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Hello CaryF - Question :)

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Posted 3/18/2008 11:00 PM (GMT 0)

CaryF said...
Hi Jenna,

I'm assuming you have Hep C? Yes, anything over 1M is considered high. You are very high but I've heard of higher. The highest I ever was - 60,000,000. My goal is to hang around 1,000,000. I too have normal LFTs. I've gotten my PCR down with a complete change in diet & lifestyle.

Cary

Thanks Cary for all your responses ....

I would like to know what you mean by

"complete change in diet & lifestyle"

What's the diet you are on and how can changing lifestyle help getting PCR down ?!

Take Care

Posted 3/19/2008 2:49 PM (GMT 0)
Get the Liver Cleanse Diet by Dr. Sandra Cabot - you can probably get it on Amazon.
Posted 3/19/2008 4:14 PM (GMT 0)
Ji Jenn,

My theory is to take as much stress as possible off my liver and entire GI system by eating foods that are easy for the liver to metabolize, drinking an extreme amount of water (or green tea), 1 gallon a day to flush the entire system, exercise (for me walking with my Ipod) to flush toxins and getting enough rest (very important - I have sleeping pills just in case). If I don't get enough rest I am not capable and I also struggle with anxiety so am on meds for that. I have a very stressful job and work on contract so am also constantly employed/unemployed. I do relaxation tapes at night and always try to remain as stress free as possible (I know easier said than done) but my plan is to get to the point where there is a viable new treatment and in the mean time to do everything I can to make liver damage no worse - or even improve liver function if possible. I'm lucky - no cirhossis and have been holding in this pattern for 7 years now. I've had 3 biopsies over the years - all the same. LFTs and PCR go up and down but as long I feel good - I'm sticking with my plan. I had high amonia levels but not since I've been on my "regimen". The diet is very restrivtive but you will catch on quickly & its worth it for me - hope this helps.

I'm also an avid juicer - its in the book.

Best, Cary
Posted 3/19/2008 4:32 PM (GMT 0)
Jenn,

I forgot to mention my diet & lifestlye regimen is also meant to boost the immune system to help my body fight the virus. Its working so far.

Best, Cary
Posted 3/24/2008 5:09 PM (GMT 0)
Thanks Cary for all the replies ..
Posted 3/25/2008 4:43 AM (GMT 0)
I am firm believer that a healthy diet with exercise can cure many illnesses and disease. Cleaning the mind from stress is the best medicine; almost like a placebo effect.

I've not had much support from the medical community regarding my Hep C. I posted my story with the subject, new to the site looking for support. Once my levels became undetectible and my insurance changed, I have been seen by the same internist now who states year after year, the Hep C is not found in my body; yet won't tell me I'm cured (unlike my previous Hepatologist). Regardless does anyone have thoughts about drinking alcohol after going through treatment.

I was hesitant and didn't for years but my internest told me to get out and enjoy life and to drink. I was a bit surprised because I just assumed if I had Hep C at any point in my life I shoud probably avoid alcohol altogether to ensure a healthy liver since at one point it was being destroyed by Hep. Anyway, I asked the Dr. how much is too much and he stated I can drink as much as I want. I'm not a drinker anyway so I have a glass of wine or two a week but that's about it.

I just found it weird to be pushed by a doctor with the history I had but then I haven't found anybody who is claiming to be in the same situation as me after treatment.

I've been so confused about it, I sent an email to my original Hepatologist who treated me in 2000 and asked for some input. Hopefully he'll or his collegues will respond. yeah

Posted 3/25/2008 11:23 AM (GMT 0)
Hello across_time, I am by no means a medical doctor or nurse but I strongly disagree with your internist and agree with you. Why would anyone take the risk? It's like playing Russian roulette. So the first time you pulled the trigger with the Hep C the chamber was empty. Why would you pull the trigger again with drinking. You may not be so lucky again.

When I met my husband in 1998 his Hep C was undetectable. So he continued to drink thinking that he was cured. I couldn't get it through to him that he was killing himself. By 2001 he had cirrohsis. By 2004 he had liver cancer. He was dead by 2007.

I would change doctors fast. That internist does not know a heck of a whole lot about the liver.

Good luck and take care of your liver. Follow your gut instincts. They are right on this one.
Posted 3/25/2008 10:33 PM (GMT 0)
Dear across,

I think therapy might be helpful for you.

Cary
Posted 3/26/2008 12:11 AM (GMT 0)
To All-anytime a Dr tells a liver patient present or past that it is OK to drink let alone tell the patient that they can drink as much as they want is either an idiot or intentionally misleading his patient. This is why I stress becoming educated on liver disease. When a physcian tells you something and you know it is incorrect then it's time to get another DR. period! His response to across-time was absolutely unforgiveable. I hope you get a new Dr immediately.
Posted 3/26/2008 3:33 AM (GMT 0)

I agree with Shelly.  That is crazy for a Dr. to tell across_time to drink.  Given her history.  I would go get another Dr ASAP.  I have a question for anyone.  Jerry has been on Neomycin for six days now.  His dosage is for 14 days.  The three symptoms were vomiting-shaking-and sleepy.  The vomiting stopped almost immediately.  He is still shaking really bad and very sleepy.  I called Vandy yesterday and they wanted him seen.  I took him to the Gastro Dr. today.  He thinks it is ammonia (he's having 4 to 5 BM a day) and/or possibly the low blood problem again.  I was so excited to tell him that Jerry is listed and I mention how hard it was to get him listed.  Do you know what he said.  You haven't seen anything yet!!! He just busted my bubble.  I told him I just wanted to hear something positive after a year.  I don't know what he mean.  How could this possibly get harder.  I want to hear from someone that has had a transplant to get me ready if its going to be that much worse.  I feel like I have become tougher but how much tougher can it get.

Thank you

JoAnn

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