Caregivers Sharing Thread #8

Thank you!
Angie, that candle helped...I feel much brighter today.
Brother is getting distracted today...both his girls (12 and 15) are playing in all day/evening volleyball tournaments today. He is so proud of them and loves to watch them play their sports. I am hoping it will keep a smile on his face, and the hardship he is going through can go to the background for a few hours.

Today here is a BIG football day. Hubby hasn't moved from the couch. I have been told that I am in charge of everything!

Emma

Emma,
Sounds like it's sports day for you and your family today.
Angie1953

We are watching One Luck Elephant DVD. Brought hubby home yesterday for 24 hours, but I must of eaten bad food when we went out for lunch. I was sick all night, he's helping take care of me, between his bouts of sleeping.
Yesterday good day, today bad day. Never ceases to surprise me...the UPS and then DOWNS.
Angie1953

Also stayed home this weekend and just rested. Also Pajama Day on Saturday here. (But not sick with cold. Thank goodness). I am just kind of down as miss hubby, but know I need a break. When he was home last weekend I was hoping that he would be able to do more than he was able. That was a downer. He says he feels "safe" at the B & B, as it's like having a Dr. 24/7. (I don't feel so much that way, but he seems to).

I only got about 1/4 of the things done I had hoped this weekend. Just ran out of time and energy, I guess. Yesterday, tried to feed hay to horses with wind blowing 45, with up to 60 mph gusts. Took all afternoon, and would have to have been funny to anyone watching..me chasing hay, putting it in feeder..wind taking it...horses chasing hay. They were eating "fast food." Glad no wind today.

Stopped at B & B this afternoon and hubby looks more yellow, swelled up and doesn't feel well. (He was doing so well Friday eve when I stopped). Then he was mentally "with it" and could finish a story. Now, not so much. Ups and Downs I guess.

Emma. Sorry you two have colds...that stinks. Hope everyone else had a quiet weekend.
Angie1953

we are both taking lots of vit c. sleeping more. doing alot of nothing. it will pass.

angie-i think it is nice that hubby feels safe at the B&B. i hope that makes you feel a bit better about him being there. i have an elderly aunt that the family is trying to get into a b&b. she was there for one day and my uncle had to go pick her up. she was refusing to listen to anyone...threatening to commit suicide...if they didn't let her go home. she is almost 90...and she really needs to be there to be safe...as she keeps falling. i wish she felt like your hubby does.

connie-glad that you had some pajama time too. rest up and recover from that biopsy so the healing can really get going!

emma

hi all, how is everyone doing?? this is my first stop for a while so have not yet managed to catch up on other posts, caregivers was my first port of call!. i have my two youngest home from school with nasty flu like virus, coughs, colds, high teperatures, no sleep, oh the joys!!.poor little things.
i have hit a major legal brick wall with my search for help regarding hubby, it would appear no one wants him to be their problem and the law states he is my problem on paper so now i am looking for loop holes in this wonderfully creative law that gives this man the right to do his worst to himself and his family with no consequences to himself other than he will leave us all to it at some point.
i am renovating our garden shed at the moment so he can remain on the property (as the law states he can) whilst he is far enough away to continue his suicidal drinking campaign in his own zone so to speak, at the very end of our garden.
hubby soaked up more alcohol over the christmas and new year festivities than i have ever seen anyone do and yet seems more healthier than ever at the moment. his sores have cleared up, belly remains slightly swollen but less than was previously, he walks better and his rages seem to have been replaced by a tearfull self pity. much preferable to temper. self pity can be ignored. in a rare conversation with him the other day i suggested he might offer himself for human testing as he appears to be nuclear proof, just like a cockroach. he actually laughed and insisted he would outlive us all. i am inclined to believe him!.

so thats my latest from the wonderful world of me, on a lighter note, though the boys are ill they are happy and doing well at school. and i still do not smoke. small triumphs eh.

i think of you all often, connie my next stop is to catch up on your news, i pray it will be all good.
emma, angie, i hope you are doing ok, keep on keeping on.xx
xxnatasha.xx

Natasha-glad to see a post from you. And that you are still hanging in there. So sorry that your situation hasn't improved...but good to know that you will be moving hubby to the "dog house". Please post back and let us know how things are going.

Emma

Natasha

  Good to hear from you.  I like how you are making the best of a bad situation.  Fixing up the garden shed.  Good deal.

Sorry to hear your boys have the flu.  That's got to make things a little more stressful.  Sorry to hear your hubby continues to travel in this direction, mostly I am sorry that he is dragging you and the kids with him on the journey.

I think of you and your boys a lot and wish you all didn't have to go through this. 

     *             *                  *

Update on Hubby.. My hubby is in his second month at the local B & B (nursing home) and things have smoothed out. He has ups and downs, but seems to feel safe and fairly happy there.  Seems to have bouts of HE, then ok, then more HE, then ok, etc.  Also is having a hard time holding silverware to eat, but they got him big spongy handles and that helps a lot. 

 I visit almost daily.  Today I was there 5 1/2 hours waiting for the Dr.'s monthly visit, so I participated in the Move & Groove exercise hour and lunch.  (Dr. had unexpected surgery.)  Almost everyone there is in wheelchairs except my husband.   I have returned part time to work, but it is hard to concentrate on work.  Dr. is going to try some different type of pain control for hubby, a patch that last 3 days instead of the morphine.  Hope that works okay. 

Well, tired so later.  Hope all is quiet on the caregivers front this weekend.

Angie1953 

Angie-I am glad that the B&B seems to be working well for you. I hope that you are able to get the much needed rest and some of your work done too. I loved reading the story about the banana man, that really made me smile.

I hope that everyone is having a peaceful weekend.

Emma

Thanks for the info, Angie. That's interesting. Glad the patches seem to be helping him be more comfortable.

Hugs,
Connie

For yesterday and today, hubby was in a lot of pain and receiving 3 tramadol for breakthrough pain, so his Dr. doubled the dose of fentanyl (patch). Hubby is much more clear minded, wants to take classes to further self educate himself and does now talk about the future. He says he thinks he is healing on the inside. ?? He can feel it, he says. Hope so, even Doc today says he's so much more alert and present mentally.

I keep remembering....good days and bad days. Nursing home is working with me much better last 2 weeks.
Hope all is going ok for all. Connie, hope you get rid of that tired feeling soon.
Angie1953

Angie, that's good news that he's more clear minded and thinking about the future, which shows optimism.

Unfortunately, I won't "get rid of the tired feeling" until I've been successfully treated for hep C--and that could be months from now.

Hugs,
Connie