of what it usually is used for, but this has worked for me for six years so far. I have no stomach problems. I’m not sure if it would be prescribed for anyone who hasn’t gone through menopause though.

By the way, if you wait too long to take pain medication, it will take you twice as long to get relief. I now take it at the first sign of real discomfort. I hope this helps.

You will make it through this bad time. I went through a second dose twenty years ago. My husband and I were in the process of relocating to a different state. We had sold our home and had a deposit down on a new home in the other state. Thirteen days before the move, my husband had a massive heart attack and died...at 51 years old. Then my mother, who lived in the state we were moving to, had a brain stem stroke...seventeen days after my husband died! Since our home was sold, I continued with the move. I got here not knowing anyone but my Mom, who was in intensive care. I didn’t even know the area or how to get to anything! But God really helped me and I love where I live now. Again, by persevering, I made it through the storm. So I know you can too! Just keep a positive attitude. That does help immensely. There is a good link in Fibro 101 about how to maintain a positive attitude when you have chronic pain.

Sherrine
Posted 2/21/2018 6:12 PM (GMT 0)
I am actually wiping the tears as I read your post 😢😢😢😢😢 I am so sorry you have faced all of those things! I have felt so depressed and troubled especially the last six months. I had my hysterectomy my ovaries were in good health so he left them because he didn’t want to throw me straight into menopause but most of my hormones are flatlined. So the progesterone is supposed to bring those up but I’ve had a lot of trouble taking it. I am so glad to hear about the methocarbamol I’m going to try it because I am so desperate need of pain relief.
my husband told me to take the ibuprofen with butter LOL I know it sounds crazy but if I do that it doesn’t cause any trouble with it at all with stomach issues. I put a dollup of butter on one slice of bread folded over take a couple of bites and take the ibuprofen LOL he says it’s because the fats coat the stomach and he must be right!
You are really strong person 😊 I’ve had a really hard time praying because of all the things that happened with our church I had went to church faithfully and never missed a service Since I was 12 years old unless I was sick even when I could hardly go. in the last two years I have missed so much it’s been really hard on me. My husband was pastor of the church for 24 of those years and the church just couldn’t handle our daughter ending up in a divorce. Because it was close family members ,my brothers, it has caused a great divide. So all of that’s been really hard for me to come to terms with. I think it would help me if I could somehow. So I’m sure it’s all affected the Fibro in a massive way.
It made me smile to think that you went ahead with your move not knowing anyone and made it through and made a new life for yourself that is so amazing it gives me hope that I can surely overcome all these things in my life! I know it will take God’s help i’ve just had so much trouble praying because as the song says “when I try to pray all I feel is hurt”. Somehow I must get past that though. Thank you for such encouragement today I sure needed it 😊
I remembered the Fibromyalgia 101 when you mentioned it I do need to go back and read it again. It’s been a long time.
I do know on the days that I can rise up above it all and have a better outlook I do seem to feel better. I have got to grab a hold of that better outlook once again… I have always been the optimistic, “things will work out” kind of person .... But I have seen only a small portion of what Job must of went through. It has hit my faith very hard Especially with mankind.
Thanks so much for sharing your story with me! 🤗
Posted 2/21/2018 9:30 PM (GMT 0)
I’m glad I could help a little. Don’t hesitate to email me. There is a little envelope under my name at the left of this post. Click on it and it will set you up to email me. I can’t talk about my faith too much on the forum because we have people of many faiths and want to respect them. But I might be able to go a little deeper to help you through these issues.

Have a good evening!

Sherrine
Posted 2/22/2018 10:58 AM (GMT 0)
debsoap, so sorry you're going through such a difficult time.

I was told many years ago that I have a severe case of fibromyalgia and I also have a couple disabling injuries.

What helps me, other than prayer, get through the continual debilitating pain and not being able to do nearly as much as I use to is to be proactive in taking care of myself. It empowers me to know that I'm helping myself to the best of my ability. I know I would be feeling much worse if I was not. Plus, what I learn can help others.

Finally there is hope--hope that I will find even more answers. And Healing Well is one of those places.
Posted 2/22/2018 4:39 PM (GMT 0)
So sorry you've had such a hard time. Stress definitely makes the pain worse for me and nightime, when I'm not moving, is the worst. Have you experimented with a lot of different kinds of pillows? I have a cervical, firm memory foam pillow, a latex pillow, a feather and a regular one. I use them differently depending on the pain - one between my legs from mid thigh to ankle, one under my head, one supporting my arm and tucked under my chin to keep my head in a good position. If my hips are really bad, I might build up the head of my bed, so I'm slightly inclined. If my neck is bad, the cervical pillow is under my neck, but sometimes that firm foam is better between my knees for the hip pain. I'm not sure how my husband fits in the bed.

I also use a lot of different non-medicinal topical creams. My favourites are sombra warming cream, cryoderm roll on (especially for my neck) and cannalife (a cannabis salve - it's canadian, not sure if it can be shipped to the states, but there are lots of non thc legal cannabis based creams out there - they don't all help, but this one is really good - I rub on my temples, jaw, neck and forehead).

A lot of people swear by hot epsom salt baths. They give temporary relief to me. Unfortunately not long lasting, but maybe right before bed and then keep a heating pad in bed with you. I hate being hot, so the heat aspect doesn't work well for me.

I so wish there was a magic pill out there. I'm like you - Motrin is that one thing that actually works for me, but they keep telling me I can't have it too often. I had breakthrough migraines last year which were hellish, so I try hard to keep it minimal, but the headaches get so intense. sad funny how they keep saying fibro is not an imflammatory disease, yet the only thing that helps is antiinflammatory. sigh.
Posted 2/22/2018 5:27 PM (GMT 0)
Scoobymummy, you can have something else that is inflammatory. I have several inflammatory illnesses causing me problems but fibro isn’t one of them. Then there is the possibility of a misdiagnosis. We have had members diagnosed with fibro but they actually had Lyme disease. I hope your doctor has ruled out other illnesses that have many of the same symptoms as fibro...things like Lyme disease and lupus. That’s should be done before a diagnosis of fibro is given, since there isn’t a good test for fibro. You also could have fibro and lupus. I have fibro and ankylosing spondylitis. I blamed my back pain on fibro but a lot was being caused by AS! I’m now on medication to help that pain and am doing so much better.

Sherrine
Posted 2/22/2018 6:29 PM (GMT 0)
Good point, Sherrine. I'm a big supporter of our Canadian health care, but chronic illness is an area where we are sadly lacking. My fibro diagnosis was very old-school - poking the tender points - and I don't think much was done beyond some baseline bloodwork to check for any other diseases. I feel like there's kind of a <shrug>'must be fibro' mentality up here. Trying to find a doc with fibro experience is very difficult. My neurology experience for my chronic migraines was the same. I was diagnosed and given the choice of a drug or $2000 worth of botox injections and sent back to my primary physician. That's it and that's after a year's wait to get in.
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