Another thing to deal with

    Moonroe here, found out yesterday my husband now has portal pulmonary hypertension.He will have a cath done on Monday to see how high the pressure is and whether he needs oral meds or a pump. Just great huh? One more thing he has to deal with. He had fluid drained less than a week ago and already needs it done again.He just cannot seem to catch a break. Everyday I wonder what the heck is going to be next. He goes to see his GI doc today.I have a ton of questions and I want some answers. We will see. He also has a mri in Aug and goes to a hepatologist in Aug. I really think we need to move things along here because in my opinion he is not doing so well. I am tired of everyone dragging there feet.  I think I am done ranting now,sorry. I have to say,I love this forum.It has helped me so much. Thank You everyone for your info and support. Oh ,I almost forgot,My mother had an mri done Sat and they found a mass behind her intestines.She goes to oncologist the 30th for consultation. She is 89 but very spry.Could use lots of prayers and good thoughts.Thanks to everyone, Mimi

Moonroe, not that it's much consolation, but that's a fairly common occurrence with end-stage liver patients.  A diseased liver affects other organs.  Aug. is just around the corner, but you might want to see if you can get his appts. moved up.

I hope that your mom will be okay.

Rick, that was a beautiful and powerful post.  Be careful out there in this heat.

Barb, the term you're thinking of is probably hepatorenal disease or syndrome.  It's a consequence of progressive liver disease.

Hugs to all,

Connie

PG, have fun!  Sounds like a good way to stay cool!  It's sweltering here today. 

Hugs,

Connie

Hello Mimi and Connie,  I did have a wonderful time with my granddaughters and daughter and son-inlaw.  My youngest who is only five almost drown me in 2 feet of water in the tide pool.  She kept jumping on me while the tide was going and I was laughing so hard I kept going under and couldn't get up.  I haven't had that much fun since..........well....I don't know when.  I am going to make a point of taking them every year.

Mimi,  I had to work like you when my husband was sick......I didn't miss much work either......all his doctors appointments were planned in advance so that I could take vacation days........if I missed work because we were at the emergency all night,  I would make it up by staying late or working an extra day that week.  I applied for FMLA to save my job if I did start missing a lot of work. When all hope was gone and I couldn't take the stress of his eniment death I went out on state disability for stress about 3 weeks before he died.  Actually my girlfriend took me to the doctor and spoke with him.  I was such a basket case all I could do was cry and nod.   

You mentioned grandkids.........do you have an kids that might be able to help you out by staying the night sometimes......or maybe does he have any siblings who would be willing to help out.  Don't be too stubborn to ask for help..........my stubborness almost killed me.  No joke.  I thought that everyone should know that I needed help and would offer assistance......since they didn't I became too stubborn for my own good and wouldn't ask anyone for help.  I learned my lesson though.......I am asking my brothers and sisters for help with my sick brother........I still do the bulk of the leg work and visiting but they are helping somewhat too but I have to push them.  It's more help than I got with my husband.

Take care.........get some Mimi time in.  I know that it's hard but you really need to take care of you as well.  If you end up sick........you will be no help to husband.   Do something you like......read a magazine,  go for a walk or a bubble bath.  It doesn't have to be anything big or expensive...you be surprised ...........15-30 minutes here and there to yourself does help.

Thoughts and prayers............