Posted 7/16/2018 3:42 PM (GMT 0)
Lendi, just a random thought I have, so I wanted to post to you. You have been through several drs & been given different answers. When this happens to us, I often think we get what I call "dr burn out". That is the only way I can describe what happened with me, lol. I didn't have the conflict with diagnosis' such as you, but it was too many specialists involved at one time for me. I felt like dr offices became a new job for me.
Anyway, got a little off track. Have you ever considered going to a university/teaching hospital for a complete evaluation? This is something a lot of people often do because our main stream drs cannot connect the dots. I do not know if you have already done this or not. It may be something for you to consider.